To ask has anyone any experience of livedo reticularis

[Tootsey11]

I know this is a health issue, but hoped I might get some more answers than the health boards.

Anyone had livedo reticularis that has now become permanent? If so what was the reason.

I've had this on my legs as a child/teenager, but t would always disappear on warming the area. I now have it all the time and it looks terrible.

Anyone?

It can be a sign of autoimmune disease. I would see your GP.

Hi yes I have always had it since a child always been extremely self-conscious of it. It's supposed to be quite "normal" in most cases (but can be signs of other health issues) but it looks extremely ugly and I feel your pain-it's really getting me down and can't wait for the Summer! At this point, although it's a reaction to the cold for me-I have to be really really warm for it to go away, so a really hot day, in the shower or warm in bed. The rest of the time I will have it. My feet are also incredibly purple at the moment, quite worryingly so, and I developed Reynaud's a couple yrs ago too.

I was told by a plastic surgeon who noticed it on my arms to get tested for antiphospholipid syndrome (APS). I went docs but she said it looked normal to her-I know it's supposed to be quite common but I have never seen anyone else in real life with skin anything like mine! Mottled purple ALL over arms and legs ugh.
So basically one doc was worried the other said it was normal.

Anyway nothing came of going to the docs she did some tests but nothing really showed up so I let it go and assumed I probably had APS. Right now I am showing signs of hypothyroidism and apparently there may be a connection so it might be down to that so I will get tested for it when I can.

Would love to talk with someone else who has this condition, I am so down about my ugly skin and I see everyone else with normal flawless skin and I just feel so bad about it. I'm not sure why yours has now become permanent but like I say mine is there most of the time unless extremely hot. But yeh, APS or hypothyroidism are a couple things to perhaps check out. Hope this helps.