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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask you about seizures in babies?

54 replies

inkworks273 · 27/02/2020 09:02

Sorry to post here but I’m desperate.

My 9 month old son had a seizure last Thursday morning and another one on Friday afternoon.

His eyes glazed over, his body then stiffened and his lips turned blue. It didn’t sound like he was breathing but you could hear a little grunting. This lasted for a minute or two before his body relaxed and he started breathing normally again. His eyes then started rolling back in his head and he just wanted to sleep. He slept the whole way in the ambulance to the hospital.

Doctors are taking a wait and see approach at the moment and want me to film it if it happens again.

Just wondering if anyone has experience with this? Obviously I’m worried he has epilepsy and I’m on edge, constantly worried he’s going to have another one.

OP posts:
inkworks273 · 01/03/2020 20:16

Thanks everyone for taking the time to reply. It's been really helpful Thanks

OP posts:
june2007 · 01/03/2020 20:39

My DD is 12 and not had a seizure for about 4 years.

inkworks273 · 16/04/2020 20:05

@OnlyFoolsnMothers How did your little girl get on with her MRI?

OP posts:
Layladylay234 · 28/02/2021 08:41

I know this thread was started a year ago but was just wondering if anyone could help with the following that I've posted on the children's health board

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Anyone have any experience of myoclonic jerks and epilepsy in babies1
Today 08:14Layladylay234

Lo is now 9 months old. From about 6 weeks, she'd wake at 4.30 most nights for a feed then wouldn't go back down to sleep because her legs seemed to agatating her - A cycling motion that seemed to get worse the more tired she got. We put it down to just weird thing a baby did and managed to get around it for a few months whilst she was in her next to me crib.

That motion has now stopped but I'm becoming increasingly concerned about new movements that seem to be getting worse. Her fingers and toes twitch when she's either asleep or trying to get to sleep,to the extent that they stop her getting to sleep. When she wakes in the night,if we take her in the bed,we often have to hold her legs and arms down so they stop moving so she can get some sleep.

The past week or so,her sleeps patterns massively changed,she's been waking up screaming,not crying,like she's scared of something or something's hurt her. Last night,we took her in the bed and the twitching definitely woke her up but a few times,her head twitched and it woke her up.

From what I can see when I Google these types of movement,they seem to fit into myclonic jerks which tend to be harmless but if they're stopping her sleeping may be a cause for concern and also may point to epilepsy. Has anyone else had any experience with what I've described?

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