I've searched through some of the threads on here and don't know if this has been discussed already but I'm just gobsmacked by this.
Watched the BBC report about it the other week where they interviewed about 4,000 women who told their (horrendous) stories. So this is a condition that affects 5% of the world population and it's basically been ignored until last year. And unless you've got a very sympathetic GP, getting a proper diagnosis is still subject to luck and chance rather than being taken seriously!!
Even some of the thread started on Mumsnet have little or no responses. Or maybe I'm missing something.