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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To not take this medication tomorrow after spending hours up the hospital .. Really worried

45 replies

ChocolateCoins19 · 05/01/2020 02:33

37w pregnant.
MW today noticed baby HB and mine both high.. Bbay 157 mine 120..mine was also irregular. Baby also measuring 34w not 37 so got to have a scan in week
I also have anemia which she believes isn't getting better despite tablets due to continued symptoms .. Awaiting blood results Monday and arrange an infusion of need be ( had to have in previous pregnancies)

Because of the HB and breathlessness.. She called day unit. They sent me to A&E for ecg and bloods at 3pm

Ecg fine.. The bloods not so good the results for the clotting ( don't know the name) was highwr than they would like.
Did chest xray all OK by what they could see.
I was there 10 hours got home at 1am.. It was so busy the poor staff were rushed off feet. Beds queued down several corridors. I felt awful as in myself I feel fine but know I can't take risks as my dad has a blood clot history.
They gave me a blood thinner into belly skin and gave me one to bring home for tomorrow to administer myself in the morning
Then tomorrow they will call to go back for further investigation and look at scans i belive for blood flow, clots but I'm not sure as they were so busy they didn't explain all they said was it can't be done there in emergency due to pregnancy
However when I had previous surgery I was given celexaine ( sp) got home and noticed the injection they gave this was a diff name.. I've just googled it to see if its the same and it says not to be given in pregnancy. I'm now here worried sick.
I'm meant to do it around 9am but wondering If I should wait till they call and ask?

OP posts:
endofthelinefinally · 05/01/2020 08:41

You presented with symptoms of possible life threatening pulmonary embolism. You have been given exactly the correct treatment and investigations.
Drugs given to pregnant women are given off label because it is not ethical to carry out some clinical trials on pregnant women.
Enoxaparin does not cross the placenta, has been used extensively for at least 20 years to treat dvt and pe in pregnancy.
It saves around 30 maternal lives per year in England and its safety has been retrospectively audited.
Please follow the advice from the hospital and go back for further tests. You have no reason to worry unless you don't take the medication.

endofthelinefinally · 05/01/2020 08:43

Sorry, should have said some drugs are given off label.

ipswichwitch · 05/01/2020 08:58

Given the breathlessness and higher risk of Dvt or pulmonary embolism (blood clot in lung) that you have, partly because you’re pregnant and also family history of clotting issues, they have decided the benefits outweigh the risks of taking enoxaparin. It’s quite routine for them to start this treatment when suspecting a PE in pregnancy in the hospital I work in, before it is confirmed as the risk to you and the baby from a PE is high.

You have already had one dose in hospital, so it would be wise to continue the treatment. PO is correct in saying that many drugs do have a “do not take in pregnancy” disclaimer on simply because it’s not ethical to test drugs on pregnant women.

Normal pathway in our trust following a clear chest X-ray, is to have an ultrasound to check for dvt and a lung perfusion scan which looks at the blood supply to the lungs and will show up a PE. These are probably the scans they mentioned you be getting.

Vinosaurus · 05/01/2020 08:59

Please take Endoftheline's advice and take the drug - the consequences of not doing so could be catastrophic- for you and your baby. As you probably already know, pregnancy is a risk factor for DVTs and Pulmonary Embolisms.

The test they did was probably a d-dimer blood test, which is commonly elevated in pregnant women, but obviously there's elevated and there's elevated - did they say what number it was at? I expect not considering how busy you said the were. There's a few scans they can do - a CTPA (a CT with contrast) or a VQ, another type of scan with contrast and possibly inhaling some slightly radioactive gas. The latter is preferable in pregnancy as the radiation dose is relatively small.

If you have issues with injecting yourself can your partner do it for you?

The high and irregular heartrate could be explained by the anaemia. But it's good that you're being checked as it's also possible for a PE to cause it - don't panic about this though as you're already on the right treatment by the sounds of it (i.e. blood thinners) - but you need to take it!

YuleAreBeingUnREASTIEable · 05/01/2020 09:08

The labels always say not in pg. that’s because nothing is tested because it’s unethical. Doesn’t mean it’s actually unsafe or shouldn’t be used. I’d take it personally unless you’ve found actual evidence of it being unsafe in pg, in which case I’d be calling 101 or a pharmacist for advice.

everythingthelighttouches · 05/01/2020 09:11

Please take the medication you have been prescribed by qualified medical professionals who have seen you and conducted a wide variety of tests.

I know it is a scary time and you would be completely justified to seek further medical advice and reassurance from your Dr, walk in clinic, midwife etc.

Clexane is regularly given in pregnancy not only for symptoms of pulmonary embolism, but also preeclampsia with associated placental blood flow issues and growth restriction. I’m not saying you have any of these, just that they give it for good reason.

Good luck OP, hope you speak to another medical professional soon and that everything is fine. Flowers

CherryPavlova · 05/01/2020 09:13

They’re the same.

ChocolateCoins19 · 05/01/2020 21:05

Thank you.
I did it this eve. They called this morning and can't fit me in till tomorrow so they said inject this eve and wait for a call tomorrow.

I think my head was everywhere and so tired.
Had all of an hours sleep as dd was being a pickle in the night and woke hourly.
Roll on bedtime.

OP posts:
Rememberallball · 05/01/2020 21:21

Good luck for tomorrow. Wanted to add to the reassurances about taking the enoxaparen; I was prescribed it from 5 days pre embryo transfer until 15 weeks pregnant and again from 28 weeks until 6 weeks post delivering my twins at 34 weeks in August last year and, apart from the expected bruising, had no side effects.

Jackapacka · 05/01/2020 22:29

With my first pregnancy had a dvt at 38weeks and took blood thinners until 3 months post partum. 2nd pregnancy they were started from 12 weeks I had to inject my self in the belly twice a day. Also had to have iron infusions (and felt much better after them!)
Had no side effects other than the bruises from the injections which I did in the pattern of a smiley face.

MySonThePotato · 05/01/2020 22:39

Pleased to see some sensible advice being given on page 2 of this thread, obviously by fellow doctors.

As a doctor, it sounds to me like your medical team are worried you may have a blood clot, so they are correctly and appropriately treating you with a blood thinner until they can do tests to check whether there is actually a blood clot.

FWIW I agree with the previous poster who pointed out that D dimer is often raised in pregnancy. It's not a very useful blood test in pregnant women. I wouldn't check it myself. But I presume your medical team are concerned because of your high heart rate, and other aspects of your presentation.

If in doubt, OP, ask your treating team for advice, not randoms on the internet. You've had some very good advice on this thread, but some pretty dire advice too.

ChocolateCoins19 · 06/01/2020 01:10

Thank you. As I said I think my head was everywhere, exhausted and mind going over time so posted.

Hopefully by end of tomorrow well know what's happening..

OP posts:
MildlyMiserable · 06/01/2020 01:27

I know it’s hard to when expecting but try and drink more water, it helped me with HB.
Good luck for the morning.

ChocolateCoins19 · 06/01/2020 01:39

Thank you
I know I drink plenty of liquid.. At least 8pts a day.. Always have done. I feel word without a drink to hand. In car I keep a case of water in boot.. I take one in changing bag.. In handbag. In pushchair.. Always have one on the mantle or kitchen side..

Not always water.. Often diluted squash. Or fruit juice. Sometimes fizzy.. Have cut back in the cola. This weekend just half a can.
You'd be horrified at what used to drink in coke..

OP posts:
Aridane · 06/01/2020 03:56

Clexane is indeed a blood thinner. Without knowing your specific circumstances, I think it would be unusual to prescribe it in pregnancy as it does delay clotting. Disclaimer: Registered Nurse but not a Midwife

please don’t spout dangerous nonsense/ the medication is widely used in pregnancy. And the results of not using it, as another post has said, could be catastrophic

Ihavenoideawhatmyusernameis · 06/01/2020 08:05

Enoxoparin is the same as clexane. Clexane is just the brand name. Wishing you well 💐

Yummymummy2020 · 06/01/2020 10:31

Double check with your maternity hospital for peace of mind but it’s def used in pregnancy, it’s just a balance of benefit and risk and most medications will have pregnancy warnings on them just to cover themselves really, I have been on a few this pregnancy that have written warnings about pregnancy but it’s not that they were not ok to take, my obstetrician prescribed them for me as they had more benefits than risk in my case. It’s always worth double checking as I know the feeling when you read something and get a fright, and of course mistakes can happen but I think In your situation it’s pretty standard to have a thinner and thinners generally will have pregnancy warnings on them. I hope you get the reassurance you need and that you get a good rest today now after the stressful few days you have had!

ChocolateCoins19 · 07/01/2020 11:43

Thought I'd replied previous but didn't

All tests are OK. Had legs and lungs tested yesterday.. No Clots. And some other bloods but I didn't get what they were for, soemthing to do with heart.?

Just to thank you all again for keeping me grounded.

Today is a chill out day with toddler all this stress and appointments has worn me out.

Just growth scan Tomorrow for baby which I'm sure will be fine as dd was always a pickle for laying funny so measured small

OP posts:
everythingthelighttouches · 13/01/2020 23:11

Hope you’re ok and the growth scan was ok chocolatecoins

sueelleker · 14/01/2020 18:54

Clexane is a brand of enoxaparin. Hospital pharmacy technician here-we can't get it at the moment, and are supplying Inhixa (same drug, different brand) instead.

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