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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Macular Hole

32 replies

gruffalo28 · 20/01/2021 14:44

No AIBU just posting for traffic.Anyone had one/has one.
Diagnosed yesterday by optician who doesn't know much about it. My sight is very blurry at the moment.I'm only 44, can't imagine having limited sight that glasses won't help/being unable to drive. Seeing specialist tomorrow as it needs to be dealt with urgently just wondered if anyone else has beden here? Thanks

OP posts:
HalfShrunkMoreToGo · 02/02/2021 21:34

I had this 3 years ago when I was 34, mins was as a result of an optic doc colaboma which caused fluid to build and recede behind my macular eventually causing a macular detachment.

Vitrectomy, laser and stitches to affix the macular/retina, lens replacement and gas bubble.

I had to do 3 days face down posturing and had a total of 3 weeks off work. The gas bubble took about 6 weeks to fully disperse but had gone down a lot within 3 weeks.

My vision has been permanently affected, visual acuity in that eye is 6/48 which would classify as severely visually impaired if the other eye didn't make up for it.

I can still drive and do everything I ever did before.

Went for my yearly glasses check up a couple of months ago and I'm developing posterior capsule opasification so we're watching that and I'll have it lasered when the times right. It's a relatively common thing after lens replacement.

gruffalo28 · 02/02/2021 22:22

This thread is great it makes me feel much better every time I look. I don't need perfect vision, I just want to be able to drive, look after my kids, clean my house (sad) but most of all read. I love reading I spend endless hours reading every day (lawyer) and then for pleasure. I would be very sad if I had to give that up. Atm the bad eye is annoying me a lot as its interfering with sight from the good eye. I have a black eye patch but I still seem to get blurriness even when its behind that (not if I physically close it). Everyone I know that has had this seems very upbeat ( outside of this thread as well).

OP posts:
gruffalo28 · 05/02/2021 19:46

How are you doing KittyKatkit? Have been thinking ofyou and hoping all posturing going well.

Thank you short-sighted for your posts on this.I didn't see the latest one before (bad eyesight). It was really helpful as no one had explained to me the length of this procedure before. Have joined a facebook groupfor support and that seems to be general consensus, it takes months to see if.how vision has improved. My gas bubble is now tiny so can see the majority of my field of vision but it is all quite blurry (although think it may have improved from when I posted above). I do have quite a blur in letters when trying to read from that eye above the gas bubble and everything is generally blurred. Not sure if worse than before the op, think maybe but then I still have gas in my eye.

OP posts:
kittykatkit · 06/02/2021 00:00

I'm not bad thanks. Nice to hear from you! Day 9 of posturing over! My gas bubble is about 1/3 way down so not enough to tell what my vision is like above it. I have a slow acting gas (c3f8) whereas sounds like you had a faster acting one which goes in about 2 weeks. What is the Facebook group - might try and join to! I slept for 2 hours this afternoon so still a bit tired - though am on a medication to reduce pressure in my eye which apparently makes you tired. How are you feeling in yourself?

gruffalo28 · 06/02/2021 23:02

Hi there, its called Mavular Hole and Vitrectomy Community and its very helpful, full of kind, supportive people with lots of experience. Fine in myself thanks - don;t feel confident to drive but think I will try after next doc app if he says its ok.
Yes I have a faster acting gas. Not sure if it has worked as have a very clear disruption to vision which makes me unable to read the letter chart at this stage but its still early days, everything changes in first few months and I am still taking steroid drops and have a very small gas bubble (doesn't bother me at all).

Hope you are feeling well again and not too tired. Can't remember if you said you were working (I wasn't anyway and to be honest lockdown is ablessing at the moment as no need to drive). Take care

OP posts:
kittykatkit · 07/02/2021 09:33

Thank you will look it up. I do mainly non exec and advisory work and am not too busy at the moment. So have put most things on hold. I can't wait to stop posturing as my neck is quite sore and I'm just bored with looking down! I have quite high pressure in the eye so am on some drugs that make me feel a bit under par so all in all I still feel like I'm convalescing. Hopefully by end of week when drug course is finished I'll feel more normal. Gas still over half so cant really tell what's going on in that eye! Take care. K

OneRubyFinch · 24/06/2025 20:25

Hi,
Had a macular Hole last year. I had a operation on my right eye last April. I didn't like the posturing. Any how, it has not cleared up completely, and now I have an appointment at The hospital this Thursday about my left eye . Let you know how j get on. By the way I am coming up 78.

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