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Blood stem cell donors needed

20 replies

Worried2987 · 08/04/2020 07:09

Pieting for traffic. Urgently need to find a match for my friend's 2 year old daughter. We need a donor by June to save her. Please see message and link below

Dear Friends,

I would like to make a heartfelt request following the devastating news that my beautiful 2 year old daughter, Livia, who has very recently been diagnosed with a very rare form of leukaemia (AML). Only 5 children are diagnosed with this condition in the UK each year.

While she is receiving amazing care at the world renowned childrens‘ hospital in London, Great Ormond Street Hospital and has already started chemotherapy, part of Livia’s treatment is a complete bone marrow transplant. It is heart breaking to watch our young daughter bravely battle what will be the toughest fight she will ever face and she has already been through so much, but she is only at the beginning of this long, hard journey.

Given the aggressive nature of Livia’s condition the race is on to search globally for a suitable blood stem cell donor match. Obviously this is a mammoth task but Livia’s oncology consultant and her medical team are still remaining positive and working hard to help Livia overcome this awful illness. They have provided us with a link where people can check their eligibility and request a simple swab testing kit to see if they may be a suitable donor:

www.dkms.org.uk/en/register-now

Aside from our very personal battle, in these times of great uncertainty with the dreadful fallout from coronavirus, I am asking my friends and colleagues to see if there is a way we can come together and do some good and reach towards the amazing goal of helping Livia by visiting the above website. All it takes is to answer a few simple questions and if you are eligible (one criteria is you must be between the ages of 18 and 55), to then request a swab kit, which is returnable by post.

The odds are, you may never be called upon, but if you are, that’s when you will have the opportunity to give someone like my daughter a second chance of life by donating some of your blood stem cells, which is a very straight forward procedure.

I would ask you to not delay and check straight away, as it takes up to 8 weeks to process any test to confirm a match under normal circumstances, so time is running out fast as the doctors said Livia will need the transplant in around 10 weeks.

Thank you from the bottom of my heart for taking the time and reading my message and for visiting the donor website. However, if I can also make one last request and ask you to forward this message to all of your family and friends, to give Livia the best chance of finding a match.

With much love and gratitude,
Livia’s mum.

OP posts:
PragmaticWench · 08/04/2020 07:15

I'm already on the DKMS register but hopefully this will inspire more people to join.

The swab kit was so simple, it's nothing complicated or uncomfortable.

ghostyslovesheets · 08/04/2020 07:17

Also already registered but hope this encourages more people to sign up and she finds a donor soon

Exoffice · 08/04/2020 07:18

I am already on the register.

Signing up is really easy - completing questionnaire and taking swaps with the kit they send you home and sending them back in the post.

I hope you find a donor.

Sally7645 · 08/04/2020 07:23

Just registered :) I've tried to register for Anthony Nolan before but couldn't because I have MS, but (someone correct me if I'm wrong here) but it seems autoimmune conditions are not such an issue for blood stem cells?

Good luck to your friend and her little girl, as a mum of a nearly two year old stories like this make my blood run cold. Really hope she finds a match x

GreeboIsMySpiritAnimal · 08/04/2020 07:25

I'm registered too. Hope they find a match soon.

cantthinkofanythingwitty · 08/04/2020 07:44

I have just registered. I hope they find her match

iVampire · 08/04/2020 07:48

Bump

If you are a blood donor, you can also register next time you donate

I used to be on the register (but my CML means I can no longer donate anything, ever)

Worried Flowers for you and your DD and I hope the treatment is effective and as kind as it can be.

DragonMamma · 08/04/2020 07:50

I’m already on the register.

I hope they find a match for her soon Flowers

SinkGirl · 08/04/2020 07:52

I posted asking people to sign up to DKMS if they could last week and several people did - hopefully lots of people will see your post and do it, the sample kit is so easily done at home.

Crossing everything they find a donor ASAP Flowers

hopsalong · 08/04/2020 08:02

Just registered.

Sugarfreejelly · 08/04/2020 08:04

Just registered. Thanks OP. Crossing my fingers and toes too.

Worried2987 · 08/04/2020 08:08

Thank you everyone from me and my friend!

It's such a simple process to register and donate. I hope we find someone. This is a global search throughout Europe and Asia so we are hoping for the best!

Thank you again!

OP posts:
Scootingthebreeze · 08/04/2020 08:08

Just saving this thread to do this later as about to go to work. Anthony Nolan is a charity close to my heart so I'd happily help a similar one and will sign up for the swab kit.

I'm very sorry you and your daughter and family are going through this

Whentheleavesfalldown · 08/04/2020 08:14

Already registered. Hope she finds a match quickly Flowers

Whentheleavesfalldown · 08/04/2020 08:15

@Scootingthebreeze they use a national database, says not to re-register if you've already registered for Anthony Nolan, as you'll already be on the system

KatyaZamolodchikova · 08/04/2020 08:19

Done! Just waiting for my kit to come!

Queenofthestress · 08/04/2020 08:27

I've finally gained enough weight to join! Only took 4 years!

Jammydodger1981 · 08/04/2020 09:00

I’ve just checked and I can’t as I’m a diabetic but sending well wishes OP.

Worried2987 · 08/04/2020 18:09

Shameless bump for evening traffic

OP posts:
Sugarfreejelly · 11/04/2020 10:09

I’m bumping for you too OP!

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