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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask if you are an IBS sufferer

54 replies

RhodaCamel · 07/01/2020 09:01

What helps with your symptoms?
I’m at the end of my rope with this.
I’ve had IBS on and off for the last 20 years and it’s completely controlled my life. I am now almost 47 and it has become much worse the last few years, I don’t know why that is, maybe my age and approaching perimenopause?
I’ve had endless tests:-
Calprotectin stool test which was negative
Bowel cancer FIT stool test which was clear
A clear gastroscope and biopsies
A clear colonoscopy
Scan on upper digestive system which was fine
Scans in pelvic area (ovaries fine but have uterine polyps but doctor doesn’t think this and IBS have any connection).

The gastroenterologist wasn’t helpful and just said that as the colonoscopy was clear he couldn’t help me anymore.

If I’m lucky I’ll get a week per month when my digestive system is calm (I have no idea why this is as I do nothing any different to normal when I have the calm days) but other than that it’s a constant up and down with symptoms of constipation or much looser, trapped wind, lots of gas and wind, grumbling, growlings and gurgling (these even wake me up at night) trapped wind type pain, massive bloating especially at night and just a general upset and angry gut.
Ive tried the low fodmap diet twice under a hospital dietician and that doesn’t really help even though I know it’s works so well for a lot of people, I’ve tried hypnotherapy, reflexology, I eat well, exercise, don’t drink or smoke. Tried all the IBS meds (the only one which really helped was buscopan but that gave me numb fingers so am scared to take again).
I just do not know what else to do or try!
How do you cope with your day to day symptoms and what works for you?

OP posts:
cravingthelook · 07/01/2020 19:28

@keepingbees yes mine is affected by my cycle and I've worked out it's progesterone. (Years, implant, mini pill, nothing cycle checking, pregnancy and research)

OP as well as finding out your triggers, can I strongly suggest you up your water intake and ensure you get plenty of regular exercise. I have found I get way worse if I don't get enough water or exercise.

HaggardMumofToddler · 07/01/2020 19:28

Also no alcohol or caffeine! Including tea. Decaf all the way. Smile

flippyflapper · 12/01/2020 10:36

Wow mine was triggered by my period too, mine are so bad and only like 21 days between so for me it was constant.

I honestly think trying dairy free when it starts and see if it helps. Yes i miss dairy but i don't miss the pain and pure hell i was going through.

UpTheLaganInABubble · 12/01/2020 10:55

Have you had a breath test for SIBO? If not then def look in to that. There are 2 types, Hydrogen and Methane, and unfortunately the NHS only test for Hydrogen so a private test would be better if you can afford it

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