To think pins and needles isn't normal

[FieryBiscuits14]

Please don't flame or suggest I'm trying to self diagnose via the internet. I'm really not.

I'm a long term mumsnetter but have name changed for this.

I've been through various problems since last year which led to a neurologist visit, MRI and lumbar puncture. I've had the MRI results (which show brain lesions) but not the LP results yet. I'm back at the neurologist soon for those results and hopefully a diagnosis.

What I'm asking though is, when you sit down with legs stretched out on your sofa, or lie in bed, is it normal for you to have pins and needles in your feet or legs? I'm writing a list/diary of symptoms to take with me but I've had this for so long that I genuinely don't know if it's usual for people to have it or not? I'm posting here as I'd prefer not to limit responses to those who have a health issue already.
Thanks if you got this far. I'm trying to quell the rising panic about a diagnosis and this probably isn't the answer but I at least feel like it's keeping me busy.

I was at the neurologist and he’s testing me for Lyme disease.

Might be worth a try for some of you too.
If it comes back negative I think I’ll book myself into a padded room!

I definitely feel there’s something in me that flares & stops me being 100%
I get inflammatory markers in my blood tests but nothing comes up when investigated further, no lupus no rheumatoid no b12 etc

I’m off to google Undifferentiated Connective Tissue Disease.

My doctor tested me for Lyme disease as she said it would be the first thing they would check at neurologist. I've my appointment through, only 5 weeks to wait My test came back negative for both recent and historic Lyme. I'm trying not to google incase I go crazy. I'm not sure if it's the right thing to do!

Fiery what's the MRI like? I assume I'll have one at some point.

@WorriedMami

MRI is ok. I was in mine for about 35 mins. Had a little panic at the beginning but calmed myself down quickly.

Best advice I can give is to just keep your eyes shut throughout it. They put a mask and headphones on you and I had the radio on which was ok. There is a button they put in your hand so you can press and they will get you out if you aren't happy but I managed to not do that. It's very noisy in a sort of banging way.

I've heard people say they have fallen asleep in theirs!

Just to update in case anyone searches for similar symptoms. I ended up being diagnosed with MS a few weeks ago.

Im under 40 with trigeminal neuralgia, pins and needles frequently and other nerve pains, my old gp refused to send me for tests (he blamed everything on me being overweight, because TM is clearly cause by my weight....) Ive just moved so need to sign up to a new GP, I think I need to push for tests because this thread is worrying me!

@Toomanyradishes I don't want to freak anyone out. Certainly the majority of people on a TN forum I'm on are under 40 and have various MS type symptoms. Some could be pain related or lack of sleep related or medication related but most who have had an MRI haven't got MS lesions. It is rare for TN to be a first sign of MS. But it is so important to push for a scan just in case.
Definitely see a new GP. Good luck.

@FieryBiscuits14 sorry to welcome you to the crew, there are several good groups on facebook if you havent visited or feel you need more support. muMS UK is a good one for mums with ms if you want one that covers most aspects.

@Toomanyradishes as Fiery said, MS is very uncommon, and whilst diagnosing me, they said it was more likely to be one of the other more common problems than ms.But you do need a more sympathetic GP to refer you to a neurologist for them to rule out ms. I too heard the overweight or one of the other more common things etc first.

Fiery I was diagnosed a couple of years back.. hit me like a tonne of bricks but things have got better as I've got used to it.

I've had my DMD's and no new lesions.. which is great.

It really isnt all doom and gloom.