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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Worst parenting day ever

15 replies

Haditall · 07/08/2020 19:18

My 8 year old autistic son wont stop crying on and off all day,hes non verbal so cant tell me what's wrong, hes got learning disabilities too so cant even point or know how to communicate what's bothering him.im at my wits end.this happens every few months and its incredibly distressing, I never work out what caused him such anguish or pain.
I hate being the mum of an autistic child.its the most heartbreaking experience I've lived through,its so incredibly hard.today I feel completely done in by it,its so hard to contemplate this for him and us forever.
Do any of you believe that things in life do eventually get better no matter what the situation, or is that something people just say to make themselves feel better?to live in hope is difficult.

OP posts:
Frightenedbunny · 07/08/2020 19:38

Would your son be able to respond to visual photos to communicate? Have you access to a community learning disability team who could help you? I’m so sorry you are feeling rubbish op. I’ve a lot of experience working with people with learning disabilities and I know how hard it can be for families. Try not to see yourself as failing, in my experience you are the professional and know your child better than anyone else.,

Doveyouknow · 07/08/2020 19:43

I don't have any advice but you are doing your best in a really difficult situation and that is all you can do. I hope tomorrow is a better day

Haditall · 07/08/2020 19:46

@Frightenedbunny thank you.hes at a special school but lockdown has meant its been a long time since he went,its been so hard to try keep him entertained when he can tell me anything. his disabilities are too severe and haven't allowed him to pick up using pictures or pointing. Hes mentally the age of a 6 month old. Hes back next week and I'm counting the hours.

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Hublott · 07/08/2020 19:46

Will you be okay for the night?. Tough day for the two of you today. Flowers

rabbitheadlights · 07/08/2020 19:49

No advice OP but just wanted to say you aren't alone we're earlier in the process than you but we have days exactly as you describe, it's heartbreaking and relentless.

Fartymcnarty · 07/08/2020 19:51

No advice but it sounds like you’re a great mum. Don’t be so hard on yourself, these are tough times and things will get better.

mamabears3 · 07/08/2020 20:09

sorry i cant help but can empathise,single mum and my autistic child is hard work... really hard work! my other kids are struggling with them and each other. It like living in a pressure cooker. Roll on bedtime ! I have days when i wish i could run away for a week to sleep and recharge my batteries (no support network at all). Be kind to yourself, Im sure youre doing your best under difficult circumstances...I like to have a nice soak in the bath and put a film on, i invariably nod off but its still a little me time. PM if you need a listening ear x

whatwouldjohnmclanedo · 07/08/2020 20:09

Be kind to yourself, really you need a break. Is it just you and your son? Is there any chance for respite? Meltdown days are the worst with everyone being left exhausted and unsettled. Tomorrow is a new day. We call it a reset here. 🤗

Coldspringharbour · 07/08/2020 20:19

You sound very loving and caring. I’m sorry you’ve had a terrible day and hope to tomorrow is better 💐

Timepasses · 07/08/2020 20:20

Hi there. My son is the same. Severely Autistic and non verbal and sometimes has days where he cries on and off. It is very distressing. I usually give him some calpol in case he is in pain. He could have headaches or stomach ache and has no way of telling me. I know exactly how you feel Thanks

Haditall · 07/08/2020 20:22

No support network here either.its always the case it seems for families like mine,the more difficult a child God has given you, the fewer people He provides to help.what a God I serve!

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Haditall · 07/08/2020 20:29

@Timepasses I too have gave him calpol,hes been pacing furiously since 9 am whilst crying and is showing no signs of abating.theres no comforting him,he doesnt wish to be held.
I wish I could see inside his little mind and take away the causes of his frustrated tears,his panic and pain.
I've never met anyone in my real life with a son as complex as mine.feels crazy to even call him complex as hes so innocent and baby like in his mind and development.
Thanks for your message

OP posts:
SugarHour · 07/08/2020 20:32

I don't think things always get better necessarily but they do change and life is a series of peaks and troughs. So, in the words of Blur "this is a low" but it will get better again Flowers. Even just when school starts again and you get the respite of him being there.

Haditall · 07/08/2020 20:32

@mammabears3 I'm sorry you too are in the same situation, I wouldn't wish it on any mother. I think the only way I'd ever get a break and help is if I get run over and spend a week in hospital!

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Timepasses · 08/08/2020 05:56

@Haditall honestly I could have written your posts.
My son also paces and cries. It's so hard not knowing what to do to make it better. I honestly know exactly how you feel. Lock down has been hard with no respite.
Could he be constipated? My son suffers with this a lot due to his poor/restrictive diet?

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