To think these not a lot of treatment for eupd

[Sevendaysaweek]

Ds1 20 has been diagnosed with it. They have basically said it’s chronic condition and he won’t ever fully be better. All the things I’ve read online seem to be negative about this condition. Aibu to ask for views and positive stories.

@RattleOfBars
This may be of interest to you. It’s written by psychologist and goes over the differences between EUPD(also called BPD) and cPTSD.
www.psychologytoday.com/us/blog/understanding-ptsd/202006/is-it-bpd-or-cptsd

Ooops missed the positive story bit.

When I've been in my "peak" health I've held down jobs, including managerial for several years. I've got various degrees despite dropping out of school. Although I don't have a teaching degree, I'm qualified to teach so many different things from hydrotherapy to child protection to IT security lol.
Despite some very dark thoughts, I'm still here.
I found out I'm not actually cut out to work for people, and when I can, I successfully work for myself.

I've somehow managed to raise 4 wonderful children mainly alone.

If EUPD and c-PTSD were the same wouldn't the therapy be the same?

It's great saying it is the son's responsibility to engage with treatment when no treatment is being offered!

ITA. DD2 has been diagnosed with EUPD/Dependent personality disorder - and the EUPD bit is certainly due to witnessing trauma; as the whole family have. DD1 has a medical condition, well known for causing major episodes of depression, grief, anxiety, post traumatic stress and post traumatic disorder in the family.

She was under her local mental health trust. HCPs told me she needed psychotherapy - but none was available in the trust, and they advised me to complain. The attitude in her trust was that EUPD was difficult to treat, took a long time, so was not cost effective and the priority was treating drug addicts. The only treatments they offered her were countless assessments (which didn't lead anywhere), then anti-depressants, mood stabilisers and a group on "Tips to avoid depression" - none of which was much use, when the problem was having witnessed trauma countless times! Yet, if she refused the treatments, she was accused of not engaging with services.

Why should people with mental health problems be bullied into taking medications that don't work (imo, the suicidal ideation started every time, she was put on anti-depressants), when people who go to the GPs with pneumonia, would not be criticised for refusing to take HRT for it?

She moved back home, where she was eventually offered DBT. They told her had she sat at home and quietly taken overdoses, she wouldn't have been offered treatment, because it wouldn't have bothered anybody except her and the family! She was offered treatment because most of her suicidal behaviour happened around railway lines and stations - which took up police time, emergency stops of trains, trips in ambulances to S 136 suites, crisis team involvement; all of which cost the state money. A year of individual and group DBT improved her considerably, until she no longer met the diagnosis.

I can't believe some of the things people are allowed to say about EUPD. Nobody would tolerate it if it were about other illnesses. There would be shrieks of "thats disablist!" Us lot are fair game. Im afraid your son will have a rough road ahead with this diagnosis.

I have it!
I'm a positive story. Finally haha.

I hold down a full time job, that plenty of people would love to do. Have done it very successfully for nearly 4 years.

I'm married with two amazing children, a circle of friends - I keep it small, I'm crap at maintaining freindships. I'm finally savvy with money.

I needed to learn my triggers, engage with therapy and talk things through. It can be kept in control, and after years of doing so, it becomes second nature. No one that meets me now would have any idea. And most people that do know, forget.

Eupd /bpd has a lot of negative stereotypes attached to the diagnosis. People with bpd are nasty, manipulative, sneaky and so on. This isn't actually the truth. A small number perhaps but people believe it all and view people who have a diagnosis of bpd negatively.

I have this diagnosis. My 2 prior ltrs were held together by me. I was the breadwinner, I cooked, cleaned etc whilst they (obvs in different relationships) sat and did as little as possible. The first committed so many abusive acts upon me and controlled me so i did not even know what my opinions were on things anything.
The second is an alcoholics who hit me, emotionally and verbally abused me. There was no affection or intimacy.

I am with someone now who treats me so well. At first I struggled because I didn't know how to be in a normal relationship but it's fine now. People say never get into a relationship with a person who has a diagnosis of bpd but why not. Most people I have ever known with bpd have been good partners.

Dbt is not always offered straight away. It's not as simple as going to cmht and saying I want dbt and they say of course here is a course of it. Everything takes a long time to get. After years of battling I got a psychiatrist in 2015 and I have just gotten a cpn. Honestly it's difficult but you just get on. I went to university and did a part time job. I have up until recent times always worked.

Not dissimilar here, multiple abusive relationships under my belt - me the victim.

Unfortunately BPD/EUPD is fair game in disablist language I'm afraid.

She was offered treatment because most of her suicidal behaviour happened around railway lines and stations - which took up police time, emergency stops of trains, trips in ambulances to S 136 suites, crisis team involvement; all of which cost the state money

Sadly this is often the case. People who get admitted or access to Tier 4 placements, DBT and psychotherapy are often the ones at higher ‘risk of death by misadventure’.
Many people with EUPD walk along rail tracks or tell station staff they will jump in front of a train, it’s often a cry for help not true suicidal intent.
And yes it costs the police, ambulance, inpatient units and crisis teams huge amounts of money (not to mention all the disrupted journeys and refund claims made by passengers to the rail networks).

But people who take ODs quietly at home also get admitted and treated, especially if they don’t tell anyone. If someone takes an OD then immediately tells family or calls an ambulance they’re likely to go to A&E then be discharged with community support, as hospital stays exceeding 3 days have been proven detrimental to a person with EUPD.

Interesting article highlighting the differences. I often see EUPD/cPTSD in medical notes and the doctors here seem to think the conditions are the same, maybe other hospitals are more advanced.

I’m glad your daughter’s made a good recovery.

Yes we only get access to treatment when we become a financial burden.

The disablist comments do come with the territory, although this says a lot about those people considering the link to childhood trauma and EUPD/BPD. You do need a tough skin regardless of if you also have all those negative traits.

Sectioning us they do avoid because it can do more harm than good. Locally we do have a type of halfway house for females with EUPD and Bi-polar. Your still "sectioned" but in a nicer way lol. However, for males there isn't this option as they haven't fought for it.

Outside of MH, SOME NHS Trusts and Departments, ime do need training when it comes to mh especially with EUPD and PTSD. After far too many witnessed snide comments and down right nasty attitudes towards me, unless it directly links with my care I no longer mention having anything related to these.

I think there is treatment if you go private but it’s expensive. My colleague had to go private because the NHS wait to be seen was 8 months. She wouldn’t have made it 8 days without intervention. It has wiped out her life savings at £250 a session, which has been going on for a couple of years so far.

It’s written by psychologist and goes over the differences between EUPD(also called BPD) and cPTSD.

That's a brilliant article. Any psychiatrist who doesn't understand the difference between the two conditions really does need to step back and do some more reading, I'm afraid. It's a common misunderstanding even among experts, from what my psychologist says.

My own personal tips for others with this diagnosis would be:

• Absolutely prioritise getting a longterm private therapist, who's willing and able to work with you and you get on with. I know it's not a possibility for everyone, but if at all possible, do it.
• Be as sparing, brief, unemotional and factual as you can with any dealings with the NHS and preferably keep them to stuff relating to your physical health. Not everyone will probably agree with this, but after a long time with a BPD diagnosis, it would be my personal recommendation, only based on my personal experience.
• Don't tell people who really don't need to know about your diagnosis. The current trend for openness on mental health does not include us so far - not really.
• It's such a wide umbrella diagnosis that there can be two people with it with hardly anything in common at all. So take any personal accounts and recommendations (like mine) with a huge pinch of salt. You need to learn to know yourself and what works for you, and you need to be your own rescuer, as sad as that is.

Misdiagnosis is really common in mental health. I wouldn't write anyone off.

EUPD is the current dumping ground for everything.

Yes we only get access to treatment when we become a financial burden

It’s not about becoming a financial burden. Nobody with MH needs is a financial burden.

But services are very underfunded and disruption to various services (due to public suicidal ideation or a cry for help) obviously gets faster results than someone struggling alone at home.

Access to treatment is sparse, underfunded and hard to access in many areas, so treatments like DBT and Tier 4 placements often only available to the most severe cases. If someone is risking their life at railway stations, other services have to get involved (police, railway staff, paramedics, inpatient team, 136 suite has to be de-commissioned etc and a bed found because other services put pressure on the NHS). And if the patient is new to MH services there’s always the concern they could be suffering from psychosis, delirium, mania, drug induced confusion etc.

EUPD is the current dumping ground for everything

Why do you think it’s a dumping ground?
EUPD has some very specific traits and behaviours. If you observe someone with EUPD on a psychiatric ward the difference between EUPD and other disorders is fairly clear.

Sometimes it’s tagged onto another diagnosis eg ‘bipolar affective disorder with EUPD traits’.

There are many personality disorders, EUPD is just one of them. It tends to be more common but so is Schizotypal PD, Dependent PD, Antisocial PD etc.

www.mind.org.uk/information-support/types-of-mental-health-problems/borderline-personality-disorder-bpd/misdiagnosis/

There are many studies that show EUPD is diagnosed more frequently in women and the autistic.