Hi everyone. My 9 year old son has some health issues and I literally dont know what to do now. No one seems to have any answers and I wondered if anyone else had experienced something similar and had any advice.
For the last 4 years every time he has had a bowel movement he has had an accident before (unless we preemptively send him to the bathroom to try). The first he knows of needing to go is realising that some has leaked out, he can then go to the bathroom and have a proper bowel movement. This is effecting him so badly and we just don't know what to next. We've seen countless dr's, no one has any answers, originally they thoight it was encopresis (where a child is constipated, passes a large bowel movement and damages the nerves) however it has gone on so long that it really seems this can't be the case. The last few dr's we have seen don't think it is this, but don't have any other suggestions.
He has had a colonoscopy which showed nothing untoward, he has swallowed small rubber rings and then had an xray which have shown that his digestive system is working normally. He has had stomach xrays that show he doesn't have constipation.
He was completely potty trained for almost 2 years before this started and we just don't know what to do.
He is also very small for his age, an xray a few years ago showed he had delayed bone age by about 3 years, I'm not sure if this could be related. He also has some issues with his teeth, despite having good oral hygiene and not too many sweets he has had to have 2 teeth removed because they were in such bad shape and another 3 need fillings. I'm not sure if this could all be linked.
Would appreciate any advice on where to turn next, I'm so desperate for this to be over for him.