Sigh; I love the NHS so much and have definitely got my money’s worth out of them - but I’ve had two problems over the year where things weren’t referred suitably which has consequently lead to me having three major surgeries.
I have never complained; I have initially been really angry when I realised what have happened, but decided to see it through and take a view on my overall care. I should say that in the second instance of non-referral, it has lead to me losing a substantial part of one major internal organ and the entirety of another, so I completely understand your frustration with the system.
I have always found with the NHS you have to fight to get symptoms taken seriously, especially if you’re younger - but once you get to the right person (normally a consultant, or even just a really diligent nurse practitioner or GP) they sort it out and are absolutely brilliant.
In the first case, my consultant was so pissed off with what had happened that he made a formal complaint for me, without me asking, and copied me in, accusing them of negligence.
In the second case, I have seen that the GP surgery have already changed the way they do things as my mum presented with the exact same symptoms and has immediately been referred to every test under the sun, and has been taken very seriously indeed.
So I think I they are aware of these errors and are self-correcting. But I know that doesn’t make your frustration or your son’s pain any less easy to cope with.
The lesson I have taken is to go back for second opinions if things aren’t working out right. This is especially crucial for when you are young. It’s always been one inaccurate decision by one practitioner, out of a sea of many excellent decisions by deeply caring ones - so I think always getting that second opinion is my approach now. I know you shouldn’t have to but I think with the lack of funding in the NHS, practitioners are overstretched and can miss things.. so yeah, second opinion is my safeguard against that.