To ask for a handhold?

[WorriedMum2020]

I've namechanged as I might add some identifying information.

I had my son in October 2018. He was 5 lb 2oz and when he got to 3 weeks he wasn't putting much weight on. He also was hospitalised 3 times from when he was born to December 2018. He was diagnosed with cystic fibrosis. He seemed ok for a little while and now he's 14 months. For a few days he's had a bit of a cold but we weren't worried. Anyway today he woke up coughing alot and hasn't been well all day. But at dinner time he was really struggling to breath. So we phoned an ambulance and they are keeping him in. He just seems so poorly.

Can I have a handhold? 😞

Are you with your son now ?

Thinking of you❤️❤️

Hand hold here 🤝

💐

🤗 ♥

Thinking of you

Bless him. I hope he is getting the treatment he needs and that you’re managing some rest too. X

Bless him OP, hope everything is going OK there. Sending you both strength x

Hand hold from me. X

Holding your hand tight. I have a friend with CF who's just turned 32. It's a rough road but it's not all doom and gloom. ❤

The wee pet, hope he's more settled now

Hugs

Winter is so crap for bugs OP. Dr was hospitalised in Nov with a breathing related illness, we were only home 3 weeks before she was back in with a second bout off the second thing:(

Your DS is in the right hands x

Sending hugs

Thoughts are with you and your son.

for your son, and one for you. And you'll need this . Make sure you take short but frequent loo and tea breaks. Hospital bedsides are emotional and exhausting. Have they got a pull out chair or similar you can curl up on next to him?

Big hugs, OP. I'm sure he's receiving the best possible care x

Thinking of you both and hoping he improves soon
Make sure you look after yourself, keep hydrated and eat if you can

Aww I will say a little prayer for him, bless him and you

Morning! My DD2 has CF, she's almost 8. Currently in hospital too since Boxing Day. She was diagnosed at 15 days, I'll never be okay with CF but I am at a place of acceptance and hospital admissions no longer fill me with terror. It's all part of the journey..

Please feel free to DM me - we've had times when CF has faded into the background of our lives (despite the endless hours of daily treatment) and times when it has absolutely taken over everything and my DD has been really unwell. Do you have a good CF Team you trust? When my DD was a baby I found it really useful to talk to the CF Psychologist. Her specialist nurses are amazing too which has helped so much.

Sending love. You can do it.

How is your ds going OP? Hope all well?

I have so much sympathy. My best mate has cf and we're nearly 34. School science lessons at 12, specifically on genetics, told me my friend would die at approx. 23. That on average was the case and although she is unable to work now due to low lung function and constant hospital admissions, we are now hopeful as 3 years ago her prognosis was 2- 3 years and now there is new medicine being trialled that could mean so much longer! It's been a long and painful road and shes clearly not able to do what 'normal' people do but considering she could have died many times in our childhood, and we were warned on many hospital admissions it could happen, we are doing well and shes living her best life. Stay positive and have hope in the fact that advances are happening incredibly quickly in treatments for cf.
Sending much love and hugs xx

Adding to that last post.. the bugs are the worst and can mutate and grow into new bugs so stay away from anyone with any kind of flu or cold or even cf. But there are also stomach issues which suck and then the diabetes. Just be vigilant and prepared and I am convinced that the medical advances will provide for your DC in the future as they are progressing very fast. X