Should I ask for DS to be tested for Kawasaki? Any medics?

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Posting in AIBU for traffic.

My sister and DS dad think I'm overreacting and he can't have Kawasaki. I am still worried though and considering asking fir him to be seen.

He is 11.

He tested positive for COVID on Wednesday this week.

He started 2.5 weeks with a rash all over trunk and groin and shoulders. Not Ill or itchy.

10 days into the rash he started with a high temperature which lasted for 5/6 days (been ok temp since yesterday). Also red eyes, headaches, slight nausea, tiredness.

Headaches are gone, fever is gone, rash still there but fading, still tired.

He's developed a red and cracked lower lip.

I keep reading about Kawasaki and how it's better if it's caught early.

Should I get him checked and if so how do I ask and what do I ask for?? (I don't want to seem pushy or like I'm not trusting the Drs)

Ring either 111 or your GP's surgery, explain all the symptoms and ask them what they think. That's what the NHS is for. Maybe he has a skin condition unconnected with Covid. Maybe an allergy. Maybe a bad reaction to any medication he's taken. But ask a medic, not Mumsnet.

Yes, get him checked by a medic as soon as possible, I would ring 111 and describe the symptoms right now.

I never put off ringing 111 when I am genuinely concerned about one of my kids.

I have in the past had to get rashes checked and no one has ever suggested I was oevr reacting.

There is a post covid kawasaki-like reaction so I would contact your gp or 111 just in case

www.imperial.ac.uk/news/198077/kawasaki-like-syndrome-linked-covid-19-children-condition/

This might be helpful - separating severe symptoms from those that still warrant a checkup;

www.mayoclinic.org/diseases-conditions/mis-c-in-kids-covid-19/symptoms-causes/syc-20502550

Symptoms

Fever that lasts 24 hours or longer
Vomiting
Diarrhea
Pain in the stomach
Skin rash
Feeling unusually tired
Fast heartbeat
Rapid breathing
Red eyes
Redness or swelling of the lips and tongue
Redness or swelling of the hands or feet
Headache, dizziness or lightheadedness
Enlarged lymph nodes

Emergency warning signs of MIS-C

Severe stomach pain
Difficulty breathing
Bluish lips or face
New confusion
Inability to wake up or stay awake
When to see a doctor

If your child has any of the emergency warning signs listed above — or is severely sick with other signs and symptoms — get care immediately. Take your child to the nearest emergency department or call 911 or your local emergency number.

If your child isn't severely ill but shows other signs or symptoms of MIS-C, contact your child's doctor right away for advice. Doctors may want to do tests — such as blood tests, or imaging tests of the chest, heart or abdomen — to check for areas of inflammation and other signs of MIS-C.

Haven’t you already spoken to your GP? If you've read about it, you’ll know that its almost always found in children under 5, so its most unlikely to be that. Plus, as his symptoms started almost 3 weeks ago, and he’s getting better, what treatment do you think they’d give him? Also, as he's tested positive for COVID, that could be the cause of his symptoms.

There's another thread with an OP with an 11 year-old DS with similar symptoms, OP. I've linked it there might be helpful stuff on it. I think if you're concerned about a child's health that's what the NHS is there for, you're not overreaacting at all.
www.mumsnet.com/Talk/coronavirus/4090571-My-son-has-tested-positive-Unusual-presentation-Hand-hold-please

www.rcpch.ac.uk/resources/pims-covid-19-linked-syndrome-affecting-children-information-families

The post covid kawasaki like syndrome affects older children too

@Soontobe60

Haven’t you already spoken to your GP? If you've read about it, you’ll know that its almost always found in children under 5, so its most unlikely to be that. Plus, as his symptoms started almost 3 weeks ago, and he’s getting better, what treatment do you think they’d give him? Also, as he's tested positive for COVID, that could be the cause of his symptoms.

No, it's Kawasaki that affects mainly under-5s. MIS-C (which is covid-related) is different:

www.post-gazette.com/news/health/2020/05/12/Pediatric-multi-system-inflammatory-syndrom-Inflammation-children-COVID-19-impact/stories/202005110081

Dr. Dermody said it generally affects children from 1 to 2 years of age up to 15 and 16, “so it’s not a particular age range within pediatrics,” while Kawasaki disease predominantly affects toddlers.

This MIS-C is a different name for PIMS-TS

Its a kawasaki like syndrome but affects older children too

No one can say if it’s one illness or the other on this thread.

However, this is a child with Covid that is presenting with unusual symptoms.
I’d contact the GP ASAP.

Contact emergency GP

Contact the Gp or 111 for your peace of mind. Much better to be told you're a fusspot now than to wait and then find out it was serious after all.

I've looked after a number of children with pims-ts throughout this pandemic (nurse). The rash you described and high temperature can be signs that your son may have it, however obviously the temperature is accosiated with the positive covid diagnosis also.
I would watch out for him becoming more tired/drowsy. Also keep an eye on his hands and feet. Cold hands and feet could be a sign that if he has it, itis starting to affect his cardiovascular symptoms. If you are worried seek medical advice. I know the isolation rules make you feel like you cannot leave the house at all, but you can to access medical help if required. Hope he feels better soon

Cardiovascular system not symptoms, sorry

@Mseddy He has the rash, red eyes, the temperature is almost gone now (it occasionally goes up again) but he did have a high temp for 5/6 days, he also has a chapped and red bottom lip.

He's more tired than normal but not excessively drowsy and his hands and feet are ok.

I'm going to call 111.

Does this sound like it? Anything else to look out for?

He might just be a bit dehydrated after the illness. Seek assessment via 111 or GP as you feel necessary but whilst doing so make sure he's having plenty of fluids. Do you feel like he's getting better today, or is today the most unwell so far?

Standard Kawasaki is typically considered in children under 5who have a temperature for over 5 days. There's more info about it here:
www.nhs.uk/conditions/kawasaki-disease/

It may not be standard kawasaki though, as there is a kawasaki-like syndrome that is related to covid and affects older children too

Always insist on a blood test for a fever that lasts more than 5 days. ALWAYS. Go to the hospital now. (I was told this by the Dr who diagnosed my dd with Kawasaki's earlier this year - which is pretty ironic given that I saw a G.P, and out of hours Dr and took her to different A&E's before anyone took us seriously enough to do a blood test). It's also on the NHS website that a blood test should be done if fever > 5 days. Those symptoms, particularly the red eyes are a huge red flag.

There is no 'test' as such for kawasaki's. It's based on symptoms and ruling out other causes.

@Chwaraeteg I called 111 and they are sending a vehicle to take us to out of hours GP for 8.30pm appointment. I'm concerned that they may not take it seriously because his temperature was only consistently high on Mon and Tues. It's been on and off since then, often it's normal again, then it will go high. I'm rubbish at being assertive. How do I insist and what test do I ask for please?? I really hope your DD is ok now.

We just kept going to different Dr's and in the end, sat in A&E until they agreed to a blood test (which was 7 hours as we were put at the back of the queue). It was mainly the crp (c-reactive protein) test they were interested in, which is a standard test they do in hospitals - it measures inflamation.

Good luck, I hope he's ok.

Are his hands peeling, and does he have a 'strawberry tongue' the temperatures in Kawasaki disease don't go away until
The child is given immunoglobulins.

@Chwaraeteg
@Toddlerteaplease

We are not long back from the hospital. Called 111, who sent us to the out of hours GP service, who wasn't sure re Kawasaki and sent us to the big Children's hospital here's A&E.

He was seen by a GP and 2 doctors at A&E. They examined him and his temp and his symptoms and said they don't meet all the criteria for Kawasaki. I think mainly because his temperature was only persistently high Mon - Thu. Since Fri it has only been high once a day or so. His lips and rash have calmed down today as well.

They did not do a blood test but they seem sure it's not Kawasaki but just an unusual presentation of COVID. I hope that's right.

He's had

Quite widespread rash on him - 2.5 weeks ago this started. 10 days of rash before any other symptoms.

Fever - Mon and Tues really high (39 - 40.6. 38.5 WITH Calpol) Since then reducing and only spiking once a day without Calpol.

Eyes - red and heavy Mon and Tues. Since slightly red and not as heavy.

Tiredness - really tired Mon and Tues. Since then a bit tired and sleeps longer but still chatting, gaming etc.

Nausea - Mon and Tues. A little today.

Headaches and sore eyes - Mon Tues Wed.

Red chapped lips - Fri and Sat. Slightly better today.

I'm so grateful for the NHS. I don't have much money, can't drive and we are obviously isolating due to positive test. A good few miles from hospital not walkable, so we were taken in transport with screens and masks from home to GP centre to hospital to home. In the GP centre and hospital we were taken straight into a room cause DS is COVID positive, and so far he's been seen by 4 medical professionals in full PPE who weren't fazed by his positive test and made him feel at ease.

I'm just hoping this is the end of it and no other symptoms occur for him and dd doesn't get it.

Thanks for the update, OP. Hope he makes a swift recovery and that you all don't get it.