To want to cry happy tears?

[Jasmin82]

10 years ago I was diagnosed with ME/CFS. I have been asking at every GP appointment since my diagnosis if there is a referral they could make to a specialist so that I can have input into how I'm managing my condition and ensure I'm getting things right. I was always told no and to keep doing what I'm doing.
In the last 12 months, both my legs have decided to stop cooperating. This got me a referral to a neurologist and MRI scans which came back clear followed by discharge from the neurologist back to my GP.
Recently, following 2 visits to A&E with bad palpitations and chest pain, the doctor I saw on my second visit wondered why I wasn't under a CFS/ME specialist. I explained that I had asked about referrals and been knocked back.
Yesterday I got a text from my GP surgery to make a telephone appointment. Spoke with my GP today and, as per the recommendation of the A&E doctor, once restrictions are lifted I will be getting referred to a CFS/ME specialist.
I just want to cry with happiness.

I don't blame you, it's such a good feeling to be believed isn't it. I'd been in pain for a good 20 years before a new GP at the surgery realised I probably had rheumatoid arthritis. I'm willing to bet you've been told that your pain was 'all in the mind' or 'hormones'.

for you and fingers crossed that you'll find a path out of this fog.

Oh I feel for you Op. I don’t know how people cope with CFS. I’m happy for you that you’ve got a referral. I sincerely hope you get some relief from this. I’m rooting for you

I 100% get you. Slightly different yet also similar - I was diagnosed 10 years ago and spent a long time pulling my hair out as I wasn't being taken seriously with other "symptoms," I eventually gave up entirely and refused to go to the Dr again until last year. I was immediately told I was misdiagnosed and referred to rheumatology. When I eventually hit my appointment I was told again that I was entirely misdiagnosed - the relief was IMMENSE. Granted, they're still not entirely sure what is going on but they're closer and the relief that came with not having everytjing put down to "oh, it's your CFS" was huge xx

Thank you. I'm at the point where I don't care how long it takes to get an appointment, just getting the referral is enough. Had it not been for the doctor I saw at A&E, I would probably still be trying and being turned down for a referral.