To ask you to diagnose me?

[ImPickingUpBadVibrations]

Long time lurker, first time poster.

So for over a year now I have been suffering from tingling. It started off in my left foot, progressed rapidly to my right, then my left hand, then my right hand. After a month and a visit to a physio i saw my GP who ran bloods and found a problem, so assumed it was that.

I have since had treatment for that issue.

Tingling continues.

Over time it has changed. I now mostly have it in my lower legs and my chin, however I get full on pins and needles if I sit on a toilet for longer than a wee, sit on my feet or hold my phone for ‘too long’. Too long is not long at all compared to before.

There are times, mostly at night, when I feel like my body is shaking but I’m not moving. I have googled internal tremors and it’s scary. When this happens, it is usually as I have laid down to sleep so I’ve just turned the light off. I’ll then have flashing lights when I close my eyes.

Around the same time I also started suffering from chilblains in my feet (even in spring). This winter I have discovered I have raynauds in my feet (I am over 30, apparently this is important with Raynauds?!). I don’t know if this is linked or a coincidence. I also suffer from mild constipation (started around the same time) and acid reflux (no reason for this. I am not overweight, don’t drink, exercise etc. Again started to become a problem around the same time).

I saw my GP again who won’t refer me to a neurologist because my Vitamin D is low. However once I’ve finished my extra strong course, I am sure I will get a referral, just because they are sick of me.

The first doctor I saw ruled out MS as it was symmetrical tingling and I had a brain MRI done for other reasons which was clear.

Strength tests etc were all fine. Coeliac screen was negative.

I am here because I am hoping that someone out there has had the same symptoms and can steer me towards the right kind of tests to find out what is wrong with me. It is literally constant and when I’m busy I can ignore it but it is really starting to worry me now.

Thank you.

Not sure of the OP is still around, but FWIW I have been having the exact same symptoms for months, apart from my vision is affected all the time (blurry/flickering) and get vertigo a lot. The internal tremors are not pleasant 🙁

I would suggest a change of gp. A referral to endocrinology as well as neurology. A full blood check for hormone and immune system disorders etc. If its within your reach maybe look in to private care. Good luck.

My last level was 277
that's low enough to give symptoms. I had terrible symptoms on a level of over 400. The only way to be sure is to start injections and see if the symptoms improve. It can take some time though to see the benefits, especially if the deficiency has been going on for some time. It took 3 months for me to see the benefits, after getting worse at first, which is normal. I definitely know when I'm due another injection as the symptoms start coming back, mainly the breathlessness and feeling faint on the mildest exertion.

Did anyone suffering from these symptoms find any answers?

Are you on statins by any chance?