To think they just don't get it?

[Jasmin82]

My health hasn't been brilliant recently. It lead to me being stuck upstairs for 4 days. As I live alone, this meant I didn't have anything to eat for those days as everything is downstairs.
Over the years, I've learnt not to expect even the slightest bit of sympathy from my family (I used to think that it was normal for you to be compared unfavourably to other family members and that any news about myself good or bad is not important).
I mentioned the issue on fb, not expecting sympathy or even comment.
Apparently, I should have somehow gone downstairs each night (despite the fact my legs were only just co-operating to go to the loo and, if I had gone down on my bum, standing back up would have not been possible) and brought some food up just in case my legs were going to be the same the following day.
Now it's been decided that I should somehow magic up the microwave upstairs and double my food spend for the month by buying ready meals that don't need to be frozen or stored in a fridge.
I've explained that my food budget cannot be doubled, to no avail, yet anything I say just seems to be ignored. It seems to have been decided that I have some unlimited source of money that I'm unaware of (that or they've bought into the "people on benefits are rolling in it" rubbish).
Is it just the case that, because they haven't been in this scenario, they just don't get it or understand?

Where do you live Jasmin? I’m near Liverpool. If you’re in my area I’ll come round tomorrow and move your microwave, fridge etc. for you. I’ll bring you some snacks too.

It would make far more sense to move your bedding downstairs. Than move the kitchen and try and make meals upstairs. Is there a bathroom downstairs? It’s been asked several times but you haven’t answered.

How did you make it to the loo in the 4 days you were stuck upstairs? Definitely speak to your Gp for a care needs assessment referral!

I know it's not always wise to disclose where one lives exactly on MN - but if you could give a general idea, there are, I know, plenty of lovely MNers who would come and help you while you're on the waiting list for adult social care assessment.

It doesn't sound like your current accommodation is suitable for your needs. I hope you get to move soon to single story accommodation.

Your OP suggests that decisions were made for you. Can you explain why?
Your subsequent posts also state that family have told you to follow suggestions that seem to have already been made. Again, can you say why?

If you're feeling isolated and not able to physically cope, could you self refer to social services?
That your family seem reluctant to help other than to state that you need to 'follow suggestions,' is alarming.

Next time it happens call 111. Not being able to reach food is a minor emergency.

Yes if you feel able, please tell us where you live, maybe one of us is nearby.

Someone needs to tell your family to get their arse into gear and help you. And if they aren't willing to step up then you need to dial 111 for help. If you can't get food you will starve to death.
Also genuinely asking here - can you just stay downstairs? Sleep on the sofa if you have to - getting upstairs when it's practically impossible for you is dangerous.

If you are in Hull, give me a shout and I'll come and help you rearrange things tomorrow and get you some easy eats.

Many people underestimate or brush aside mobility issues. They just can't get how disabling these problems are. I'm shocked that your family would out and out say no when you ask for them to come round and help. What the heck is wrong with them! I know it doesn't help much this time, but maybe you could give a spare key to someone you know you can rely on to come and help if needed in future.

My spinal damage issues were diagnosed after i went to the GP about my foot dragging and tripping me up. I feel for you. Hope you're able to manage better very soon and can get moved to a bungalow or flat.

I feel for the OP. I hAve had ME and there is sod all help out there. For past few years I been battling a movement disorder/FND and it.took ages to get social services to get me care for my mobility issues.

Hoping someone can help you soon, OP

I understand about family being belittling and invalidating around heAlth issues and other issues. I had a parent like that and other pArent he to go along with them as they were scared of them due to abuse 😞

It's unfortunately easier to move the microwave and table top fridge or freezer upstairs than move downstairs because the bathroom is upstairs. I've looked into having a downstairs toilet and there just isn't the space to put one in. One of my family was under the impression that I had an outdoor toilet, despite the fact that there never was one. It's worse when you realise they've actually been to the house on more than one occasion while you've been living there!