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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To complain to PALS

96 replies

WhatTheSock · 05/10/2020 01:26

This is a weird and long story and I really am not sure whether to make something of it or not.

Had a deep puncture wound with dirt stuck in it a couple of weeks ago. Went to get it cleaned out and patched up at a walk-in clinic. Was asked if tetanus boosters were up to date. They weren’t as I have terrible reactions. They sent me home saying if there was any sign of infection to come back. It healed up well after some initial swelling and pain but I thought nothing more of it...until yesterday morning when I woke up with my jaw in spasm! It only lasted a few seconds but enough to terrify me into thinking I had tetanus. I called 111 for advice and they told me to get to A&E ASAP.
Off I went. I was triaged and sent to a lady who introduced herself as Dr so and so, and then proceeded to tell me I had an “anxiety disorder”. I explained that I had a tetanus prone wound two weeks ago and that my jaw was in spasm when I woke up and she told me there was “no way” I had tetanus as it would have developed within 3 days and I wouldn’t be sitting there talking to her. I explained that I had read the NHS info on tetanus and it said 3 to 21 days for it to develop. She said “You seem to know a lot about tetanus” with a smirk. So then she starts phoning someone and asks if they need to see me, whilst chuckling to herself.. and then types “anxiety disorder” into the screen. I questioned this again and she claimed the computer wouldn’t accept “suspected tetanus” and she could ONLY put anxiety disorder. Next thing she does is examine the wound itself, and she started trying to pick off the scab! I asked her to stop it and she laughed and said “I’m just having a look at it!” and then she disappeared out the curtain and started discussing me with someone else whilst again laughing. She then phoned someone else to discuss me but this person asked her to send me to an emergency assessment unit. So I went there and was met eventually by a junior doctor who greeted me with “So I’m told you were here two weeks ago with a similar condition and you got us to phone the London School of Hygiene and Tropical Medicine?”

WTF?!!

I had never ever set foot in the place! I felt like I was in the Twilight Zone!
They tried to find me on their system but obviously didn’t, as I had never been there before. They asked me about 15 questions and wrote down my answers. Then I was passed to someone else who asked me the same 15 questions and then disappeared. Then a nurse came in and asked me another load of similar questions...and then did a heap of blood tests and an ECG! They then asked me to sit in a waiting room. I was there from 8am until 6pm (along with some poor souls who were groaning in agony with various ailments) and then eventually the second guy came back and said I could go, because I’d had no further spasms, but if I had any other signs of tetanus to come straight back to A&E. He gave me the discharge form and I put it in my bag. As I was leaving he caught up with me and handed me another dis barge form and asked for the first one back. He’d changed “Initial diagnosis: Spasm in jaw” to “Initial diagnosis: anxious twitch in jaw”!!

I left.

I have been trying to process it and understand what on Earth happened. I don’t know whether to make a complaint to PALS or not. How do I even explain it all? Surely a case of mistaken identity? But to be so rude and unprofessional, trying to pick off my scab as if I’d stuck a fake one on... Laughing at me, claiming I had an anxiety disorder....

AIBU to make a complaint? It sounds so far fetched yet it actually happened!!

OP posts:
WhatTheSock · 05/10/2020 01:45

I am sure I will be added to their list of A&E time wasters who turned up because of a twitching jaw! I would never have gone to A&E with a twitch in my jaw! My jaw was clamped shut, it had never happened before and I had a deep puncture wound on my foot two weeks prior, and was advised to get there ASAP by NHS 111.... and I don’t think I deserved to be mocked (case of mistaken identity or otherwise).

OP posts:
Feefifofummmm · 05/10/2020 02:26

Yes, make a complaint. This was totally unreasonable treatment.

lydia7986 · 05/10/2020 02:49

That is utterly bizarre.

Florencex · 05/10/2020 03:06

I find it very difficult to believe a doctor was laughing at you. I think you are imagining things and there is something in the “anxious” diagnosis that you should take seriously.

PALS are useless in my experience anyway.

Oblomov20 · 05/10/2020 03:22

WTF Florence? Angry
I have met people, including Doctors who laugh and are dismissive.

I totally believe what OP has said.

Unfortunately PALS are useless, but I'd still record my complaint. Just do that I knew it was logged.

ThumbWitchesAbroad · 05/10/2020 03:32

I don't find it remotely difficult to believe that a doctor was smirking and laughing at the OP.
There are some very unprofessional medics out there, but thankfully in a minority! And if they think you're putting it on, or have an anxiety issue, then they will patronise the fuck out of you.

Yes, take it to PALS because at the very least they can follow up on the unprofessional attitude.

My niece had a brain tumour at a very young age, but it took months to be diagnosed as they had my sibling down as a "neurotic parent". Hmm They just kept being fobbed off with "teething", "tonsilitis", "febrile convulsions" (despite no temp) etc. until the poor child could no longer walk and her brain fluid was trying to escape the pressure in water bubbles around her forehead. Luckily another hospital had more sense and it was dealt with - but that note of "neurotic parent" was gong to kill my niece because NO ONE WOULD FUCKING LISTEN after it was applied to her notes.

So yeah - get that "inital diagnosis" dealt with and removed or it will follow you around.

Okokokitsout · 05/10/2020 03:33

Complain direct to the hospital Trust and the ccg who commission them rather than pals.

Audreyseyebrows · 05/10/2020 04:29

@Florencex you don’t know that.

Frappuccinofan · 05/10/2020 04:39

Wow this is so shocking, complain to pals ASAP

I have actually attended a&e when unnecessary (thanks to 111 being overly cautious!). I was never told I was just being anxious - they listened to me and were completely respectful and still treated me as usual, even though my injury was minor. They carried out all relevant tests and scans, gave me advice and gave me dressings to take home etc. I was just triaged as a low priority and had to wait a while. The way they treated you in comparison is almost hard to believe

WhatTheSock · 05/10/2020 07:22

The thing is Florence, of course I was anxious under the situation, but it doesn’t mean I have an “anxiety disorder”. I was anxious because I woke up with my jaw clenched shut (never ever had this happened to me before), two weeks after a large rusty nail went through my foot, and having not had a tetanus jab. My jaw wasn’t clenched shut because I was anxious and I didn’t take myself to A&E because I was anxious... I went because when I phoned NHS 111 and said I just woke up with my jaw clenched shut, after having a tetanus prone wound, they said to get to straight to A&E! Who the hell wouldn’t then be anxious?! It doesn’t mean I arrived at A&E with an anxiety disorder. The only evidence of anxiety was my resting heart rate was 100 and my BP was slightly up. I wasn’t hysterical. I was very calm. I explained what had happened and my concerns and asked if I needed the immunoglobulin. They monitored me for 10 bloody hours. What a waste of NHS resources if they actually (at that point) really thought I was suffering from anxiety.

OP posts:
WhatTheSock · 05/10/2020 07:27

The lady who was rude and laughing at me was a triage nurse, as far as I could tell, though she introduced herself as “Dr” something. She said she’d seen many tetanus patients (having worried in Nigeria) and “you do not have tetanus, ha ha haaa. What makes you think you have haha tetanus?” I felt like an idiot for being there and apologised for time wasting and she said I wasn’t and that some people turn up for a cup of tea and a chat... but the continued to talk to me like an idiot and the try to pick off my scab!!! If I didn’t have the discharge letter I’d think I dreamt the whole thing. It was bloody surreal!

OP posts:
Londonnight · 05/10/2020 07:28

I would make a complaint to PALS. I have done in the past and they have always been helpful. Maybe it depends on which hospital you complain to with PALS, but I have never had a problem with them.

WhatTheSock · 05/10/2020 07:28
  • worked, not worried.
OP posts:
WhatTheSock · 05/10/2020 07:30

ThumbWitchesAbroad that is horrific!

OP posts:
TweeBree · 05/10/2020 07:34

Complain. I've also found PALS to be useless (had to chase endlessly for a serious complaint to even be acknowledged) but at least it's on record if there is a pattern.

Ridingthegravytrain · 05/10/2020 07:34

Absolutely complain. Some doctors are an absolute disgrace.
I had pins and needles and weakness down my left arm and my husband made me call 111. They told me to urgently call my gp which I did and she told me I had anxiety. And tried to prescribe me Valium. It was bizarre

GingerAndTheBiscuits · 05/10/2020 07:36

@Okokokitsout

Complain direct to the hospital Trust and the ccg who commission them rather than pals.
This. In my experience PALS is a means of mediating away formal complaints, so better off being clear from the outset you want it investigated formally.

Unfortunately as much of the exchange is based on what people said/gestures it will be very difficult to substantiate but there’s no harm getting it on record anyway.

AuntieDolly · 05/10/2020 07:36

Did you have further tetanus symptoms?

WhatTheSock · 05/10/2020 07:42

AuntieDolly not of my jaw clenching shut, no. I do have pain in my teeth and pressure across my cheeks, along with headache (which I also had all last week) so I guess it could be a sinus issue.

OP posts:
RichardMarxisinnocent · 05/10/2020 07:43

I was about to post to say of course she would have been able to record suspected tetanus as a diagnosis, but have just read that it was the triage nurse. In that case they (assuming the Trust are compliant with the emergency care data set) would only be recording your "chief complaint', not your actual diagnosis,and it would need to be selected from a list of options. I doubt something like suspected tetanus is on the list, but there would possibly be something more appropriate than anxiety disorder.

The person who eventually saw and discharged you would have recorded your actual diagnosis (or a diagnosis of nothing found). Is there anything other than initial diagnosis on your letter? I would have thought there would also be just "diagnosis" i.e. what they ultimately decided wax wrong with you, not what they thought at the start/at triage.

WhatTheSock · 05/10/2020 07:50

RichardMarxisinnocent

To complain to PALS
OP posts:
WhatTheSock · 05/10/2020 07:55

This was the their findings and advice.

To complain to PALS
OP posts:
WhatTheSock · 05/10/2020 07:59

If I did develop any further signs of tetanus I would be very reluctant to return to that particular hospital given how I was treated yesterday!

OP posts:
WhatTheSock · 05/10/2020 08:02

RichardMarxisinnocent the original discharge letter said jaw spasm. He changed it to anxiety related twitching and asked me for the old form back!!

OP posts:
gypsywater · 05/10/2020 08:05

There is no way a nurse would introduce herself as Dr X. Come on.

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