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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask for help re autistic child in my care?

37 replies

Neverhavetoomuchglitter · 30/01/2020 09:11

Cant believe it has resorted to me asking on an online forum but the support in my area is non existent.
I'm a childminder (qualified with many years experience but none in special needs) A few weeks ago a child started with me (age 3) who is clearly on the spectrum. He is very difficult to care for the majority of the time but he has made small progress and his parents are lovely. I really don't want to give up on him.
The main problem is his obsession with watching DVDs. I have no issue with the children watching them occasionally but certainly don't have the tv on all the time. But this is what he wants!! He can sometimes be distracted by other activities and is usually manageable when we are out but it's whenever we are in the house. He just has meltdown after meltdown. It's exhausting and it's beginning to wear thin. The other children actually cover their ears! I really cannot tell if this behaviour is because of his autism or simply just a tantrum because he can't get his own way.
Should I give in? Am I trying to fight the wrong battle? I really don't know anymore. Any advice would be appreciated. It has been a particularly difficult week and he is here every day!

OP posts:
Letseatgrandma · 30/01/2020 11:41

If you lack specialist experience and aren’t equipped to support his needs then maybe he would cope better in a different setting. It sounds like the current situation is unsuitable for him and for your other children

Agreed. A child with autism should be placed with someone with more specialised skills in this area.

Greysparkles · 30/01/2020 12:11

Agreed. A child with autism should be placed with someone with more specialised skills in this area

Lovely thinking, but sadly not the reality for most. These specialist people and places do not exist in many places

Sparkle567 · 30/01/2020 12:14

My son has severe autism.

It will be a phase, he will be obsessed with dvds and then next month could be obsessed with stones/paper/lining cars up.

I’d Personally put a dvd on while in the house.

Galleyfm · 30/01/2020 12:32

The best care my son has had is from people who are not autism specialists but are willing and wanting to give him what he needs. They of course need guidance and in some areas e.g. Speech need the therapist. Some specialists have been as much help as a chocolate fire guard because they haven't cared, seen my son as an individual and haven't been able to think outside of what they know.

The parents can apply for an ehc themselves. This will give them a set timeframe (although not always kept to) as to when assessments should be completed. If as the eyfs provider you can give a report showing your concerns. They'll be in a good position to push for further help. E.g. Speech therapy which if he is non verbal seems vital, Ot- sensory integration assessment, ed psych.....

The threshold for assessment is quite low and at least if diagnosis is a long time off he'll be getting some specialist input and you'll be getting some good advice on how to support him.

As you've said he is non verbal, he probably really needs some basic form of communication which may really help reduce the meltdowns. You could start with laminated pictures of his favourite things and things he needs (mummy, daddy, drink, favourite food) then you use them and say the word to teach him what they are related to or even use objects which he could have near him e.g. The same beaker he drinks from; pick it up and say "drink" then give him a drink.

Lilicat1013 · 30/01/2020 12:46

I have two boys who are autistic, they were very similar to that at age three.

Firstly it's not a temper tantrum/trying to get his own way, autistic children get very caught up in obsessions and routines. The DVDs likely help him feel safe. My younger son (age 6) is currently fixated on one single episode of Minnie Mouse Club House which features Minnie Mouse opening a bow shop. He shouts 'Minnie Mouse' from the moment he gets home from school and watches it on repeat. It helps him feel calm and settled. Prior to Minnie Mouse it was The The Night Garden, the episode finished when we were out the room and he put his head through the TV as there was no one there to put the next one on immediately. My older son (age 9) will watch programmes on the iPad. He chooses a small section of dialogue usually only a few seconds long and watches it over and over again.

I let them get on with this because it seems to be what they need. I encourage other types of play and they tend to seek other things when they feel more chilled but that play is still very routine and repetitive.

I understand that it's not possible for you to be as flexible as I can be on screen time. A visual timetable and a strong routine would be the best help in teaching him when he can watch DVDs. Visual timers like sand timers are really helpful in showing when DVD time is coming to an end.

Other toys I have found successful with my two include anything sensory, we have had magic sand, lentils on a tuff spot with things to scoop and pour, Play Doh, slime, disco lights, liquid timers, very soft blankets and glitter wands.

Both children have responded well with having somewhere to calm down, kids play tents are great for this and are fairly cheap. You can get dark dens and glow in the dark toys but basic play tents work fine. Putting in soft pillows and blankets really helps.

My youngest also loves watching things move, like a train set where the train moves round the track on it's own and he can watch, he also loves things that spin. My older son has always loved toys that you can get it to repeated the same phrases over and over again (you probably won't like this though!). Things like the vTech toy phones and Leapfrog laptops.

It might be worth using some Makaton with him, even if he won't look at you and doesn't seem to be playing attention. Something Special is brilliant for picking it up and he might enjoy it.

With regard to the suggestion that this little boy should be placed somewhere more specialised there is nowhere. That's not to suggest that you are obligated to continue to care for him if you feel this isn't working out, you aren't. You have other children and your own needs to consider. I just come up against this a lot so wanted to address it.

My children are considered severely autistic and were both diagnosed at age two, my oldest child attended a special needs preschool for half days as that is what was available. My youngest son attended the same special needs pre school but by then the funding was cut so he did half days and only a partial week. Now funding has been cut even more and that preschool is gone, there is another preschool with a special needs speciality but I believe they are either closing or closed. There is nothing else. My oldest child had Portage for about a year, my youngest child was allocated six weeks, my neighbour's young child who is believed to be autistic can't get Portage at all. My older son got speech and language therapy at home until he went to nursery and they took over (in house speech and language therapist), my youngest son had to wait till nursery. My neighbour's son probably won't get to the top of the waiting list before he starts school. There is no help, there is no support, there is literally nothing.

That said if I can be helpful in a very non expert and not based on my personal experience way please feel free to message me I will do my best.

Stressedout10 · 30/01/2020 13:01

How many other children do you have?
I ask this for 2 reasons firstly if there are to many children this will cause stress and autistic meltdowns (not tantrums) also if it's to noisy.
Secondly because there's rules about how many children you can have when you care for sen children that are different to nt ratios. You should check with your LA what ratio you need to adhere to.
Asd children hate any change, many also find screen time calming as they can block out external stressors

Sleepyblueocean · 30/01/2020 13:02

He may want the dvds because they make him feel safe. You need to find alternative activities that also make him feel safe.

x2boys · 30/01/2020 13:10

This is the problem in posting on here everyone is suggesting things that may or not work yes visual timetables etc are useful but only if the child is able to understand them ,however caring the Op might be she needs some proper guidance about using these things ,my son has never taken to Makaton or Signalong as it is in my town ,he does s use PECS,but only after a long introduction by school and speech and language and us working together ,different children use different communication methods and speech and language are the best people I advice ,I reiterate he needs proper assessment and professionals involved so things can be put in place for him

Neverhavetoomuchglitter · 30/01/2020 14:27

Thanks so much, some really helpful and detailed answers. I'm going to get on at the Early Yrs team again and ask they put something in place for him re speech etc.
He does say odd random words but you cant communicate properly with him.
When I look back I think he has come on a bit. His parents are really happy he's here. He comes in running and smiling on a morning. Just doing some half and shorter days at the moment as he gets stressed later on.
I will let him watch the dvds more now I know its definitely not just a tantrum.
I also work with an assistant so easier with 2 of us. I really am fond of him despite how hard he can be! He can be lovely too and sits snuggled up to me on odd occasions which is lovely. I dont think I could bear telling his parents I dont want to look after him anymore but obviously his needs come first.
I think he's gone a bit backward as this week we've tried to install some more boundaries and I guess he just isn't ready for that.
Thank you again everyone.

OP posts:
Letseatgrandma · 30/01/2020 14:48

Lovely thinking, but sadly not the reality for most. These specialist people and places do not exist in many places

I wasn’t suggesting a special school, just perhaps someone with experience in this area who didn’t have to reply on a post in AIBU to get basic suggestions.

Auridon4life · 30/01/2020 15:05

You should not be looking after this child.

Auridon4life · 30/01/2020 15:08

I'm sorry I posted that before I read your update. You sound like you have gotten a better understanding of special needs. Well done! A little understanding of special needs can really help.

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