To have removed my children from local NHs care

[northumberland88]

I know no one can tell me if I am being unreasonable or not without knowing the full story and the full story's 10 years long!
my kids have a mixture of gastro and nutritional issues that have lead to shared care between our local district general hospital, a large childrens hospital in a big city and GOSH.
Local hospital have made so many mistakes . created lots of communication issues which have caused dangerous mistakes . On and on the list goes.
We have struggled on with them. Made concern / complaints. Tried to be positive about them but tjis has now seriously caused so much stress and harm I cannot cope anymore.
So yesterday after a farcical email from thr complaints dept I sent one stating i was withdrawing them.from any further appointments etc.
I am.aware people will say isnt that dangerous but seriously im removing them.from harm.
Has anyone done this or know what they will say?

Good to have a plan
Try and write down what you can in date order too

That is totally unacceptable, yes the lipids are always in a separate bag, if the pump was read hourly and mistake not noticed then those nurses are not fit to practise, an overdose of lipids is a very serious error

You are your child's greatest advocate. Far too many in the NHS, where dc are concerned, hide behind the threat of safeguarding and ss. I've experienced it re my teenager's mh. It is very very worrying.

I would not allow a member of my family to be treated at pur local dgh after witnessing first hand the extent of the incompetence.

They threatened us with ss and did report us. Except for the sw who rang me up after the report the senior ss staff were extremely reassuring and helpful and noted the report hadn't met theor threshold and there was no problem. Our MP was also v helpful.

From my personal experience it is better to have an alternative in place or at least in the pipeline before formally withdrawing from another healthcare service/provider/department.
We also requested copies of everything and compiled all results etc for the new hospital so that there was continuity of care

I think the important thing to be clear on when talking to social services and the other hospitals involved is that you are not stopping care for your children. You just feel that their safety is compromised in this particular hospital and as parents you are trying to safeguard them by having all care given somewhere with the appropriate level of training.

As pp have said a time line of events particularly the failings by the local hospital will be helpful for you. As hard as it maybe it should be just facts eg on X date the lipids where infused over 3 hrs instead of the prescribed 20 (that's a guess but whatever it should have been). This resulted in blood tests showing liver absorption issues and meant that (insert child's name) has to miss tpn/have extra test (whatever the outcome was). This complaint has not been investigated and resolved in a way we feel means it would not happen again. And so on and so on.