Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To get DNR revoked

111 replies

TheoriginalLEM · 28/04/2019 15:27

Thats it really.

How can i do this?

OP posts:
collectingcpd · 29/04/2019 06:04

nokidshere not sure what your form was, but it wasn’t a DNAR. There is No signing by patients or relatives, and it only pertains to CPR, nothing else.

FrancesFryer · 29/04/2019 06:06

A DNR is one thing but if, as a pp suggested they're withholding her Addison's meds that's almost like actively killing her

Hairyfairy01 · 29/04/2019 06:12

Doctors can overrule your or even your mums wishes regarding DNR, although those wishes will be considered when they make the final decision. You need to consider if a DNR is in her best interests. CPR is an extremely brutal procedure with very low success rates. At your mums age, and much younger I wouldn't wish it on anyone.

bellinisurge · 29/04/2019 06:16

Every time my mum went to hospital, they asked her to do a fresh DNR. She had capacity. Absolutely her decision. It did not affect her quality of treatment. Shitty NHS admin was the thing that tended to affect her treatment. Or tried to because I fought against it every step of the way. Stuff getting missed. Stuff getting misfiled. One department not talking to another. That kind of thing.

Fairylea · 29/04/2019 06:24

Op with the Addison’s stuff please come to the group I linked to on your other thread - the UK Addison’s disease support group on Facebook. There are only 9000 people in the uk with Addison’s disease and medical people still don’t always follow the treatment guidelines - there are 5k people in the Facebook group, including some very knowledgeable leaders of Addison’s groups who have access to printed materials you can give to those in charge of your mums care in hospital (to show how important the timing of meds is etc). All you need to do is join and ask. It’s worth creating a Facebook account for just that even if you don’t have one - as there is no other official Addison’s charity page, there is an addisons self help group online but it isn’t as active.

It was invaluable to me when I was diagnosed with Addison’s two years ago.

Fairylea · 29/04/2019 06:27

Here - www.facebook.com/groups/175948922471395/?ref=share

OkPedro · 29/04/2019 07:03

So many memories of when my Dad was dying. I hope your Mam passes peacefully lem
I can remember when my sister told me the doctors had mentioned a dnr for my Dad. I was shocked but he had contracted sepsis after years of vascular disease. He went to bed on Monday night and never woke up. Your Mam’s illness is so different I understand. I too would be horrified if a dnr meant my parent wasn’t getting care.
When my Mam was dying from ovarian cancer I spoke with her home hospice nurse, I said giving a person high dose morphine was speeding up their death. Well I was given a right telling off 😳
I didn’t mean the care she was given wasn’t good but it would have taken my Mam longer to die if she had no morphine. Anyway I’m rambling now sorry! Obviously if your Mother is being mistreated then it’s completely at odds with end of life care or a dnr

Soontobe60 · 29/04/2019 07:34

Some years ago my DF had a sudden ruptured AAA. He was treated and fortunately survived. But he spent 3 months in hospital, and to say it was brutal is an understatement. At that point he had no other health concerns. It took him a further 12 months to get back to full health. Following surgery the doctor made it quite clear that he would be DNR. It wasn't our decision to make. Fast forward 4 years and he fell ill. He was sent to hospital by his gp. He had a blocked bowel. It became clear that he was very poorly. After 2 days his consultant spoke to us and said they were not going to actively treat him. The bowel was not unblocking, and surgery was not an option due to the other surgeries he had had in the past causing further adhesions internally. He was kept comfortable and passed away 5 days later. The only treatment he had was iv fluids and a drain in his stomach.

Rememberallball · 29/04/2019 07:39

@LEM, definitely find out your mum’s feeling on the DNaR if she will discuss it with you. If you feel her other medical needs are being dismissed because of it, and you have good communication channels with her GP (if she’s at home) or her hospital team if under their immediate care, then definitely have a discussion about specific aspects - what do you feel I should not being addressed, ask how they are responding to that need and who is making that decision. Also, what can be done to meet that need.

Can I give you another perspective; my DF didn’t have a DNaR in place (for context, he was a curmudgeonly 83 man who had been diagnosed with a slow growing lung cancer, COPD, alcoholism and general frailty. Was known to palliative care team from local hospice but, in their opinion 4-5 weeks previously, was not I’ll enough to be eligible for their respite services or likely to need them for many months; no one discussed DNaR at that point as he was not deemed being near an end of life situation) when he collapsed at home.

He was in his bedroom and DM heard what she though was him dropping something, she thought nothing about until almost an hour later when she went to use the bathroom and his bedroom light was on, she checked on him and found him on the floor, unresponsive and was unable to help him (she is disabled) she called me and I went round - took at least 10 minutes to get there.

We called 999, explained the situation and that I thought he was beyond help (I’m a former children’s nurse with A&E experience and also worked in care of the elderly at home). To take hey send 2 critical are paramedic cars and a critical care ambulance and made every attempt they could to rescusitate him for approximate 30 minutes before declaring all attempts futile about 2 hours after my mum heard that initial noise. - and they did lots of things I found difficult to accept. My lasting memory of that night is feeling that, no matter what they attempted, it was too late even by the time DM called me; that they were using up resources that were better served being used to try and save people who they had a chance of actually helping and, lastly, that he would never have wanted any of this to happen to him.

The subsequent coroners verdict (he hadn’t seen a DR in 28 days so had to go to have a post mortem) was that he died of chronic cardiac disease and heart failure; it was unlikely any medical intervention would have succeeded and he had probably already been dead (so unaware and not in pain) when he fell. It is hard, I wish we had not had to go through that Ishtar rather than experience what we did and I regret that still 4+ years on.

RosaWaiting · 29/04/2019 10:53

LEM I apologise if I am confusing you with another poster

but it has suddenly struck me I think you posted about your mother before - she is a very difficult person I think?

and I wonder if you have some sense of misplaced guilt about it all.

my relationship with my dad was a bit Fleabag - we loved each other but we didn't like each other. I'm wondering if you are sort of pre-anticipating a sense of guilt?

I'm not denying that crap medical care happens, of course it happens. But anything that is going wrong is vanishingly unlikely to be linked to DNR.

nokidshere · 29/04/2019 11:57

@collectingcpd ok I've checked and apparently it was an Advanced Directive which included a dnr.

New posts on this thread. Refresh page