To wish endo was better understood

[Anxious256]

I had endo removed a couple of years ago. I have woken on a period early with pain and nausia. Paracetamol is not touching it. However, do not think it will be viewed as a good reason to have time off work particularly on a monday and do not know what if anything would be meds which allowed me to cope. I feel people do not understand conditions they cant see.

That gnawing, dragging, twisting, nauseating pain

Me too, it started at 9am. :(

You know when you 'know' from the deep, twisting gnawing that it's going to be a bad one? It's like dread mixes in with it.

As blueberry said, a sympathetic gp is the key. We are fortunate that our male gp has a wife who suffers from endo and he is great. The female gp on the other hand is firmly of the belief that everybody gets period pain, including her, so just get on with it.

Sorry to hear so many of you are struggling.
I have a Mirena but still unfortunately have bleeds and associated symptoms.

I have stage 3 endo, I'm with you, it's the worst pain.

I consider myself lucky because my symptoms only present when I'm actually on a period (occasional bloating aside). So I really feel for you if you're in pain at other times as well, that's miserable.

I have codeine which helps a bit, means I can get to work and stay there when I'm on a period. I take that and ibuprofen and paracetamol, not ideal but whatever gets you through. My docs give me Tranexamic acid which I sometimes take even though my flow isn't heavy, I guess it eases the pain of the endo spots bleeding? I do end up with burn marks on my belly from the hot water bottle, but the pain from that is preferable to the endo pain....which is sad.

I hope you and all of us find relief and that one day we can find a cure.

Meant to say, I had the contraceptive implant which stopped my periods and all symptoms. If you're not ttc and don't mind hormonal solutions I'd recommend it. We're trying for a baby so I had it out two years ago, else I'd have just kept replacing it.

it's exactly why the "equality over everything nonsense" pisses me off.

Women shouldn't be made to be ashamed and feel they have to hide REAL issues like that, which are not taken seriously. It's outrageous.

I remember a thread about a teen really suffering and the abuse her mother got from some fake "feminists" saying she should just suck it up and not bring the sisterhood down or some other nonsense. Other posters had very good advice.

It is a disability! It might "only" last a week to 10 days a month but it still is. It's a disgrace how so many GPs don't care.

I strongly recommend alternative medicine like acupuncture to help.

I've got endometriosis, I spent 2 years on Norethisterone to stop my periods, had laps to diagnose & remove both my tubes which were totally blocked & finally a hysterectomy, thought it had all cleared up & now have symptoms that its spread to my bladder, constant infections & blood in my urine.

EarlGreyOfTwinings I am not sure how well GP’s are trained on issues like this. To be fair even non specialist Gynaes have given odd advise E.G. that after surgery there could not be issues. Its difficult when surgery is the only form of diagnosis.

To be fair I think some of the period positive stuff has a place but we also need to empower young girls to know when things are not normal.

just telling a woman who is left in agony, haemorrhaging blood and unable to function for several days that it's "normal" is not acceptable.

It's such a disgusting attitude. Technically, the medical community could also tell us that's it's "normal" for some women to die in childbirth.

I remember another thread when some posters, pretending that they were women, refused to understand that heavy periods could be a problem, or even exist. It's just so wrong.

Tens machine co dydramol. Hot water bottle and curled up next to air con for me today. There have been times when I am physically unable to move for the pain and I often vomit with it. I’m fortunate that I have an amazing manager who gets it.

Hope you are feeling a bit better.

You are most definitely not bu. I suffered with endo for years. Had a massive impact on my work and social life. Found friends and family distancing themselves as i had to turn down another invitation or cancel last minute as i was crying in a ball on the floor.
I had a hysterectomy last year for removal of stage 4 endo and part of my bowel removed.
Its so misunderstood and so easily dismissed.
Feel for everyone suffering x

This thread is highlighting to me how many women are affected by endo. In RL I have not spoken to many people who have heard of the condition.