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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

What am I doing wrong please? Dd prone to deficiencies?

11 replies

Holibobsing · 19/05/2019 20:58

Dd had vitamin d deficiency aged 9, despite a balanced diet and plenty of sunshine, -corrected levels now;
Low iron, aged 10, not started periods at that age and ate meat eggs fish, corrected

Has had low thyroid but fine after retesting deemed fine.

And now, serum level low. I don't even know what that really is.

She has slight hypermobilty, loves to dance, gets tingling in legs, thighs ache all the time and mentions that she gets twitching in her limbs , general leg, neck and back pain.
Can fab mumsmetters tell me where I might be going wrong please .

OP posts:
Yeahnahmum · 19/05/2019 20:59

Check her B12 levels.

Yeahnahmum · 19/05/2019 21:00

And also you are not doing anything wrong. You sound great

Bobbiepin · 19/05/2019 21:01

Another saying B12 and urgently if she is getting tingles. Severe B12 deficiency causes neurological problems which can be permanent if not treated quickly.

Flippershex · 19/05/2019 21:04

I can't help much but my ds (12) is exactly the same. Iron deficiency anaemia at 14 months (breast fed and I wish someone had told me to supplement, I didn't), calcium and Vit D deficiency diagnosed last year, has all the aches and pains you are talking about and quite severe joint hyper mobility syndrome. I try really hard with his diet but he doesn't like dairy products and doesn't eat enriched foods like bread or cereals, is great with his fruit and veg, meat etc. We have just come back from the docs again to get more blood tests done to find out why his pain is so bad :/

SalemSpellman · 19/05/2019 21:05

I'm like your DD, I'm just a bit deficient in everything. My doctor told me that it happens to some people. Not that this will make you feel better, but, it's good that it's been noticed in your daughter so young. I suffered for years until I changed GPS.

I would also say check B12 checked.

I take vitamin D, folic acid every day. I have B12 injections every 10 weeks, and I keep a regular check on my iron.

Holibobsing · 19/05/2019 21:11

Funny yous should say that. My eldest DD had low b12. The GP gave her tablets. I hoped she would be given injections (because she forgot all the time to take them at was at age couldn't be bothered to go back to gp, ever no matter how much I coaxed). They point blank refused despite me hinting to get the injections myself. Of course I didn't do that as I didn't feel knowledgeable enough, and again couldn't demand that eldest DD would let me.

Now I'm a bit scared. So go secretary said to be retested in July. Do I book gp appointment to discuss before or wait?

Why would they both potentially get this when they both ate eggs fish meat, veg?

OP posts:
Holibobsing · 19/05/2019 21:20

SalemSpellman how did you get the GP surgery to regularly inject?! I've googled private b12 injections for my area but can't find anything. I feel like pushing for treatment gets me no where!

Flipper It does sound like they are similar :( To be in pain everyday at school is hard for thier concentration.

Does anybody know, if I gave her b12 tablets, would this suffice? Or injections required for long term?

OP posts:
StreetDreams · 19/05/2019 21:40

If the B12 deficiency is dietary in origin, then tablets will suffice. But from what you're saying this isn't the case. Your GP needs to test for intrinsic factor, which is the stomach secretion that allows B12 to be absorbed. Typically people with no/reduced intrinsic factor are older. so your GP may be making assumptions based on your DDs' ages, but it can also be autoimmune and is commonly associated with coeliac disease, which is also underdiagnosed, especially in children. Your GP needs to get to the bottom of the cause of this. Atm, I think they are probably assuming that their diet isn't as good as you say. If you have any of the same symptoms, you could have a blood test yourself, but they won't offer you B12 injections without good reason.

Holibobsing · 19/05/2019 22:11

I had low ferratin for years. Never any tingling, twitching, pain. Was due to fibroids though.

I'll be honest in that we don't eat five a day everyday but most days but breakfast, evening meal is fresh, For example today's dinner, roast chicken, new potatoes, salad of 5 veg baby spinach often, but youngest decided loathes it now! ; This is very typical of our types of meals. If anything, I thought we had too much meat including red meats.
Some processed at weekends admitably.Milk, cheese, fibre could be uped for youngest. She also craves and seeks out high sugar, hard to control for school lunch and outside school.Limit somewhat at home but don't deny all togethe

Dd1 had CFS aged 9, discharged from consultant at 12. I can see minor symptoms in her still but nothing like the dibilliatating full on illness she originally had. I also have a sister with m.e, who insists b12 tests for her are always fine. Both girls were particulately tall growing up and no apparent signs of celiac. Dd1 always has stomach ache, given gastro tablets.

OP posts:
Apileofballyhoo · 19/05/2019 22:13

Could she have coeliac disease?

SalemSpellman · 20/05/2019 12:55

@Holibobsing I had a number of blood tests which repeatedly showed me having low B12 despite me altering my diet to be more B12 rich.

The way to treat B12 is to have 6 loading doses, then regular injections for life. They normally prescribe injections every 12 weeks, but I argued for more because I'm so deficient in everything!

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