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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To wonder how I'm supposed to access support

9 replies

HerRoyalCarbyLess · 09/03/2020 21:46

I need advice.

I am 28, single mum to 3 kids, have autism, Ehlers Danlos Syndrome and psychotic depression

For the last week I have been trying to contact my care coordinator to arrange an appointment to see her.
I've text her (quite long messages) on 3 different days. They know I struggle with phone calls due to my autism.
I have been struggling lately with an extra voice. I used to have just one, now there is a separate one which whispers. I can't make out what he is saying, but he's there.

What am I supposed to do if I can't access the support I need? I don't feel I should be contacting the crisis team as I'm not in immediate crisis. (And also, I'd have to phone and I really really hate phone calls)
And I find the Samaritans are hit and miss with how supportive they are.

It also doesn't solve my problem of my next appointment with a member of my mental health team.

What am I meant to do?

I realise this is long but I'm panicking now.

I'm going to have to phone tomorrow, which is causing anxiety, and also I'm feeling like everyone has just forgotten about me.

I really have no idea how to deal with this. I struggle with being a grown up at the best of times.

OP posts:
akg89 · 09/03/2020 21:53

I would call gp and ask for emergency appointment first thing if you can't get hold of any of the other services.

HerRoyalCarbyLess · 09/03/2020 21:54

I saw go on Friday. He told me he can't do anything as the mental health team need to authorise any change in meds etc. So I need to keep trying them. He did phone my CC and leave a voicemail, asking her to contact me, but I've still not heard anything.

OP posts:
mauvaisereputation · 09/03/2020 21:55

I think call the crisis team tonight. They can coordinate what you need. You will feel less worried about the call if you don’t put it off.

Krazynights34 · 09/03/2020 22:00

Is there an alternative number? Like I have my health visitor’s mobile number but also the health visitor hub number.
I agree that the Samaritans is very hit and miss.
And possibly not what you need right now.
Have you tried Mind?
I really feel for you.
If it gets very bad, ring your GP and ask for some specific help. I know how you feel about phone calls

HerRoyalCarbyLess · 09/03/2020 22:05

No alternate number apart from crisis team. I'd feel awful if I phoned them though and someone else really really needed them, like I'm taking away someone else's support

OP posts:
Missfritter · 09/03/2020 22:13

You need to put yourself first and ring the crisis team.

HerRoyalCarbyLess · 09/03/2020 22:42

Ok. I plucked up the courage to phone crisis team.
I rambled a bit but he was lovely, let me ramble and then once I'd said everything I needed to he went through everything with me.
He's emailing my CC directly, and is going to make sure someone contacts me tomorrow, be it her or someone else from the team.
Phew.

OP posts:
Butiwantto · 09/03/2020 22:48

Would your local MP be able to help do you think? It may be worth emailing them to advise of the difficulties you are facing in accessing the support you require - maybe they could get involved to help speed things up for you?

ZigZagIntoTheBlue · 09/03/2020 22:51

@HerRoyalCarbyLess well done for taking that first step. If you haven't heard by 10.30 tomorrow I'd call again if you can, it seems like you should be seen sooner rather than later. Best of luck Flowers

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