Any PMDD sufferers?

[boymum9]

Posted here for traffic!
Are there any fellow pmdd sufferers out there? Is there anything anyone does that can help or suggestions? I always suffered bad hormonally but have had pmdd since my periods returned after my second child about 2.5 years ago.

This last year has been hell in regard to pmdd symptoms, and I just don't know what to do anymore. I have been to the doctors once and she acknowledged the pmdd but just prescribed me the pill which personally made my symptoms a lot worse!
I have taken for months:
Angnus castus
Red clover
Magnesium
A particular supplement that's meant to help balance hormones that inc magnesium, vitamin b and some other stuff
Maca root
Evening primrose
(Also some other more regular vitamins)

But nothing helps. I have irregular periods, anytime 35-70 days apart and the pmdd lasts at least about 2 weeks prior to my period.

It's really really effecting my relationships, when I have it I reject my partner who is a wonderful man who has stood by me through an incredibly tough time, always tried to support me in this yet I am awful to you each time, doubt our relationship and pick out all this (unimportant flaws) and it makes me question my whole life, my ex h and I split up 18months a go and his behaviour in the year following to me was awful, yet when I have pmdd I long for a normal life with him and our children, even though I know I don't actually want to be with him, and then when the pmdd goes I come to my senses and remember his abusive behaviour and how much my life has improved without us being together, and in the same vein I then realise how wonderful the man is I am with now! I feel extremely depressed and have suicidal thoughts although I know I wouldn't do anything to leave my children.

Does someone, anyone have any advice or things that have helped for them? I'm desperate

Hi

I see you posted this months ago. Having only just heard of the condition and wondering why when it's clearly an issue that is worthy of attention, I'm responding now. That you never got even one reply is telling.

I started on another thread about it as it was only recently on a news report. Despite going back and forth to the GP, Gynaecologist and other specialists for fecking years, never once was this condition mentioned. AND THAT IS FUCKING DISGRACEFUL!!!!!

Says on PMDD pages that if you've five of the symptoms, then see your GP. I have every fucking one and felt like no-one was listening to me.

So it's not a hormone thing but a reaction to the change in hormones. Why then was prescribing more hormones by way of the mini pill or HRT ever going to help? Why could no medical person every answer that question satisfactorily.

Anyway, rant over. to you. There is apparently a PMDD support thread on here somewhere and I'm trying to find it. I'm about to try various supplements in the hope that I strike the right balance. I'm just about done with GPs and medics because their ignorance of the matter does not instil me with any faith.

If I find the link I'll post it here for you.

If I get on ok with the supplements I'll get back to you.

Hope you're feeling better xx

If you've got pmdd, theres no doubt in your mind once youve read about it. Totally and utterly debilitating for ten to fourteen days every month. I wept when I first realised it was a thing and not just me going crazy every month. The worst thing about it is that nobody wants to hear about it, and if you do manage to get through to close friends, it's all a bit of a joke. They nod along sympathetically and then say something ridiculous like have a bit of chocolate.
It's like having an intruder in your own mind, taking over before your period. Pmdd symptoms are terrible and not in your mind. Very recent research has finally discovered the genes responsible which make a minority of women react to hormonal changes this way. We can live in hope this may lead to better understanding and treatment.

What's helped for me (and my husband, bless him) is for us to fit ad much into my good weeks as possible, and then accept I will be able to do alot less for ten days of the month. I am lucky that I am very regular, which allows me to do this.
I finally relented about a year ago (I am 41 now) realising I couldn't put my kids through me being that bad every month, so visited the doctors and got (battled) a prescription for a low dose anti depressant, which I take every other day for ten days a month. It is the recommended treatment for pmdd, but even the doctor didnt knownthat so I was pleased we went armed with research on the subject as she looked it up eventually, and saw it was indeed there as a treatment option.
It doesnt work the same as an antidepressant, but however it works for pmdd, its instant and does help.
I wish I had started it years ago.

You have my every sympathy. Frankly, I would agree to a hysterectomy, as some other sufferers have, if it wasnt for the inevitable battle I would face to get it agreed. It was enough of a fight to get the pill.
I so look forward to menopause.

Good luck with it, it is truly awful.

There is a doctor called Dr Maryon Stewart. She specializes in PMT and PMDD. She totally cured mine maryonstewart.com/
She does telephone consultations. Please please contact her. I know she can help you

@Wishingforanotherlife

Just read your post.

@Notashandyta Thankyou x

The help threads are actually on Facebook and are

ukpmddsupport

or

pmddthbsolifeafter

Started a smorgasbord of vits and supplements on Saturday so will see how that goes.

PMDD is a nightmare. I've had years of constant symptoms and struggling until a year ago I went to the doctor who thought it was PND and prescribed fluoxetine. This has really helped me. Speak to your GP don't suffer for the fear of medication

Yes, I've been diagnosed after many years of suffering. It was only when I had an appointment with a locum at my gp surgery that it was suggested as I'd never heard of it before. I will be forever grateful to that wonderful doctor.

I take sertraline and I also take magnesium and multi vitamins. Mindfulness, CBT, exercise I do it all I still get irritable but I no longer have suicidal thoughts, lose control, be an absolute monster to my partner or have paranoid delusions.

I hope you find a knowledgeable gp to help you.