Anyone with Hashimoto’s who ultimately needed to reduce their medication?

[stopgap]

I was diagnosed with Hashimoto’s seven years ago, after the birth of my first child. I’m in the US, so choose to use desiccated thyroid over thyroxine.

Over the years, my TPO antibodies have gone to being in the hundreds, to numbering around 20. I have had more months in the last two years where I’m hyper rather than hypo. I have severe problems with insomnia, and am thin and fit with no digestive issues. I have tested negative for Graves.

Which leaves me to wonder: maybe I don’t need nearly as much thyroid medication as I’m currently taking. Anyone else been in the same boat, where to an extent their Hashimoto’s got better over time?

Nope. Progessively worse so now i'm on 300mg T4 and 30 mg T 3. Going mad again now because of the menopause, so I can expect some more dicking about. It's never settled, even after my thyroid "died", and I still get antibody surges.

Before my thyroid finally died ( took 4 years) i swung about between hyper anf hypo constantly. You're probably doing that. Worse after childbirth for about a year each time.

I’m going through it at the moment. My thyroxine dosage had been upped 3 times over the last three 2 years due to TSH levels. I started to go hyper just after Christmas and it was dreadful. Dosage now halved and seem to be just about back on an even keel. I hope. I think my thyroid operates in fits and starts as it chooses, to be honest

To the posters above, how do you know when your thyroid ultimately died?

I feel like I swing between hyper and hypo, but definitely still land more of the time in hyper territory.

I currently take an alternating dose of 90mcg and 120mcg.

Sorry—I meant mg. And I take Naturethroid.

Are you sure you sure you had hashimotos not post partum thyroiditis?

Both have high anti TPO.
Post partum thyroiditis tends to go high, go low then resolve over 12-24 months

I am starting to wonder that very thing, Helspoje. My doctor isn’t opposed to thinking that’s the case, but wishes to see more evidence. My youngest child is 5, and I’d say that the last two years, I’ve presented with many more hyper symptoms.

I do still test positive for TPO antibodies, but I’m barely over the threshold (18, and I believe the minimum reading is 15).

There would be no ‘more evidence’ to see

In the uk the options would’ve been block and replace for 1yr then withdraw therapy and wait and see how things settle or just ride it out and treat the highs/lows as necessary with a low threshold to withdraw/cut back.

I don’t think your dr is doing you many favours ploughing on tbh.

FWIW unless you’re about 40kg 90mcg of NDT is not anything like a total body dose so no way has your thyroid totally died. Is more like 175 or 200mcg of levoT4 for most adult women.