In wanting a hand hold (child with incontinence and retained reflex issues)?

[mycarpetsun]

I've posted about my 6 year olds toilet issues before. In fact it was Mumsnet that made me realise he was actually chronically constipated (hence huge blow outs at school.)

It's still going on months later, I've been in to school twice today to clean him up, I can't work or even take a shower in case I get called in.

He's also been diagnosed with a retained Moro reflex, I want a 2nd evaluation on that but it would explain a lot.

I'm at the end of my tether. I have no family here and dh's family are useless. He's constantly soiling himself and his doctor isn't taking it seriously enough.

He's just been registered disabled so has a 504 plan at the school. The plan wasn't followed today as they had a substitute teacher in. They left him heavily soiled sitting in the classroom.

Dh is trying but useless.I'm his only advocate and I'm trying to fight for the treatment he needs in a system I'm not used to and don't understand.

I broke down at school today in front of some staff, I'm sure they all think I'm crazy now.

Other kids are starting to notice what's going on, it could so quickly go wrong for ds and ruin his school life.

Sorry this isn't making much sense and is such a fractured post, I'm ashamed to say I'm really struggling to cope, his doctor keeps saying how common it is but I bet if it was her son soiling himself multiple times a day she wouldn't be so laid back about it.

Oh OP, sending a big fat hug your way sounds like you're going through a tough time at the moment. You really need to be telling the doctor how serious this is and that you need support. Also reaffirm this to the school. Could you not move your son to a specialist school?
Sorry I have no advice but your pain and exhaustion really comes through your post and I feel awful for you. Really hope you get this resolved xx

ilslearningcorner.com/2016-11-spinal-galant-retained-spinal-galant-make-child-wiggle-squirm/
Have a look at this too, maybe it could help 😀

Look up fecal calprotection test. It shows inflammation in the bowel. I got one for my son (in uk) after he had bowel issues, as this is one of the easiest tests from IBD as it’s non invasive.

My daughter had overflow and constipation issues.

She has fructose j tolerance. Hers is relatively mild and so mainly only affected by high fructose corn syrup (which from what I understand is present in a lot more us foods than in the uk) but it can also be caused by naturally occurring fructose fruit and veg.

So if he is eating a lot of high fructose fruit / veg it could affect it.

You can find charts online which show the fructose content.

She did have some issues around 12 months ago and we worked out it was the daily fruit tub she was taking to school - most of the fruits in her were high fructose ones!

Lactose intolerance can also cause the same symptoms I believe as they tested her for that as well.