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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be seriously irritated

32 replies

Ironytheoppositeofwrinkly · 23/11/2020 10:26

So I have been seething and stewing over this for a week or two, and have received directly opposing views from the two people I have confided in about whether I was overreacting in this situation.
I have had, to date, 5 miscarriages and a stillbirth over the span of the last 4 years. Previously, I was under a fetal medicine consultant, and he did all relevant tests, and diagnosed me with APS, a clotting disorder. After my last miscarriage, during which I didn't receive the blood thinners I needed ( a whole other thread in itself) I was finally referred to my local RMC and am now under a consultant gynaecologist/obstetrician. He has decided, for reasons only known to himself, that he doesn't want to accept my current diagnosis, and wants to start all testing again from scratch. When I asked him 2 weeks ago what medication or care would be offered if I fell pregnant in the meantime, I was told that nothing would be offered, bar an early reassurance scan. I immediately flew off the handle, and told him that if I lost another baby due to his reluctance to do his bloody job, then I would pursue a complaint to the highest possible level, as I feel this attitude to my babies dying time and time again is absolutely unacceptable. Was I being unreasonable, and does anyone have any advice to offer? Sorry it's so long.

OP posts:
Shamoo · 23/11/2020 12:14

I would be furious OP. I know others have recommended others, but I would definitely go to a private consultant for a one off consultation and get the meds from them in case you get pregnant. They won’t cause any harm if it’s not the issue, but may solve the issue if it is. This is where I got to. Gave up completely on the NHS in the end. They just aren’t set up or willing to support issues like this in my county, so I gave up fighting and tried to deal privately: even though it shouldn’t have to be like that. wishing you lots of luck.

ktsa4 · 23/11/2020 17:29

YANBU

Ironytheoppositeofwrinkly · 23/11/2020 17:35

Thanks for the responses, I've spoken to my Fetal medicine consultant and we've come up with a solution between us.

OP posts:
Tinyhumansurvivalist · 23/11/2020 17:42

@Ironytheoppositeofwrinkly firstly I am so sorry for your losses, I haven't been in you situation but I can empathise with your heartache.

I'm not a medical professional at all, but I have undergone numerous tests for fertility and had similar arguments when my gynaecologist refused to do further tests because I wasn't trying to get pregnant. The fact I was in crippling pain, couldn't stand, walk or breath was apparently not a good enough reason to spend money.

Could it be that the tests you had run were not as overwhelmingly pointing at the blood disorder and only borderline so he wants to rerun to be thorough? You can ask to be moved to a different specialist (which I strongly recommend) if you are not happy with your current one.

Good luck.

Crazycatlady83 · 23/11/2020 17:46

No advice OP - just wanted to wish you luck if you do fall pregnant. It’s not fair that you haven’t been provided with an explanation as to why they want to redo everything (is the consultant saying the previous tests are wrong, unreliable?) You should have been provided with a explanation as to why you are going through these medical procedures again so you can fully consent to it!

2bazookas · 23/11/2020 18:08

@Ironytheoppositeofwrinkly

My source of irritation, was more that he had all the results in front of him from my diagnosis which was less than a year old.
Yes, and looking at ALL THE RESULTS he doubted the diagnosis. So now he's going to start again from scratch and see if something has been missed. He's doing the very best thing for you in his professional opinion.

You should be damn grateful he is doing his job and ashamed of yourself for being to incredibly rude to him.

Sophoa · 23/11/2020 18:43

Go and find a consultant who you are happy with. Do not accept seeing someone random you are allocated to. Pay if you are able to

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