To say I don't want to see this neurologist anymore

[spidermomma]

Ok so long story short this all happened in the last 4 weeks (been diagnosed)

Ds has a terminal illness this doctor suspected at the beginning of 2020, he ran tests specifically for this and we did them and he had the results back 6 weeks later saying the test wasn't carried out as the samples failed etc
He admitted he had a strong feeling about the diagnosis we just got - from a different hospital via my other child with the terminal illness also) but he couldn't do much as I wasn't due a review until 2021 - year review and he had no capacity to see me. Not even call me back or email me back after I tried for months and months on a weekly basis and we have proof of this. He even ignored other consultants and neurologists trying to contact him on my behalf as a mother going out of her mind.
He rang last week after I had my diagnosis and just totally defended himself as I told my nurse I was writing a formal complaint about him (she must of said this to him or someone as it's clearly got back to him) because if he strongly suspected this diagnosis of my son we could of been into treatment 8 months ago and saved ALOT of his mobility and he knows this. He just kept saying he did all he could and he was sorry and their was nothing else he could of done better. But like I said if my dd didn't fall ill and get diagnosed at a different hospital we stil wouldn't have answers from him or know of this diagnosis of my ds

I won't lie I got really pissed off with hearing him on the phone defend himself for 30mins straight and then he tried to end the call as our yearly checkup. I told him to pretty much stick his concerns were the sun don't shine he should of done this 6 weeks after our first appointment when he had the results in his hand and these strong concerns but yet has ignored me ever since. Even my nurse has said he's ignored me because I was trying to reduce a specific medication for a few months and couldn't without his say so, eventually they got fed up of waiting and we just did it.

Anyway his secretary just rang and asked if I would have a face to face meeting with him next week and I said no I don't wish to deal with him no more he's caused me enough damage and hurt and seeing him is wasting valuable time and isn't going to help me as I'm in no right mind to see a man who left my son terminally ill for 8 months that he strongly suspected he had- without treatment that could have slowed it down by 90%! So in that 8 months he can now barely walk when I told him he was struggling at the first appointment

For some reason I just think he's now contacting me and trying to see me so urgently to cover his own ass as he's been so negligent towards me and my children when Iv tried so hard to contact him and get answers as I knew something wasn't right

AIBU to tell him where to go and not see him again?

Sorry for the essay !

Oh and sorry I meant to say forget the GMC for now. You have up to five years to file a complaint. I was advised to wait until legal proceedings were completed. Even with very damning and court ratified evidence of his appalling practices the doctor was investigated but no further action taken.

@MatildaTheCat thank you ever so much for that advice I will try to figure out how to om you this afternoon once I have 5mins to actually write it to lol
It stinks but my nurse did point out I should make the complaint as I would hate another parent to face this what we've faced
I do agree me and oh need speak and not bicker. As hard as it is he needs listen an he just goes to appointments it's me who does everything like medication. The fighting. Letters. He just drives me their ! We need be together really
Xx

Not sure if anyone is still on this but my solicitor is sending a letter out to the relevant people as I got a letter Friday with aload of bulls£(&/ in and it's really hurt me the things he's said, just tried to paint himself as an oil painting and told a lot of lies and missed a lot out. I'm disgusted it's so so wrong !
Il keep you posted but I won't let this lie!

So sorry this has happened to you. I am suffering permanent disability due to medical negligence but I let the 3 years go by so I fear I’m too late. The impotent rage is immense, so if you can leave the door open to proceed with a complaint later I’d recommend it.

I’m so glad you posted again, and that you have a solicitor, and a letter to work with.

I have a couple of different situations that I let go b3ecause, by default, this stuff happens when you’re at a really low ebb, and I had to just keep moving forward, but I’m finding it really really hard to get over it.

I’ve just discovered that I’ve been misdiagnosed, 4 weeks ago, and it’s entirely due to one arrogant doctor who was too busy tending to a slightly famous footballer. I’ve now got scans/letters etc to prove she is the missing link, and I’m afraid she is going to get the full force of previous chances missed.

It will stop me from ever being able to work at my job. This is important. Not as important as yours, but just saying, keep going.