Possible Cystic fibrosis-panicking

[BarbaraBeast]

I know this isn’t the right place to post but hoping it might give more of a chance of getting responses being here.

I was contacted by one of the community midwives yesterday to tell me an appointment needed to be made for my little boy (17 days old) to have a repeated heel prick test to investigate further for cystic fibrosis. I know this isn’t a diagnosis and likely just a precaution but I’m just beside myself with worry.

Our appointment isn’t until Monday so it feels like a long wait-I’m just trying to enjoy him (he’s my last baby) without this worry looming over us.
Has anyone had experience of repeated heel prick tests and the outcome been positive?

I have no experience of this sorry. Other than to say that I have taught children with CF in the past and the diagnosis is not as 'scary' as it was. While obviously they have a lot to deal with, the advances in treatment over recent years have been massive and it has not impacted on their lives or day-to-day health significantly. They have been happy, robust children who you would never pick out as different to their peers in any way.

I hope it goes well for you. Try not to panic.

I haven’t experienced this, I’m afraid, but I didn’t want to skip on past this post.
I’m sure it’s precautionary, and I’m sorry you have to wait a while for it. Big socially distanced hugs x

Not a repeat heel prick test but my 12 year old had the sweat test for CF, it was negative. Try not to worry, easier said than done I know.

In most cases it will come back normal but I understand your worry.

Worrying about it however won't change anything. It won't make it better, it won't change the outcome, it's fucking pointless.

It's hard, but try to choose not to worry, try to be in the present instead.