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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think I was experimented on in the 60s?

83 replies

itsnotmeitsu · 11/02/2021 20:54

I realise this is a weird thing to suggest, and society today is very different from then, (although, 'plus les choses changent, plus elles restent les mêmes'), but this has been preying on my mind recently, due to reading an article about brain research being carried out on adults (with their consent) decades ago.

When I was very wrong - early 60s - my sister and I were taken to a Birmingham hospital a few times to have electrodes placed on our skulls, and patterns were recorded. I remember it very well, even though I was only about two, because the whole thing was strange and scary to me. Later, my mum said it was to determine whether we were identical or fraternal twins (we're fraternal), so I know her permission was involved. Now I know there wasn't the access to the science that determines this type of thing today, but in that period would they try and establish twin DNA by measuring brain patterns? I very recently talked to my sister about it and, although she remembered it, she gave a different reason for it happening.

The reason I'm putting it out there is to see if anyone has had the same experience, or knows anything about it, and, if so, what reasons were given for it? Were we experimented on, and was my mum told the truth or lied to? I can't ask my mum any more about it, as she died in 2019.

OP posts:
Seasidemumma77 · 12/02/2021 00:00

The human mind is a wonderful thing. There seems no rhyme nor reason as to what memories we retain. I'm 43yrs old, I recently asked my mum to verify a vivid childhood memory I had, and it transpired I was approximately 18months old. It was a traumatic experience but a happy memory. I can recall in minute detail the major traumatic accidents I had at 2.5yrs old, but hadn't realised I had vivid memories prior to this. However, my brothers have no early childhood memories, to me it shows however different every human being is.

saraclara · 12/02/2021 00:21

Some people are really minimising the OP's experience here. I was about 6/7 and they glued loads of wires to my head and strapped my head up. I couldn't move or swallow, I couldn't help dribbling.

That sounds awful. But it wasn't remotely my two year olds experience 30 years ago. The fixtures were glued on, but she sat on my knee the whole time and we looked at books and their played children's songs on a CD while they did it. After that, yes she was occasionally asked to be still briefly (still on my knee) and they made various sounds or changed minor things to see what it did to the trace. But she was fine throughout, and certainly was never restrained in any way.

So please don't let your experience make you refuse to let your child have an EEG if they need one.

HoppingPavlova · 12/02/2021 11:59

Well, hopefully they would understand that a non-academic member of the public was involved in a research trial and treat her with respect.

Well, no. What will happen is the second this is uttered or written there won’t be helpfulness and respect but it will be shunted to an institutions lawyer and what they are wanting to achieve (?? not sure actually), will be made extremely difficult. That’s the reality. It’s not disrespectful to inform the OP as such. The OP will be best placed to achieve information by not using certain terms and going about things in certain ways as opposed to others.

itsnotmeitsu · 12/02/2021 22:52

@HoppingPavlova - What?!! Don't understand why you're mentioning an 'institutions lawyer', or even what that is. I had the memory of something that I went through when I was really young, as a twin. Those who want to know what my sister said her experience was; sorry I cant remember, because I only remember the conversation in relation to our differing perspectives, not what those were. We disagree about many shared experiences/memories, despite being twins, so it's no surprise we disagreed on that. What we have in common is, we both hated the experience.

I was musing on the experience and decided to post it on here, in the hope that others would know what I was talking about. For those who don't believe I could remember something happening to me when I was around two, and being scared by it; whether I knew the reason or not (which obviously I didn't at the time): I remember which paths I used to walk along in those days; which shops we used to visit; when I lost my mum in a shop - and we left that city in 1965. Dismissing my experience of what happened to me, with my sister alongside me, in this situation, because of semantics, doesn't change how I felt/feel about it.

OP posts:
Starseed2021 · 13/02/2021 01:26

They still use people for research......on the sly.
They use 'consciousness', 'psychedelics' and 'personality research' amongst some that ive come across and had done to me - which i didn't know about until a year ago

They use sound frequencies nowadays so when you notice and tell anybody the immediate response is "you're crazy/on drugs"......they can hack your brain and thinking process along with your subconscious - even piping false 'dreams' into your head.
Then when you tell people the response you get is......

alexdgr8 · 13/02/2021 04:11

itsnotmeitsu Fri 12-Feb-21 22:52:56
@HoppingPavlova - What?!! Don't understand why you're mentioning an 'institutions lawyer', or even what that is.

OP, Hopping is trying to advise you that if you do as some on here have suggested, ie ask the institute where this happened about it, you will not get a good response if you mention being experimented on, because it will be seen as an accusation.
so, instead of any helpful discussion with researchers, they will immediately clam up, and refer any enquiries to their legal dept.
they would have to do this. it is normal procedure in any organisation.
eg in my job if someone asked me when i could inspect their premises and advise on compliance, i would engage with them.
but if they said something like, i don't suppose you will get round to me as i don't have desirable products to woo you with, that could be seen as an accusation of a public servant having accepted bribes.
in that case i would not engage with the enquirer, i would refer the matter to senior management who would refer it to legal dept.

QueenoftheAir · 13/02/2021 08:58

They still use people for research......on the sly

Who s "they" @Starseed2021 ?

If it's peer-reviewed, or university research or lab-based, or hospital-based, research, then ANY work involving live subjects goes through really rigorous Ethical approval -often both university/research-lab AND NHS Ethics Committees. With multiple readers, reviewers, peers & senior people - as well as lawyers - checking.

Conspiracy theories like yours are not in touch with reality.

TroysMammy · 13/02/2021 09:02

I know a lady in her late 70's who is a twin and she and her sister still take part in twin studies.

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