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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

fo commenting when my disability is in full swing

10 replies

GlamGiraffe · 25/06/2019 01:35

I sometimes wonder whether people wonder what on earth I trying to say in my comments. It's not I'm a terrible seller or have no understanding of English.
I suffer a quite severe disability which significantly impairs my Neuro, cognitive and physical functioning at random times. I know what yo think. Getting it out is not easy.
I've had comments before that my posts are nonsense and English us terrible.

I'm not up for a trolling please. Lay off this is a real question. Don't have a go a disabled people whether it's AIBU or not

Is it reffeted that I sent comment unless my brain is generally working or am I generally comprehensible.

OP posts:
crazyhairbear · 25/06/2019 01:36

I can understand you

MrsTerryPratchett · 25/06/2019 01:38

I used to know a man who had a brain injury when made him sound drunk. It was an absolute nightmare. He was intelligent and interesting. But people assumed he wasn't. All the time. He used to carry a card that explained it.

Of course he shouldn't have to but it helped.

Comment away. You don't need anyone's permission.

BrylcreamBeret · 25/06/2019 01:42

I hear you. Is it a hidden disability by any chance? It's bloody near impossible trying to be taken seriously when you 'look healthy'.

managedmis · 25/06/2019 02:11

It's fine

SenecaFalls · 25/06/2019 02:20

I understand you quite well, OP, on this and the other thread we are on together. Thanks for posting.

ilovesooty · 25/06/2019 02:23

I can understand your comments and posts.

GlamGiraffe · 25/06/2019 02:29

@BrylcreamBeret when the going relatovely good its hidden excet it reallltxshows on my face as i look very frawn and shrivelled fron it. When its not going well i can be completely unconscious- tends to cause a incident. Declared dead by doctors. Broken neck in intensive care full paralysis from waist down. Ie got over art those just not always speak or walk order.

OP posts:
GlamGiraffe · 25/06/2019 02:34

Pm subject off disability must report drama 2 wks ago. Was with 17yr old son who baby's me/ carer. Wanted to try on dress in Zara. Woman fitting room chaos. They don't let son guard me as women will freak. We go to deserted mans. I tey in he stans by fo hearing me collapse.allfine. viciously verballyattacked by 3staff about not allowed in men( company policy says uniaex( they didntcare I needed an assistamtwith me. How cdisgustiong in those day and age.

OP posts:
CatherineOfAragonsPrayerBook · 25/06/2019 02:56

YANBU So sorry you're experiencing this GlamGiraffe goodness that sounds very tough!! And people can be extremely uncaring to people with hidden disabilities, I know. I have Fibromyalgia and sometimes get 'Fibro fog' where you can have really poor memory and cognitive issues. I look fine, even good when I'm in agony and can barely walk.

During a flare sometimes my writing is really crap. I drop words, usually connectives and verbs, can't remember how to spell or find the right word, it's like I just can't access what I want. Unfortunately I can't correct it either as I literally cannot 'see' it at the time, even if I check afterwards. Sometimes I've looked at my writing days later and it almost feels like someone entirely different wrote it. And it's hard to explain my ideas.

I sometimes just apologise in my posts on MN that I'm not well and hope what I'm saying makes sense.

Keep posting.

TheClaws · 25/06/2019 02:59

Perhaps when you comment, it could be helpful to note that you have a disability. People won’t automatically know that by simply reading. I’m disabled myself and it affects me in much the same ways you describe. It’s not easy, is it? Flowers

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