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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Tinnitus

34 replies

Earbygum · 27/04/2020 20:40

I've had low level tinnitus for over 20 years and my doctor at the time said there was nothing I could do to fix it. I don't normally mind it but it would be nice to enjoy silence rather than avoid it!

Has anyone successfully or unsuccessfully managed to reduce their tinnitus, and how did you do it?

OP posts:
phlebasconsidered · 27/04/2020 22:48

Mine is in both ears, a constant high pitch whine with a pulse underneath. It's worse when my thyroid isn't medicated enough. It first appeared when my thyroid died.

MaxNormal · 27/04/2020 23:05

Hello fellow sufferers. Mine started a couple of years ago when a medication damaged my ear drums. It bothers me less now but I'd love it to go away. I used to so enjoy silence.

supadupapupascupa · 27/04/2020 23:19

I have quite severe tinnitus in both ears which is related to significant hearing loss through mumps as a child. Nothing to be done. I have full range of sounds from high pitch to base. If you listen to it, it gets louder, you must divert your attention -this is why white noise works. Mine is much worse if I am dehydrated, have been smoking or am suffering with a cold. Any type of stimulant in theory could make it worse so experiment with chocolate and coffee.

WeAllHaveWings · 27/04/2020 23:26

I've had hearing tests, MRI, ears cleaned with micro suction, blood test for any other underlying issues. They couldn't find anything and I was another one told sorry nothing they can do. Haven't heard silence for 8 years now.

Earbygum · 28/04/2020 12:05

So sorry to those of you who don't have a cure Flowers I find it really disheartening if I dwell on it and that's why it's literally taken me years to even post about it let alone do anything... I would hate to be fixated on it only to find that it really was permanent

OP posts:
Frariedeamin · 28/04/2020 12:30

I am hard of hearing and it’s all I can hear most of the time! I really struggled with it for a long time and it made me suicidal at points but now we have learned to be ‘frenimies’. Push for a diagnosis and don’t get fobbed off - even if they can’t find a cause, there are specific techniques and kit (such as sound generators) which can help!

Nicklebox · 28/04/2020 15:55

i agree with what MereDintofPandiculation says mine started about four years ago only left ear had a scan and was told to learn to live with it, drove me mad at first. My GP's advice was try not to listen to it and that really helped now i only notice it now and again when i think about it.

MyMindsaBlank123 · 28/04/2020 16:14

Hi.
I've had tinnitus for 5 years, probably caused by very loud music through headphones. Really really stupid, and I wish every day I could take myself back in time and tell myself how stupid it was. When it first appeared I was in a complete state, read all the horror stories online about how it never goes and there is no cure, which just made me focus on it even more. I had ENT visits (they are on the whole pretty clueless about tinnitus unless there is a physical cause),MRI scan to check for a tumour on the acoustic nerve (very rare), tried hearing aids (made it worse), altered my diet by cutting out various things (no help), gave up caffeine (no help), took every supplement under the sun mentioned on the tinnitus forums (no help) and many other things.
I lost about 2 stone in weight due to stress and not eating. I had very dark thoughts and was put on anti depressants.

I was a member of the Tinnitus Talk forum, but the stories on there actually make it worse and cause you to focus on tinnitus.
What was a game changer for me was getting a sound machine and sleep -phones (like a soft headband with flat speakers in it) that you can wear at night to play soft sounds (crickets/music/whale noise/waterfalls etc) that allow your brain to focus on something other than the tinnitus. This let me sleep again.
I would encourage you to try to never be in a silent room. If you think about tinnitus as a candle flame it helps. When you are in a room during the day, if a candle flame was burning, it would hardly be seen, its just one light among many other lights. But at night, in the darkness with no other distractions, that same candle flame would appear to be the only thing in the room. It's the same with tinnitus. At night there is nothing but you, and the sounds in your head/ears. You need to distract your brain and get it away from the tinnitus noise.

I can't say my tinnitus has faded over the years but I HAVE learned to deal with it better. It gets worse with a cold or allergies. It gets better after a couple of drinks! I often wonder if someone invented a pill that dulled the same part of your brain as alcohol does (without the side effects!) that they would be on to a winner. In reality, I doubt there will ever be a cure because tinnitus has so many causes. If cause by hearing loss, if they ever find a way to regenerate the tiny cilia hairs in the ear which are flattened and damaged, they could theoretically cure tinnitus, but that's probably decade away if ever.
So we need to learn to live with it. And that's so hard, knowing that you will never hear silence again. You need to find small ways to distance yourself from the tinnitus if you can. Try not to focus on it, don't chase up every 'miracle' cure like I did. Don't give it power. And in time you will find that you go longer and longer stretches of time without thinking about it until one day, you realise you have gone the whole day without it being a problem.
Good luck.

BrigitsBigKnickers · 28/04/2020 19:36

Hello fellow tinnitus sufferers. Mine sounds like a high pitched whine in both ears- about 12kHz. It gets worse if I am tired or ill and drives me demented.

Ironically enough I am a Teacher of the Deaf and have asked the audiologists I work with for advice. One told me that if it is in both ears and not pulsatile there is very little chance of it being investigated.

One sided can in rare cases be caused by an acoustic neuroma( benign tumour on the auditory nerve) and pulsatile can indicate blood flow issues/ inter cranial problems so if you have either of those then I would suggest you ask for a referral from your GP.

We have a few tinnitus therapists round here and I am waiting for an apt with them but have been warned that there is very little that can be done- it's more CBT therapy - not sure how much use it will be but we shall see!

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