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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Original poster

To just feel lost?

36 replies

Livingtothefull · 12/04/2020 11:45

I woke up this morning to find out from worried DH I had had a seizure, there was blood all over my pillow.

I realised my memory was gone, couldn't remember what day it was or what I was doing yesterday. It is only starting to come back to me now.

I am susceptible to these unfortunately and it has happened before, it may happen once a year at most. I feel so disorientated and lost. I am not going to get checked out medically as there is no point and in the current situation I don't want to take up their time.

I know this condition is aggravated by stress. Obviously the situation we are all in doesn't help.....I am working from home and looking after my DS with severe disabilities, he is climbing the walls as he is unable to go out. Of course we can't get carers as usual.

I don't know why I am posting here really as there is nothing to be done, just want to offload. I feel panicky and disorientated still, my DS is rampaging around even more than usual as he knows something is wrong.

OP posts:
ChazP · 12/04/2020 11:59

You poor thing. That sounds so frightening. Even though you’ve had them before, if you can, I think you should get yourself checked out.

Best wishes.

Fedup2020 · 12/04/2020 12:00

Please get yourself checked out. I’m sending you positivity

Merryoldgoat · 12/04/2020 12:00

I’m sorry but I don’t understand why you wouldn’t see medical advice.

Crackerscheesescabbyknees · 12/04/2020 12:03

If it's an epileptic seizure and she's had them before, she will know the risks, PPs.
My mum had epilepsy and provided the fit is under a certain length of time and it's not multiple and she comes out of them on her own (with nothing dislocated or broken) a trip to A&E is a waste of time for the most part.

Are you managed by medication, OP?

DisplayPurposesOnly · 12/04/2020 12:07

That sounds very scary and upsetting.

Even if this a 'known' event, i still think it warrants a conversation with your doctor so they are up to date and can advise.

Original poster
Livingtothefull · 12/04/2020 12:08

Merryoldgoat the reason is that when I have had them before they just keep me under observation for a few hours and send me home. With DS here it is hugely stressful in itself, I can't drive due to my condition so DH would have to bundle DS in a car & take him with us, putting him at risk.

There really isn't anything else they can do anyway, I have had the brain scans etc. I may ring the non-emergency number just to get advice just in case though.

OP posts:
Original poster
Livingtothefull · 12/04/2020 12:12

Hi Crackercheese, yes I have taken my meds just now. I still feel spaced out and my memory is coming back slowly....still can't remember what I did yesterday which is a horrible feeling.

OP posts:
Original poster
Livingtothefull · 12/04/2020 12:16

Sorry who are the people voting IABU? I would just like to know why.

OP posts:
ImFreeToDoWhatIWant · 12/04/2020 12:20

I voted YABU because I think you do need to get checked out. You've had a seizure with memory loss - that needs documenting and investigating!

Tatty101 · 12/04/2020 12:23

Hi OP, epileptic here.

Not sure if you have any diagnosis but it's probably a good idea to get checked out if you dont. If you do, follow your consultant's advice.

Just as a raising awareness point for the general readers, a lot (I'd say even a majority) of Epileptics who have a diagnosis and have seizures do not need medical attention after an usual-for-them seizure unless theyve injured themselves. (A fact I did not know until my diagnosis!)

Tatty101 · 12/04/2020 12:23

Get well soon OP

MacRedsocks · 12/04/2020 12:28

Are your seizures psychogenic non-epileptic seizures? If so you're doing the right thing and I'm really sorry the stress has made it worse. Be kind to yourself

Original poster
Livingtothefull · 12/04/2020 12:31

Thanks all. I am pretty sure the stress has triggered this....had a very difficult day on Thursday, was trying to do conference calls while DS was having a meltdown!

OP posts:
Spied · 12/04/2020 12:32

I think you definitely need to get checked out.
You may think it easier for your ds and DH to stay at home but they need you well and you need to get checked.

Original poster
Livingtothefull · 12/04/2020 12:33

My poor DS was worried and has been really clingy, he has settled down now though.

OP posts:
wasthataburp · 12/04/2020 12:37

Please just get checked out. They have been saying on the news that people (not CV) have not been going to the hospital when they should be etc. They still have plenty resources to get you medical attention which you need

DianaT1969 · 12/04/2020 12:40

Can you take next week off work OP to rest up? I know you can't rest because of caring for your DS, but less juggling. Can you both go out for long walks/pushchair?

Bellringer · 12/04/2020 12:43

Are you sure this is epileptic? There may be help to control it.
If not sure please get checked, it could be tia. Hope you feel better.

DishingOutDone · 12/04/2020 12:44

So OP I assume you know exactly what your condition is, the risks and when to take action? If so, YANBU and no point in ringing 111 because you will know more than the operator on the other end of the phone, and they will likely insist you go in. Maybe ring your GP on Tuesday and book a telephone appointment?

Your situation does sound very stressful, can you ask for some sick leave from work citing the seizure? So that at least you can rest for a while/concentrate on your DS. Does your DH work?

Original poster
Livingtothefull · 12/04/2020 12:53

Hi there, I am on meds for this & have taken them. I think ringing GP on Tuesday is good advice.

I think like many of us I have just been pushed too hard lately.

DH works but he is on annual leave Tuesday/Wednesday so may try to take the same unless I feel better in the meantime.

OP posts:
Sparklingplasters · 12/04/2020 12:58

Sleep if you can, as much as you can, get DH to take over everything.

Where did the blood come from? Have you an impact injury? Is your vision ok?

See how you are, don’t be put off if you want to get checked over, a&e departments are quiet, upu can ring ahead, your DH would need to drop you off, GP surgeries are open tomorrow if you want to get checked over.

Original poster
Livingtothefull · 12/04/2020 13:00

Hi Sparkling, the blood was from my biting my tongue so nothing serious.

OP posts:
Original poster
Livingtothefull · 12/04/2020 13:02

My vision is fine, I just feel tired & disorientated still.

OP posts:
Jellybean27 · 12/04/2020 13:08

Please get checked.

Whatwedontknow · 12/04/2020 13:12

Memory loss is common with some seizures with no recall from time running up to the seizure. Is this normal for you OP, if so you probably don’t need checked out. Seizures vary greatly and most people know what is usual for them and are simply observed afterwards and your OP can do this at home as he is off.

I would ring your GP in case your meds need changing , unless it was different from before, then you should seek advice. Stress can be a factor in seizures as can tiredness, lack of sleep.

Flowers and rest