Hi everyone, first-time poster, long-time lurker - please be kind!
My husband & I care for my DM who lives with us. She has dementia so it’s tough for everyone as she has episodes of delirium where she talks non-stop for 36 hours. She has double-handed care (2 carers) with 4 visits a day, organised via the council but part-paid-for by her as she’s over the threshold.
We like the carers and respect what a hard job they have especially when my DM is delirious. We also understand that they aren’t paid well and are under time pressure. However, we use their visits as an opportunity to switch off/take a break from what is otherwise a pretty relentless juggling act of trying to fit work, cooking, shopping and housework around caring duties. We sometimes take a day or evening off and one of the carers sits with Mum (she can’t be left alone). We pay her more than her usual hourly rate for this and she is always really happy to do it.
Anyway, to my AIBU... it seems the carers are always looking for ways to cut corners, shorten their visits (which are anything from 30-45 mins long) etc. They also pray during visits (they are Muslim) and occasionally this gets to us as they take it in turns to shut themselves in Mum’s bedroom to do it. We understand that there are strict protocols within the Muslim religion but wonder why the carers think it’s OK to pray while they’re working. I think this would matter less if they didn’t also try and cut corners/leave early but it just seems off somehow.
Has anyone else had experience of this? We have never said anything but are wondering about asking for a meeting with the care coordinator and bringing it up as an issue. Or is that mean, given that the carers are under as much if not more pressure than us? TBH, it’s hard to separate this issue from all the other issues we have with the situation - the mobiles going off every 5 minutes even though we’ve asked the carers to put them on silent, the lateness, the trying to leave early, the not properly monitoring Mum when she’s drinking a hot cup of tea and the many other niggles that come up on a daily basis. I feel like I can never get a break as I’m constantly reminding the carers about something or other. It’s exhausting 🙁 AIBU and WWYD?