Hoping for better times to come

[Livingtothefull]

I am working from home with my severely disabled adult DS. The situation feels really bizarre and surreal:

DS usually goes to a special needs college but that is closed so he is at home. Usually we have carers during the holidays so we can work but of course we can't have those now now. This is my life at the moment:

DS usually wakes up around 5:30am, he doesn't do quiet so then we are all awake. DH is a key worker and sets off very soon after. So I have to toilet, dress and breakfast him then I start working from home.

DS is climbing the walls as he is confined to the house and doesn't really understand the situation. I have to do telephone and Zoom meetings and some of them are quite sensitive, DS doesn't like not being the centre of attention so will try to join in or just shout and play his iPad at full blast.

Or I try to concentrate on a project and DS will try to see what I am working on. He is curious and interested in things which is generally good but not right now!

I am not looking for sympathy at all; just pointing out that there are many people at home at the moment dealing with situations like this, and harder still. Some of them may read this post; I hope that they will be doing what I do and take each day at a time at the moment....and wait and hope for better times. I won't worry about tomorrow as tomorrow doesn't exist yet.

Does anyone else have their own way of coping which works for them?

You are a bloody hero. You sound so positive in what must be a massively challenging situation.

I have literally nothing to complain about in comparison but yesterday I was very low after ‘attending ‘ an online funeral. I gave myself permission to have a crap day and have woken up ready to crack on again today.

I will be thinking of you and your very inspiring post.

Thanks so much Matilda, I am sorry you have had tough times as well. I know that there are a lot of people struggling and suffering right now and I feel for them.

We have all had to put life on hold and find it stressful, but many are still dealing with life circumstances and are doing it alone. What I hope for for them is that one day in the future, when they are enjoying much better times, they look back and are really proud of themselves for how they coped right now.