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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Autism

95 replies

Cantthinkofausernametbh · 22/02/2020 19:08

I found out my 19 month old toddler is autistic, I always pushed this thought to the back of my mind but knew as he showed a lot of the early indicators. I have a hv coming to give me some more advice but please can you let me know what you did with your autistic child to make life easier for them? Does a change of diet help? Speech therapy? How can I imply speech therapy at home? I feel completely heartbroken I had a very tough time in school whilst I was growing up and had no friends. Knowing my little one could go like this his whole life is horrible. I don’t know where to begin I am willing to do anything to make this easier for him.

OP posts:
Littlefish · 22/02/2020 19:13

Can I ask how your child was diagnosed? 19 months is very young to receive a diagnosis. Can you tell us a bit more about the behaviours that led you/professionals to this conclusion so that we can try and support you better. I'm sure the HV will be able to support you too. Speech and language therapy will almost certainly be offered at some point.

Merryoldgoat · 22/02/2020 19:13

19 months is very early for a diagnosis - what did the diagnostic report recommend?

My son has Autism, albeit supposedly HFA, and is 7.

He has lots of friends, play dates, reads, speaks well and does well at school.

All I’m saying is it’s only a diagnosis and the earlier the better to enable your child to get the help they need.

How does your child’s autism present itself?

squishedgrapes · 22/02/2020 19:27

My 14 year old was diagnosed at 2. And that was very early
Is it a specialist health visitor that you're seeing?
If you're in the UK the type of therapy will depend on what you LA offers. My dad had play therapy and speech therapy in the form of PECS ( picture exchange communication system, I think) I also took him to a couple of SEN playgroups where I met other parents. You could ask if there is an Early Years programme.

squishedgrapes · 22/02/2020 19:28

My ds not dad

squishedgrapes · 22/02/2020 19:29

And he is now very happy, has friends and quite a good social life Smile

LoseLooseLucy · 22/02/2020 19:32

My 5 year old was diagnosed at two and I'm told often that even two is very young.

I'm still waiting for speech therapy though (he's non-verbal).

joffreyscoffees · 22/02/2020 19:47

I have a 19 month old and I find it difficult to understand how an assessment could be carried out and a diagnosis given at such a young age.

maddiemookins16mum · 22/02/2020 19:50

Who diagnosed him?

tiredanddangerous · 22/02/2020 19:50

19 months is way too young for an autism diagnosis op.

TheVanguardSix · 22/02/2020 20:06

Group speech therapy was wonderful for us as well as our son having access to an amazing nursery teacher who took him and two or three others in the class for bi-weekly group chat sessions for kids with special needs (those who found socialising more challenging). Make sure you enrol him in a nursery with a decent SENCO and an empathetic teacher who has experience of working with ASD children.
Keeping a low-stress household and just basically understanding who my little boy is, what he responds well to, what stresses him, and when I can push the boat out further and challenge him more, has all really helped. And having an amazing dog! Smile Get fresh air and peace for at least 1/2 an hour to an hour a day.
I did a lot of PECS at home mainly, to teach DS vocabulary, to teach him emotions (faces showing anger, sadness, happiness, etc), and to help him understand first, now, next, last (first have breakfast, next get dressed, then brush our teeth, etc- so that he wouldn't find change stressful- transferring from task to task when he was small was really hard. Now, he's so flexible and easy-going. He just has no issue with change at all).
I found telling him that 'it will be ok', just soothing him when he was stressed was so important, holding his hands and telling him to give mine a squeeze to release the stress really helped (he was very flappy, exceedingly flappy. We used to joke that he'd fly off. At nearly 6 years old, he hardly flaps but he does jump up and down when he's happy). Skechers shoes are your friend, in case your LO has got sensory stuff where he finds shoes and sock uncomfortable. Basic grey school socks and Skechers and soft jogging bottoms are still DS's go-to clothes when at home. But he's done very well at school with the uniform: button-down shirts and ties and awkward Teflon trousers. Never complains.
As your DS gets older and learns to hold a pencil, buy some rubber pencil grips from Amazon. Stabilo easy-grip pencils are great for all kids, but especially helpful if your child is having a tricky time holding a pencil. Stabilo Woody pencil crayons are brilliant for colouring.
You don't have to talk and chat all the time with your ASD child. This can cause stress in some kids, unless you have a really chatty child. My DS didn't speak until he was 3. He is an absolute chatterbox now and speaks really well. Just talk clearly and concisely. Explain how things work. If you do A, then B happens. They like to know the consequences of actions. Sometimes you just need to clearly drive points home, so rather than, "Don't touch the iron" you could say, "If you touch the hot iron, it will burn you and you will have to go to hospital and that will be sad for you."
Lots of hugs and squeezy handholds help relieve stress and release oxytocin, always a good, calming remedy to stress. I am over emphasizing this for a reason. ASD kids tend to be incredibly emotional and love being loved. But sometimes it's that inability to deal with the onslaught of emotions that stresses them. Keep it simple. Keep it lovable and gentle. My ASD son is my most affectionate child. Lots of hugs, as I said. Lots of love.
If eye contact isn't great, use 'eyes to me' or 'face to me'.
ASD kids adapt and learn to cope really well. They tend to do well with rules and lots of structure (try not to be too strict or domineering or this can cause stress).They do learn by example, as do most of us. But what may be intuitive to one child, may be less so to an ASD child, so you show them, guide them, and they learn.
Paediatrics have diagnosed your DS, have they given you a folder telling you what's available or about any local playgroups? We didn't really have anything local to us, but to be honest, a good nursery is key to helping them socialise happily. So choose well.
It's sad and scary, the time leading up to diagnosis, but it really won't always be this way. With early intervention and a lot of love, your little one will really thrive in the light of your love and support. Try not to be afraid. I know that it's daunting. It's as if suddenly your life GPS says 'route not available' and now you're stuck on this road and you don't know where it's leading or what lies ahead. But soon enough, you know this road like the back of your hand. It becomes a well-travelled and well-loved route. And you know which potholes to avoid, having had a few previous run-ins with them. Smile
Sorry to ramble on. I hope I haven't overwhelmed you!

BabbleBee · 22/02/2020 20:09

How was he diagnosed and who by? My DD was diagnosed gradually with multiple learning difficulties. She couldn’t start speech therapy until she was 3.

smartiecake · 22/02/2020 20:12

My son was diagnosed at 3. Due to his age there will hopefully be a specialist early years team in your area. They should be able to help with portage or specialist nursery places. Was he diagnosed by a paediatrician? We had to see speech therapy as part of my sons ASD assessment and then we received help from them. There should be a joined up approach in giving your son the help he needs

TheVanguardSix · 22/02/2020 20:12

I should add that my experience is from raising my own ASD DS and also from working with autistic children at a special school. I am speaking from my own point of view which others may not agree with.

GinDrinker00 · 22/02/2020 20:15

My eldest has autism and ADHD, diagonised at 3. I cannot stress enough about how important routine is, you can of course break it but give them plenty of warning about it.
Change of diet didn’t help our son, he seems to get hyper off thin air. Grin Go for speech therapy, my son didn’t talk till he was 4 but soon as we started it he picked up speaking in no time. At home when your talking to your son, have images or hold things up as reference to what your talking about I.e nappy change, hold a nappy, drink, hold up his juice cup etc. It really does help with the understanding.
If it helps, I thought my son wouldn’t have any friends however despite all his struggles he’s in year 4 mainstream and has plenty of friends so try not to stress over that. Our kids are full of surprises. Smile

Xiaoxiong · 22/02/2020 20:15

DS1 scored about as poorly as you can score on the 2.5 year autism screening test with the health visitor and was referred to the developmental paediatric team. 6 years on he is still quirky but definitely neurotypical- maybe from one of the interventions we did, maybe he just matured, we will never know. 19 months seems extremely young for a diagnosis. They told us that ASD traits are common for many NT toddlers and young children, it's just that in some kids those traits persist beyond the average age.

The interventions we tried included a change of childcare setting from a childminder to a nanny, we got a dog, we started proactively training him to recognise feelings and expressions with flash cards, lots of visual cues for routines and schedules, we tripled his intake of fish and lots of different vegetables and how much water he drank, all kinds of things. I think it gave us a kick up the bum to really engage with his development where before we were pretty much go with the flow, he's only little, the nursery says he's fine, etc.

BonSoirMonCherie · 22/02/2020 20:15

I'm curious who diagnosed your child so young. Mine was put on the diagnostic pathway at a similar age but not diagnosed until 7.

GinDrinker00 · 22/02/2020 20:19

@bonsoirMonCherie it varies area to area on what the diagnostic age is.

CwtchesCuddles · 22/02/2020 20:20

Wow, never come across a child diagnosed that young! My dc was early at 3.

YappityYapYap · 22/02/2020 20:21

There's no way on earth your 19 month old has been diagnosed with autism

Ozziewozzie · 22/02/2020 20:22

@TheVanguardSix
Can I just say, I personally found your post incredibly helpful.

Op, we are just going along the road of getting an assessment. Ds is 4. Speech and language delay was our first sign. My ds never babbled either. Talking is progressing now. SALT was rubbish in our local area, however I gather this is not the case everywhere else. Waiting list was long for that too. Nursery is a massive support. My ds is really affectionate. Personally, I find my ds the easiest of 5 ( he’s 4th from the top) His traits are becoming more noticeable as he get older. My ds lives to jump up and down when excited. He can never just walk, he hops skips twirls and bounces the whole way. So much more is understood about autism now. There is also tonnes of support. SALT, Occupational Therapy, Physiotherapy for core strengthening etc. Dieticians for eating concerns, food aversions.
Funding for support in schools etc. Social groups. Many children with SEN have an incredibly lovely life.
You’ve obviously just had a shock. It’s going to be ok. The best thing you can do is research it a bit. There’s times out there. Just try and look up recent info as the understanding has come along way.,

LoseLooseLucy · 22/02/2020 20:27

To be fair I knew when my son was very young that he had autism (I took him to the GP when he was 17 months, she referred him to a Paediatrician).

He wasn't diagnosed until he was 2 years 7 months though, he had to have the ADOS test and see at least 5 different professionals, and I still get some HCPs and school staff telling me he was diagnosed very yoing.

19 months seems quite unbelievable.

june2007 · 22/02/2020 20:28

Speech thereapy may help, and some can find diet can help behavioural aspects. Contact you childrens centre. (if have one near by.) Advice from HV. If they do to nursery talk to senco. Also the national autistics society. The thing is because it,s a spectrum one person with autism can be very different to the next.

june2007 · 22/02/2020 20:29

But I agree 19 months seems very early.

SolitudeSometimesIs · 22/02/2020 20:32

19 months? Surely a typo.

hiredandsqueak · 22/02/2020 20:33

My daughter was referred to the paed at 13 months after a regression (my son was already diagnosed at two and a half). Following screening for metabolic disorders and chromosome abnormalities she was referred for a multi disciplinary assessment at 17 months and had an autism diagnosis a week after her second birthday. Nineteen months seems really early in comparison.