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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU to want someone to help us before he dies?

39 replies

justwantittoend · 10/06/2020 22:57

Going to keep this vague just in case.
Have an adult (in 20s) family member who suffers from mental health issues, plus anxiety, plus autism, plus behind in age, say they are 25 they would be 17/18 in reality. Refuses to take any and all medication (they won't even use something like savlon as it might give them side effects)

The problem is they live in absolute squaller, as in, if they are smoking a cigarette they will just use whatever is near them to flick the ash, including the carpet, they will put it out and throw the butt in a corner of the room, same goes for rubbish, food, clothes, the smell almost makes you sick, there is mold and damp everywhere, rotting food in fridge/cupboards/in storage areas.
As a family we try to help, they have only lived there two years and the amount of times we have been in, cleared it all, got it back to how it was when they moved in etc, few weeks ago we removed 12 black bin bags full of rubbish/clothes with mold on them, today we have had to clear their entire bedroom of all the furniture as even that was full of mold, rubbish everyhwere. His mental health team/doctor/carers/housing officer have all seen the way he is living and never say anything.

We can no longer do all this, I have developed two chronic illnesses over the last year and six months ago I had a brain infection, I am not well enough to keep doing this every few weeks, My mother helps me when I do it but she is ill herself as well, we can no longer cope.
We have also tried paying a cleaner to help once a week but she quit (rightly so) when he started defecating on his living room floor, and she found maggots in his food cupborads.

The problem we have is this, because they are an adult nobody will speak to us about them, we have tried his housing officer, his mental health team, his doctor and they all said the same thing, he is an adult. He did have carers coming in to help him cook, but even they couldn't do anything with him as he throws away all his plates/cups/kettle/knifes etc instead of washing them he just throws them so they can't really work with him at all, they are losing so much weight that he is looking like skin and bones.

Is there anything we can do to get someone to listen? someone to help? or is he supposed to die before our eyes as he can't take care of himself. He says if he goes into assisted living he will end his life. they will not move in with me or anyone else as they think they are coping. is there anything at all we can do as we are all convinced we are going to lose them, its just a case of when. to give an idea they have lost 6 stone in weight over the last 5 months, he turns up at our houses almost everyday for us to feed him and give him money and we can no longer cope.

OP posts:
Mittens030869 · 11/06/2020 09:36

Have you not posted this exact same thing before? If not you then literally an identical post a few months back?

It could have been me posting about my DB, his situation is very similar, but he's in his 50s and hasn't ever been a functioning adult. My DM is 80 now, and she's spent so many years sorting him out. My DH and I had to bow out of helping, as we had enough going on in our life, with adopted DDs, one of whom also has SEN. It was like having a second SEN child to look after. He also scared both our DDs by shouting at them constantly and bumping into them.

Unfortunately, it really is the case that if family keep bailing a vulnerable family member out, they end up not getting support from adult social care. It really is necessary to back off, so that it can be seen that they're not coping.

I hope you and your family manage to get support for your family member, OP, it sounds like a really tragic situation. Thanks

Ponoka7 · 11/06/2020 09:43

He has capacity.

He won't go into supportive living.

He won't work with carers and support services.

They have to wait for a medical emergency to section him, to show that he is a danger to himself.

It's either that or we go back to the bad old days of putting people into institutional care and leaving them there because they don't fit the narrow perimeter of 'how we should live'.

Stop propping him up and let him hit the level he has to before the MH Act/Vulnerable Adult/Safeguarding/Capacity Act clicks in.

Keep a watch and report, report, report as he drops down.

TARSCOUT · 11/06/2020 18:39

@Mittens030869
Yes that's the one, sounded so familiar. Its awfully hard to stop the caring but sometimes that's the only way isn't it.

Mittens030869 · 11/06/2020 18:59

@TARSCOUT Yes I had to do that. Though it wasn't just because it was too much for me. My DSis and I had reported him for being part of the SA we went through. (He was a victim, too, which is why he wasn't charged.). From that point on, we had no choice, as SS knew about it too. That and the fact that it was too triggering for me to be around my DB.

The problem is that my DM was always telling me about how bad it was for him, making me feel guilty. (That's where having had COVID-19 symptoms for the last 3 months has helped.)

Basically, I had to put myself and my DDs first. I've come to terms with that now (no choice!).

I do feel sad thinking about him, though. Because with his MH issues, there's no way of explaining to him, and I know it must be a lonely life for him within lockdown. And because of other people's crimes. Sad

RedPanda2 · 11/06/2020 19:41

The question is- does he have capacity? As a PP said earlier, people are allowed to make unwise decisions. I'm surprised he hasn't had a visit from a community psychiatrist or CPN, they would normally relay their concerns to GP etc. I guess all areas are different.

GooseberryJam · 11/06/2020 20:10

Do not move him in with any family members. Social services will assume you are doing 24/ care and you'll never get any help from them. @jokolo is spot on.

HappyHammy · 11/06/2020 20:26

What sort of accommodation is he living in at the moment. He has a housing officer who has a responsibility to ensure properties and tenants are safe. Maggots, mouldy food, damp, mould, fire risks need to be addressed for safety reasons for him and anyone else living there. You need to stop doing the cleaning, contact safeguarding team and tell them he is at high risk of self neglect and will contact environmental health.

TitianaTitsling · 11/06/2020 22:20

So what do you want SS to do? Tidy and clean his house against his will? Force feed him? They cannot do this unfortunately. They if he has capacity have no more powers than the private cleaners you paid.

zenasfuck · 11/06/2020 22:27

You need to raise a safeguarding concern with adult social services on the grounds of self neglect

MitziK · 11/06/2020 22:56

@GooseberryJam

Do not move him in with any family members. Social services will assume you are doing 24/ care and you'll never get any help from them. *@jokolo* is spot on.
...and then he'd be shitting on your carpet and dropping cigarettes everywhere - and the council would refuse to house/assist him on the grounds that he has somewhere to stay.

You need to back off. It's the only way for all concerned.

AlovelybitofsquirrelJackie · 12/06/2020 18:58

Just another thought, when I worked for the ambulance service (in the safeguarding team) we frequently got referrals from crews with these exact situations. The fire risk meant that the fire service were able to get involved on a wider public safety basis and that often galvanised adult social care to act. Does anyone remember Mr Trebus from Life of Grime? He eventually had certain things imposed on him due to the public health risk. It may come to that. But as others say a light touch practically from you is the only way as services won't step in. Also, as I said earlier, he is allowed to make unwise choices if he has capacity. It's frustrating but leaving him to it may be better for your own mental health and well-being.

RuffleCrow · 12/06/2020 19:06

Who is telling you they can't help because "he's an adult"? What on earth do adult social services think they exist to do, if not support vulnerablr adults?! Sadly, op i think you're just going to have to keep fighting. There's probably a threshold of making a fuss you have to get through before they will take notice, because underfunding. That's what those of us who care about a person with a disability have to do. It sucks, but there it is. Try his local councillor/ MP and see if they'll help.

Sally7645 · 12/06/2020 19:29

My friend has a neighbour who is late 60's and a chronic, severe alcohol. Has been for years. Inherited her flat and a large sum of money, all her family are dead and she is completely alone.

She is so drunk constantly that she doesn't eat. She can't get off the floor, had to have all the carpet taken away as heavily soiled with urine and poo. She literally lives on the floor, smokes like a chimney and never opens her windows. The only contact she has is occasionally a social services appointed carer goes in. She gets her booze delivered online, often leaves the door open for deliveries and is found naked on the hallway floor and an ambulance is called only for her to be returned the next day.

My friend has complained to her social services team multiple times. Mainly out of concern but also because her living conditions affect others in the block, in the summer the stench coming out of her flat is unbelievable.

Anyway, not sure why I am posting other than to say sadly and shockingly this happens more than people realise. They can't section her as she isn't a danger to herself or others apparently... even those she's so pissed she is semi conscious on the floor with a lit cigarette in her hand

If an animal was living in these conditions it wouldn't be allowed, it is so shocking and I really sympathise with you. Writing to your MP and or threatening to go to the press is all I can suggest! My friend threatened SS with the latter and it did result in more regular care visits, albeit only for a while as she started to refuse them entry x

Vodkacranberryplease · 12/06/2020 21:19

I just want to add that going to his house has probably made you ill. Please stop, it's not safe.

And apart from SS not helping him because you are, he has no motivation to take help because you are. He needs to be sectioned, diagnosed and medicated. Not allowed to live in squalor with you enabling it.

If that's not a sectionable MH problem then I don't know what is.

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