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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU? Have totally lost faith in my GP

61 replies

MissKittyBeaudelais · 13/01/2020 20:41

Bad back 18 months. Had two lots of physio and given exercises. Had scan. No abnormality seen. Have severe neck problems but MRI showed cervical spine degeneration.

My symptoms are worsening. I can be walking around and then suddenly, there’s what I can only describe as excruciating pinch pain in my back at L4/5 and S1. And then...I cannot move. I have to shuffle and kind of drag my left leg in a pin-step motion. I can’t carry on like this. Today, I was in the hall with the cooker alarm going off and the dog going mad barking at it (And me) and there’s me...standing as still as I can, afraid to move. Eventually I shuffled in.

What on earth can I do? I’ve been back to my GP who has said that whilst she’s not suggesting I’m imagining the pain, it could be that I’m over sensitive to pain stimuli that I’ve “learned” over the years. But it feels mechanical. It feels like my nerve is being squashed and ground into my vertebrae.

Would a chiropractor or osteopath help?

Does my GP think I’m just a hypochondriac? AIBU to think that she’s just stopped listening to me and thinks I’m a crackpot?

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Boozeless · 14/01/2020 15:50

It does sound like they are fobbing you off. In a GP's mind giving someone in pain (potentially dx Fibromyalgia) a low dose of antidepressant is supposed to relax you enough to help you sleep & better sleep is supposed to equal less pain or fatigue. In reality, it frequently doesn't work. Are you getting any benefit from taking them? If not then I would look to coming off of them. Potentially at a reduced dose, depending on the dose you are on.

The thing is, you have a clear diagnosis from the MRI of spine degeneration, so why on earth are they guessing Fibro, which is the diagnosis given when everything is tested but no cause is found? Hmm It is true, a lot of people with HF ASD have Fibro, I am one of them. It is very stressful living life as a square peg trying to fit into the round hole that is life. Stress equals muscle tension which equals pain. But this is NOT what you describe!

You have been perfectly clear in your description of your pain, yet they have insulted you in offering CBT, which could not help degenerative pain & rarely works for those with ASD anyway! Angry I know this situation myself. I have suffered chronic back pain since I was a child, (finally diagnosed Fibromyalgia & fobbed off with ineffective CBT 5 years ago) I am furious on your behalf. You need to see an Orthopedic consultant. I would demand a referral. Plus, potentially some proper pain relief. Flowers

Didiplanthis · 14/01/2020 16:08

Hang on... I know you are in pain but you have HAD a scan and you have been referred and seen by the musculoskeletal service ??? I'm not sure how the GP has let you down ? In my area GPs can only refer to orthopedics and specialist services through MSK.. which they have...

Baaaahhhhh · 14/01/2020 16:21

Surprised by anti-chiropractic sentiment.

MissKittyBeaudelais · 14/01/2020 17:34

@Didiplanthis... I’ve had this for two years now. Have been back and forth since Feb last year. Have no pain killers, have had a scan and physio sessions x 2. I’m immobilised with pain at some point EVERY day. Pain clinic appointment ought not to take that long...it’s PAIN ffs!

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MissKittyBeaudelais · 14/01/2020 17:39

@Boozeless ... I just think GP thinks I’m a lunatic or just want to be ill. I’m furious that this is slowing me down and incapacitating me, every day.

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ravensoaponarope · 14/01/2020 18:16

Re the weeing problems, this is a common side effect of antidepressants...

Boozeless · 14/01/2020 18:18

Your GP can prescribe you painkillers. Pain clinic was pointless in my experience, but they can apparently prescribe stuff a GP can't. Given that you haven't tried anything yet it seems a bit odd to refer you there first! Confused

Albatross123 · 14/01/2020 18:28

Your pain sounds like mine - sciatica. I saw osteopaths, physiotherapists, chiropractors, yoga and pilates instructors but none of it helped. I have found my own simple solution - Ice packs. I use ice packs - 15 minutes on 15 minutes off whilst lying flat on my back on them pressed onto my lower spine. It relieves the swelling in the sciatic nerve enough for it to be released from whatever it is trapped in (disc material). I need to do this on and off for a day or two and no sitting down at all - just standing or lying propped up on the bed so no pressure on my spine. I am not a medical professional but hope my experience might help you as I suffered on and off for years before working it all out.

MissKittyBeaudelais · 14/01/2020 18:34

Physio said it’s not sciatica. No radiation of pain just the crushing twinge in the L4/5 area.

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1066vegan · 14/01/2020 18:45

Surprised by anti-chiropractic sentiment.

I was pleasantly surprised that I wasn't the only one to say keep away. If a chiropractor does anything that works then it isn't chiropractic; it's something that a physio, sports therapist etc could do.

The theory behind it is completely batshit.

As the legend goes, chiropractic medicine was born on September 18, 1895, when Daniel David Palmer, a magnetic healer in Davenport, Iowa, met a deaf janitor named Harvey Lillard. Palmer claimed they had a conversation about how Lillard’s hearing could be repaired by adjusting his spine, and with a crack of the back, the janitor’s auditory woes were cured. This was the launching point for the pseudoscience of chiropractic (how the practice of chiropractic medicine is commonly referred to). From there, Palmer continued to work on his theories, eventually opening up chiropractic schools that still exist to this day (yearly tuition at the Palmer College of Chiropractic in Iowa: $34,000. Acceptance rate: 100 percent), and the field of chiropractic medicine emerged. It’s possible that Lillard never consented to the procedure Palmer performed on him; some re-tellings speculate that Lillard was not fully deaf. But it’s more likely that, because there are no nerves in the back that can actually affect hearing, Lillard’s condition was not fixed with a back adjustment.

Palmer held séances to contact a dead physician named Jim Atkinson, and said that those séances helped him develop chiropractic. As he wrote in his 1914 book The Chiropractor:

"The knowledge and philosophy given me by Dr. Jim Atkinson, an intelligent spiritual being, together with explanations of phenomena, principles resolved from causes, effects, powers, laws and utility, appealed to my reason. The method by which I obtained an explanation of certain physical phenomena, from an intelligence in the spiritual world, is known in biblical language as inspiration. In a great measure The Chiropractor's Adjuster was written under such spiritual promptings."

It's rubbish because it's not backed up by good science. Worse than that, it's actually dangerous. There's evidence that it's responsible for some severe injuries and even deaths. [(sciencebasedmedicine.org/chiropractic-manipulation-of-the-neck-linked-to-stroke-in-a-6-year-old-child/ Science Based Medicine has examples)]

When I listened to the Behind the Bastards podcast episode, they played a clip from a video of a baby being manipulated. It was upsetting just listening to it, without having the visuals.

I wouldn't touch it with a bargepole.

Albatross123 · 14/01/2020 19:55

Even if its not the sciatic nerve it still sounds like a nerve pain so ice might help. Worth a try to see if it provides any pain relief.

iklboo · 14/01/2020 20:14

Sounds awful OP but I'm wondering if the CBT was offered as a coping / relaxing method. Pain is a vicious circle - you are in pain, you tense up, pain gets worse, you get tenser and so on. CBT can teach relaxing exercises to reduce your stress response (rather than suggesting you're a lunatic).

Graphista · 14/01/2020 21:23

“and that I felt I was losing my “push” when in the loo” that alone should have had her sending you to a&e I’m now with the pp who thinks it may be cauda equina syndrome - this needs to be checked URGENTLY!

At the very least it needs to be ruled out.

Do not accept any more fobbing off indeed I’m tempted to say go to a&e asap to be honest.

MissKittyBeaudelais · 14/01/2020 21:33

I have no numbness/loss of feeling though 🤨

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PumpkinPie2016 · 14/01/2020 21:45

Sorry you are suffering OP.

Was the physio NHS? If so, can you book in with a private physio (look for recommendations in your area). It costs but if you can afford it, it can be well worth it.

Slightly different to you but I was involved in a serious car accident some years back resulting in a massive whiplash injury. Coupled with an abnormal curve in my spine, I was not in a good way!

I went private for physio because when I went to the NHS one, they did one session and basically said there wasn't really much to be done and it would probably never be right. I was only 23 and they were suggesting I pretty much live with it forever.

I went private and although it took a fair while due to the extent of injury, they did treat it and sort it out (obviously the curve is permanent but the injuries from the accident were fixed).

Not saying all NHS physio is poor but ime going private can definitely help.

Didiplanthis · 14/01/2020 21:57

I missed the bit about losing your push and small wees often... sorry... yes I think this does need urgent attention. Cauda equina is a genuine emergency... its better to get checked asap.

Graphista · 14/01/2020 21:59

It's not just numbness/loss of feeling it's loss of ability to control those muscles too it IS urgent

ClientListQueen · 14/01/2020 22:01

I had numbness but that wasn't my CE symptom. The only thing that changed was I was lying in bed the night before my planned spinal op and I felt almost like warm water running down my legs but it wasn't (obviously!)
I had no urine or bowel issues. Just got up, dressed, drove myself to a&e and said I think I have cauda equina
They scanned me again and I was operated on

An MRI is only an image at that moment in time - in the space of 4 weeks being very careful and doing nothing, my disc herniation doubled

MissKittyBeaudelais · 14/01/2020 22:08

@Pumpkin...I had an initial assessment and was given 4 separate exercises. He reviewed me 8 weeks later. Haven’t seen him since. He didn’t make another follow up appointment. He did do some manipulation but said “that’s clearly having no effect”. He also talked about cauda equina and made me aware of the nature of the emergency. He told me to sleep with a pillow under my knees (each time I try to turn in my sleep, the pain wakens me).

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MissKittyBeaudelais · 14/01/2020 22:09

Will Ae a look at private physio.

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MissKittyBeaudelais · 17/01/2020 19:03

Went to see GP. She had nothing to add beyond ... we’ll have to wait for the hospital appointment.

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BettaBraDoe · 17/01/2020 19:18

This doesn't sound right. I'm having surgery next week for a similar problem and I've been told that ANY change in bladder or bowel needs an urgent MRI for cauda equina and to go to a&e.

MissKittyBeaudelais · 17/01/2020 19:33

@Betta... good luck with the surgery. I don’t have cauda equina 😊

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Straycatblue · 17/01/2020 19:51

Hi Op,

If you are on facebook, there are some great back pain support groups that can perhaps give some more specific advice , some of the groups have several thousand people in them, all suffering from back pain and sharing their experiences and advice. Some of it is country specific ie if the group member is from America but some of it can be very good and give you clear ideas of what you want to get from your treatment and referrals.

All you do is type back pain in the search bar of facebook and lots of back pain related results inc specific groups come up, you can then narrow it down by using the filter for results for Groups only. Generally the groups with several thousand members have lots of varied advice but always to keep in mind that most are not members of medical profession.

ChazsBrilliantAttitude · 17/01/2020 20:06

Is the pain in the middle or to the side? I have SI joint dysfunction and that causes stabbing pain to the side.

As you were a dancer are you hyper mobile?