If you're chronically ill how do you keep your spirits up on days you've had enough?

[AbsentmindedWoman]

Fatigue is kicking my arse, and so frustrated. I'm light headed, slightly nauseous and reading anything longer than a few lines is tough because the words swim round the page Lying down feels far better than sitting up in a chair, from a queasy point of view, but I AM BORED of lying fucking down.

Just having a moan really as I'm fed up of fatigue/ pain/ random unpleasant symptoms.

I know there are loads of us on Mumsnet who are chronically ill with various conditions. How do you deal with your frustration and irritability on difficult days?

Having stared death in the face about six years ago even stuff like my neighbours dog barking which I find massively annoying I think well
at least I’m around to hear it. I do still get pain but it’s managed quite well. I’m rarely bedridden these days but it was the same back when I was in bed for months. I remember hearing some of the local dc playing outside and I would make stories up in my head. I wrote a lot of poetry and watched a lot of Netflix. I could not concentrate enough to read.

DS was 11 when I was at my most bedridden. We lived 5 mins from his school, so he walked there and back each day. I used to stay in bed all day till 15 mins before he was due back. Have a quick shower and make him a snack. Chat about his day and he would do homework. Then we used to play together on our xboxes for a couple of hours in the same room, sometimes his friends would join us. He did the physical play with his Dad and was heavily in to football and in a team.

I used to have a rota of ringing one person a day I have four sisters. I really didn’t want to bother them a lot so once a week was fine for them. I had a cleaner so didn’t have to worry about any housework, she was absolutely lovely and with me for five years. Her sunny disposition and love of gossiping used to cheer me no end.

Sorry to hear you are suffering. If you have the energy I would highly recommend watching the film The Untouchables. You may groan when I say it is in French with subtitles but for fun and feel good factor I'd say it's my favourite film ever www.google.co.uk/amp/s/amp.theguardian.com/film/2012/sep/06/untouchable-french-comedy-disability. Also highly recommend The Good Year with Russell Crowe which is a charming live story set in Provence. I'd love to hear if you enjoy them. Sending virtual hugs

...love story... 🙄