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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To find it annoying when people go on about their long term Covid symptoms when they’ve never even had a positive test result

67 replies

whenthejoyreturns · 12/08/2020 17:30

Basically, they don’t even know if they’ve ever had coronavirus but go on about their ongoing ill effects from having had it. It annoys me as it’s just another way of scaring a load of low risk people into staying locked up unnecessarily with absolutely nothing to back it all up.

OP posts:
whenthejoyreturns · 12/08/2020 18:10

@Shannith Why do you think I’m annoyed at anyone with a long term health condition? That absolutely couldn’t be further from the truth.

OP posts:
TSSDNCOP · 12/08/2020 18:11

Forgot the YABU and you should ask your GP to increase your anti-wanker dosage.

InsanityRocks · 12/08/2020 18:12

@WellIWasInTheNeighbourhoo

YABU I got sick early March, unless you were royalty, a politician or a celebrity there were no tests. I had several consultants tell me it was covid, and I had every symptom. Some of those symptoms persist today. So as far as other people being scared by that, well they should be, its been life changing and awful.
This.

Flowers WellWas, life changing and awful sums it up for me too.

whenthejoyreturns · 12/08/2020 18:13

@MagnificentDelurker what evidence?

OP posts:
ilovesooty · 12/08/2020 18:16

I don't know how you can read @TSSDNCOP 's post about her friend and not feel ashamed of yourself.

lazylinguist · 12/08/2020 18:20

I haven't been tested, because tests weren't available at the time, but I'm pretty sure I had it late Feb/early March. It was the loss of sense of smell and taste that convinced me I had it - the news that those were key symptoms only appeared in the news after I'd had them for a week.

Fortunately if I had it, I had it mildly. If I were still having health problems from it now, then yes I bloody well would understandably be still 'going on about it' Hmm and yes, I would be saying that I was pretty sure it was from Covid. That would be the truth, not 'scaremongering'.

MilesJuppIsMyBitch · 12/08/2020 18:24

How hard for you, to be so annoyed Thanks

MumsyMumIAmNot · 12/08/2020 18:26

My partner tested positive with no symptoms. Lucky for him. Must be awful.

LizB62A · 12/08/2020 18:35

I was sick in early March - I might have have had it or maybe I didn't.
There's no way to know as there was no testing available then and there still isn't a reliable antibody test.

But I'm still not 100% - still got an odd rash on my ankles, still having nosebleeds (which isn't yet confirmed as related to Covid-19 but the list seems to still be growing)

Be thankful that you haven't been ill and don't be such a tosser.

People have to make their own decisions on whether they think it's safe to go out or not.
If you think there's no risk, crack on.

Lindy2 · 12/08/2020 18:35

There will literally be hundreds of thousands of people who've had undiagnosed Coronavirus. At the point of lockdown it's estimated that there were 100,000 new cases per day, most of which wouldn't have been tested or admitted to hospital.

Some people are really suffering still. Just be glad you're not one of them.

I had a virus in March. I think it's 50/50 whether it was Coronvirus. Symptoms were mild but went on for about 8 weeks+. I've never had a mild virus go on for so long and involve heart palpitations and upper back pain as well as about 10 other symptoms including a ridiculously itchy arm. I'm still suffering with what feels like a blocked swollen throat and it's now August.

I half jokingly say my long term Coronavirus is still going on but it is a bit of a worry to still not be quite right. If my symptoms were worse I'm sure I'd talk about it more. It's not a normal illness to go on so long for some people. I can understand their worry and uncertainty and their need to talk. Not all will have had Coronavirus but plenty will have.

CoffeeandCroissant · 12/08/2020 18:37

Are you seriously suggesting that there is no such thing as long term Covid symptoms?

Because there seems to be plenty of evidence that there is:

www.bmj.com/content/370/bmj.m3026

time.com/5878448/longterm-covid19-recognition-research/

www.sciencemag.org/news/2020/07/brain-fog-heart-damage-covid-19-s-lingering-problems-alarm-scientists

Do you not believe the public health policy academics and doctors who have experienced long term symptoms?

mobile.twitter.com/EricTopol/status/1293241679357632512/photo/1

mobile.twitter.com/AppgCoronavirus/status/1291137189984829441/photo/1

blogs.bmj.com/bmj/2020/07/28/nisreen-a-alwan-what-exactly-is-mild-covid-19/

TempestHayes · 12/08/2020 18:38

Genuine people, no. I feel that previously healthy people who are now crippled with chest pains, fatigue and deeply miss the health they had are in need of sympathy and further research, especially as they were likely refused a test for many months. Long-term sufferers have gone from healthy under 40s to walking with canes, sleeping long hours, an inability to breath properly and unable to use their hands well. It's a major shock and not to be taken lightly.

Whingers whose nose ran sometime in February and who coughed at the end of March insisting they had it and now they feel a bit tired, no they can sod off.

RedSky100 · 12/08/2020 18:40

I can’t find my tin hat. Where did I put it? FFS

JadesRollerDisco · 12/08/2020 18:41

IME lots of doctors are telling people they "probably have a post viral illness" following a bug that had covid 19 symptoms earlier in the year but was not confirmed as covid 19 due to no testing at that time. Some people have had it confirmed that they are in regular contact with somebody who has now had the antibody test or was tested in hospital. It's not definite, but from a process of elimination it seems like the best diagnosis differential diagnosis. That does not mean it is accurate for everybody, but for a good percentage of those people it will be.

Keepdistance · 12/08/2020 18:46

Most of these side effects are not normal for these age people for this long after a cold or flu.

Imo it absolutely is the risk to younger people that is the issue. Italy was full in icu so only having under 60.
The info from other countries is that even asymptomatic cases can cause damage to organs.
If we had covid
Dp had a new throat clearing thing
I had significant chest pain for 3m. And heart racing. At the hieght of it i couldnt read a bed time story to my dc. Had to breathe more frequently.
I have asthma. But this wasnt that. More like a weight on the chest or your brain forgetting to breathe.
The kids coughed for 8w.
Now hopefully down to muscle twitches and hair loss.
It is completely different to a chest infection as it feels like you clear that when coughing and gradually feel better.
Im onit 40s so an age most people get to and wouldnt expect to normally feel like you need to go to hospital for oxygen.

Either way ot is really not pleasant being ill at the height of a pandemic when you cant see anyone or get any help (people were on hold to 111 for hours)
Yes some people will have had something else (glandular fever is very nasty too). But that is also part of the rubbish of this situation not getting seen at the time i imagine some normal chest infections got worse due to lack of treatment. And no testing for things like gf.
Remember mild covid is including pneumonia.

corythatwas · 12/08/2020 18:46

Sorry but I’ve known quite a few people with similar symptoms over the years, way before corona. Long term fatigue etc is not unusual.

As several consultants have explained, the symptoms of Long-Covid are quite different from those of long term fatigue. They tend to involve various forms of multi-systemic inflammation, which typically results in difficulty in breathing scarring of the lungs is common, as well as kidney damage, heart/vascular conditions and gastrointestinal upset. Rashes can also occur, as well as metabolic disruption (such as poor control of diabetes).

But the most typical sign is the loss of taste and smell- not typical of chronic fatigue.

If I were you, I'd leave the diagnosis to a doctor who may well have observed symptoms you haven't been told about.

Bonkerz · 12/08/2020 18:50

Wow how judgemental.
I have a friend who according to the tests hasn't had covid BUT when lockdown hit she was in Spain in isolation and felt a bit poorly. Had test on return negative. She went back and worked as a nurse in the NHs till she got poorly again and went off sick. Again test negative. She still hasn't recovered.
She had the anti body test but that too has been negative.
X rays and scans of her lungs show damage though so docs think she has had covid and she now is still off sick. She can't walk further than her front drive (about 5m). Climbing stairs sends her heart rate soaring.
This has been going on for 3 months now. Before this she would cycle 8 miles to work and could walk 16 miles for fun!!

pointythings · 12/08/2020 18:51

So you have no sympathy with the people who may very well have had a pretty serious instance of a new and mysterious illness for which they were unable to get tested? And you think they're hamming it up to scare people? (Or is it a conspiracy?) Come on, admit it. You're a COVID denier of the genus Trump follower. Either that or you've been to a specialist and had an empathy bypass.

I work in the NHS supporting specialist community services. We are seeing people being referred with all kinds of respiratory and cardiac illness, and a spike in neuro referrals too. Many are young, previously healthy people - not our usual patient population at all. Should they not have care and sympathy for the shocking deterioration in health they have experienced? That's a pretty heartless point of view.

itsgettingweird · 12/08/2020 18:52

Well I had it diagnosed over the ink e because they weren't testing.

This was when I had all the symptoms then then decided were Covid and it wasn't just cough and fever.

I've never had an illness like that before and never had those symptoms before.

They match Covid which we know was in the community.

It like when Nuro breaks out somewhere . Everyone has nuro and you get a gastric bug.

You would assume on balance of probability it's nuro and not food poisoning for example.

A bit of empathy wouldn't go amiss. It's a scary illness that causes you to struggle to even think straight for weeks afterwards.

LetMeVent · 12/08/2020 18:54

whenthejoyreturns
It wasn’t just long term fatigue. It followed a week of intense muscle pain, high temp, cough and after 12 days difficulty breathing kicked in. It wasn’t a struggle to get air in or out but I just felt there was no oxygen getting in.. like I was suffocating. I have never experienced anything like it. But, you think being surrounded by similarly ill people, 5 of whom ended up ventilated and one of whom died (who were all being treated for covid) is just a big coincidence and that my long term fatigue was probably due to something else?

Confused
itsgettingweird · 12/08/2020 18:55

For those healthcare workers on here.

Since I had (suspected!) Covid I had indigestion for for weeks and still have odd flare up now. Also I've been getting sudden drops in blood sugar (it ms generally fine but ds has a condition so we have a monitor to check)

I've heard it causes issues with diabetes so I wondered if this could be related or if it's just I'm that I'm also appearing to be went wrong peri menopause (the joys 😆)

itsgettingweird · 12/08/2020 18:57

@LetMeVent

whenthejoyreturns It wasn’t just long term fatigue. It followed a week of intense muscle pain, high temp, cough and after 12 days difficulty breathing kicked in. It wasn’t a struggle to get air in or out but I just felt there was no oxygen getting in.. like I was suffocating. I have never experienced anything like it. But, you think being surrounded by similarly ill people, 5 of whom ended up ventilated and one of whom died (who were all being treated for covid) is just a big coincidence and that my long term fatigue was probably due to something else?

Confused

I said that. I could take in a deep breath and get air to the bottom of my lungs. But I felt like I was breathing through concrete and glass and a right band around my chest just above my boobs. Mh friend who simply had a cough and bit of breathlessness in gym at the same time as me described the same feeling.
Catmaiden · 12/08/2020 21:01

I got what qualified medical professionals told me was COVID-19, at the end of March. I'm still suffering long term after effects. No testing available back then.

Who the fuck do you think you are, to question, or complain about other people's experiences?

LakieLady · 12/08/2020 21:14

I haven't been tested, because tests weren't available at the time, but I'm pretty sure I had it late Feb/early March. It was the loss of sense of smell and taste that convinced me I had it - the news that those were key symptoms only appeared in the news after I'd had them for a week

I had something like mild flu for a week in early March, and lost my sense of smell completely for around 3 months. It's still not back properly - every now and again I smell something and realise that I haven't smelt that smell for ages. The most recent one to return was, sadly, dog farts.

I never say I had Covid though, because I simply don't know. But on balance of probabilities, I think it was.

Schuyler · 12/08/2020 21:32

I was taken to A&E via ambulance after being seen by my GP, stayed overnight on oxygen. I had double pneumonia. I was on the Acute medical unit but not tested. Apparently it wasn’t a formal admission to a covid ward and it was only one night and they refused a swab. The consultant said “I listen to covid lungs all day long, yours sound like covid”.

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