Yes, periods are normally mildly uncomfortable. There can be some pain. Obviously. But having such pain that you cannot function - debilitating pain isn't ok
My health literacy is good. I have years of experience advocating for myself thanks to autoimmune conditions.
Despite this, I still never managed to have a laparoscopy on the NHS, which is the only way endometriosis can be diagnosed. I'm pretty sure I have it, I have diagnosed adenomyosis from two transvaginal scans, and ultrasounds of my ovaries showed cysts. But I have other symptoms that are indicative of bowel involvement suggesting endo.
If I do have it, l am worried by the time it is confirmed it will be too widely spread and too late to do anything about it, as women have mentioned on this thread.
Either way the NHS were not interested. I can't take the pill anyway because type 1 diabetes and my age push up the risk factor for blood clots. The Mirena coil was pushed which I refused because hormonal contraception has made me severely depressed in the past. Doctors argue that Mirena hormones are very localised, but that isn't the experience of many women.
It is also unnerving how reluctant they are to remove a Mirena coil once installed, even after giving it a fair trial of six months but realising that it is causing issues. Again, women are not really listened to.
The NHS flat out lied to me that there was no endometriosis present which they cannot possibly know without appropriate investigation. Discharged me from the service.
A gp has told me "Endometriosis is NORMAL for some women" (verbatim) when I pushed for a second opinion, arguing I'd have to go to the back of the queue.
When I said I still wanted a second opinion he said he could only make the referral if he conducted an anal examination first, and he was sure I didn't want that, so...
I am not remotely squeamish about intimate examinations in normal circumstances, but it was obvious that was a manipulative power play designed to at least make me hesitate and perhaps change my mind, which rang massive alarm bells. So I declined as I was leaving the UK within the year, deciding to sort it out in my new city.
I have since found a doctor who doesn't minimise and manipulate the issues I am concerned about. Thanks to fucking covid I haven't had investigations yet, but I am relieved to know I have proper help lined up.
The NHS is a disgrace when it comes to women's health. Accessing appropriate diagnostics and treatment means completing an obstacle course of gaslighting, humiliation and being treated like a silly little time-wasting woman for having the temerity to want to improve your health.
It is not designed to help women, and will take years to change.