Paranoid mother?

[butterandbread]

(Posted in children’s health but no replies as yet so asking here for traffic )

To try and my brief, I was feeding my 9mo yesterday when I noticed her right arm shaking, carried on feeding her until this progressed to brief bouts of full body shaking. Didn’t seem to be a seizure (no eyes rolling, wasn’t limp afterwards, didn’t seem dazed etc) and would only last a second or two, but when I took her out of her high chair she had become very quiet, pale, and just not her usual self.

Within a few minutes her top lip had gone blue, but she was having no trouble breathing, was just very quiet and still. I took her temp and it was 35 so wrapped her up and called 111 for advice (she normally runs quite warm).

To summarise the next few hours, they arranged an urgent call back to book an OOH appt within 2 hours, but she then vomited (vey unusual for her) so I called back, and after discussion on their end they recommended I call 999, as did the OOH doctor that called me back as they were quite concerned by the symptoms and her temperature (I was clear that I didn’t think these were seizures).

I decided to take her up to hospital myself and was basically told after a long wait that she seems fine, her temperature was now verging on slightly high but not a fever, her blood sugar was fine, and as it wasn’t a convulsion I should just keep an eye on her as sometimes things can’t be explained with babies

I was just really looking to see if anyone’s had experience of something similar? I’m absolutely not saying I know better than the doctor, but I also know my daughter and I’m not just 100% comfortable that I can dismiss this as nothing.

She was cold again when I got her up this morning and has been very tired (though is currently having a not very restful nap, lots of waking and crying) but has been more responsive and playful than last night. Hasn’t wanted to eat much and has had a few more bouts of the shaking/shivering, so I’m torn over whether to take her to the doctors or whether I’m being a paranoid mother!

Just to add so that I don’t sound like a complete doormat , I did advise the doctor that though she was less lethargic we still didn’t feel she was her normal self, and he advised that the only thing to be looking out for would be convulsions and we’d know one if we saw it.

I think you need to trust your own instincts here and go to your GP as a matter of urgency.

Not all fits are full-blown/obvious convulsions.

I hope you get some answers soon.

Go to the GP - get them to examine properly including listening to heart sounds.

I’m a HUGE believer in mummy instinct. I’ve never ever been wrong about either child. My youngest had a really rare autoimmune disease. Which even most pead drs hasn’t heard of. I pushed with over 50 drs. I went into a and e one night only to be told I was a paranoid mother.

Turns out. I was 100% right. I’d googled her symptoms. Found the conditions. Managed to speak to other parents about their child and the symptoms.

I was also right about my eldest when she would have stomach aches that literally made her scream for days on end. In fact. I’ve been right every single time. It’s almost like I can feel what they feel.

Always always trust that instinct. We have it there for a reason. Occasionally it can be disturbed and nowadays so little listen to it

If you still think they’ve missed something. Then keep pushing. My youngest was ill over 40 times in 18 months. I took her to see a different dr EACH time to document her symptoms. Not one picked up on it. It was only when I took her private that finally someone listened to me.

Agree with above. Push for her to be checked over again. It sounds possibly a reaction to a virus, but not all seizures are full blown, and as she is obviously not herself she needs seeing. Good luck op.

Definitely see the doctor. FWIW some convulsions are to do with age and kids do grow out of them, particularly as they are falling asleep. So don't worry too much chances are it's nothing serious.

Definitely keep pushing can you get an emergency GP appointment today? They might have more time and interest TBH.

Could have been a febrile convulsion? I know they come in different severities from full-blown fit down to "not much".

They are pretty common in babies and usually occur when they've got a bit of a bug. Most kids who have one don't ever have another.

BUT, mothers instinct is everything. If you think something is wrong, keep pushing and pushing until you feel reassured.

Thanks so much everyone for the replies!

It’s reassuring to know I’m possibly not being overly neurotic.

After much deliberating and keeping a very close eye, I ended up not taking her back in today, though I am intending on getting an emergency GP appointment tomorrow as I still don’t feel I can rest easy, and I suppose that’s what I should be listening to!

There’s been one or two more episodes, but they’re so brief that there’s no way I could get my phone out and on to video in time to be able to show a doctor. The doctor in A&E seemed sure that they weren’t febrile convulsions based on what I’d described, and I would definitely know if they were apparently, but like a couple of you have said (and I’ve read today during a considered google), they’re not always as easy to spot as you’d think.

She’s been very lively this afternoon, much more her normal self, but does seems muted and slightly less responsive after the shaking, so even though today has been an improvement, the fact I can’t rule out the possibility of seizures is why I’ll be taking her for another opinion tomorrow.

Thanks for those saying to trust my gut! I’m always one to say that to other as well, so goodness knows why I’ve doubted myself on this!

A friend’s daughter always had febrile convulsions with a virus.