To think I might have a number of things wrong with me that I’ve never had diagnosed

[Amiill94]

I’ve been watching TikTok and have seen videos with people talking about either ehler danlos,
Chronic fatigue, adhd or various other things and they say things which ring very true for me. How do you know if yiu don’t pursue a disgnosis

You can't know for sure unless it has been professionally diagnosed. There are a lot of people in the world who use Dr Google, put two and two together and assume they have that condition.

I was diagnosed with chronic fatigue syndrome, but only after my GP conducted dozens of different blood tests to rule out other things.

You don’t know. If you think you have one of these conditions you should see your GP.

If you think you have one of these conditions you should see your GP.

If only it were so simple.

'Take some co codomol, lose some weight; come back if it doesn't get better'

goes back

'Here, have some amytriptiline, I think it's probably stress/anxiety'

goes back

'Well we could try some talking therapy'

Fuck me. Literally have Arthritis.

@yankeedoodledandee I shouldn't laugh but...
mine was constant infections. Tonsillitis, chest infection, sobbing at the doctor why am I always ill, nearly losing my job from sickness, blood test after blood test. For 8 years
Went back with night sweats, saw a locum GP, had more bloods done. 7pm or so I get a call from said GP asking where I am.
Me off out for a meal, why
GP I need you to get to the hospital, I have your bloods and I've viewed every other blood test from the last 8 years and they're all similar
Turns out if you don't have any neutrophils, you can't fight infection!

I went to my gp about this exact thing.
I had been diagnosed with hyper mobility in most of my joints and another dr told me that she was sure I had M.E.
The dr said that he could refer me to a rheumatologist but he didn’t think that they would do much apart from give me a formal diagnosis.
I now go to a chiropractor and that seems to help with some of my symptoms.

I know this feeling with endometriosis

7 years now telling my GP it’s not normal to take 4 different very strong painkillers to cope during my period. It’s not normal to be chronically anaemic due to the level of blood loss and require iron supplementation. GP says but you managed to get pregnant so it’s not endometriosis, just heavy periods. For 7 years! 🤦🏽‍♀️🤦🏽‍♀️🤦🏽‍♀️🤦🏽‍♀️🤦🏽‍♀️

I have pretty severe hypermobilty syndrome and have had multiple blood tests and dexterity/mobility tests to prove it as it can be caused by other things and can lead to multiple other ailments which i habe had including an aortic aneurysm. So if you think you have it talk to the gp. Mine is undeniable though my joints are very deformed and bend totally backwards on their own

Do the conditions you think you have impact your life to a huge degree?
e.g. CFS, (my DD has it) when it's bad, how many days a week can you not get out of bed, or not leave the house or not have the energy to get dressed or do anything?

If so, ask your GP to refer for a diagnosis
CFS and the different types of EDS are diagnosed by a Rheumatologist in my area.
IfTheSockFits' GP diagnosed her CFS.

If you think you are neurodiverse, then look online for ticklists of symptoms of different conditions and descriptions that you feel apply to you.
If you score highly, take that to your GP and ask for a referral to the relevant specialist. The waiting lists for adult dx pre-Corona was on average 18 months to 2 years, it will be much longer now.

Do you have your early developmental history as a child, or can you ask a parent or relative for details as some assessors find that information very helpful when trying to establish a lifelong history of certain traits.