To be totally and utterly devastated by my Ex's malignant brain tumour

[Abbazed]

My Ex collapsed whilst working in the small market town in the Lakes. We have a 14yr old son with ASC . Ex has four seizures in ambulance on journey to hospital. Turns out to be a malignant brain tumour.

I really don't want him to die. I know I've no control over this.

Thank you. He's really not well and I don't think he's got long. They haven't started chemo :'( . They took 6 Inches of his brain out.

I really don't want him to die. I know I can't change this. He's sleeping all the time.

Worst part is my son doesn't get how bad this is.

So sorry OP. What have the consultants said about his prognosis?

My ex SIL died of a brain tumour last year. She was initially diagnosed in 2014 and in the beginning she had setback after setback after setback and initially they didn’t even know whether she would survive the emergency surgery which led to the diagnosis.

They won’t do e.g. radiotherapy for six weeks after the surgery because the wound needs to heal, and they may not start chemo straightaway.

The news may still not be good, but the initial surgeries etc are often the hardest, and remember he’s just had massive brain surgery and needs to recover from that which could account for his sleeping so much.

If the consultants will talk to you then do try to talk to them and get some answers rather than feeling despairing iyswim.

All the best. Such a hard time

I'm so sorry @Abbazed – this must be such a brutal shock. Has he nominated anyone to be there with him for appointments/news – is that maybe something you could do so you have more information about his prognosis and can better prepare your son? I lost my Mum in a very similar way when I was 24 and the thing that got me through was speaking to Macmillan on the phone, I would call them almost everyday. I would hugely recommend speaking to them for yourself ❤️