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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think that my daughter isn’t well

90 replies

mumto3xxx · 21/04/2019 07:26

I have posted about my daughter previously. She is 23 and has autism and other special needs also. Recently there has been a huge change in her and I don’t think she is well (I don’t know what’s wrong but she just isn’t herself). She has become quite depressed suddenly- she cries all the time and has the most unbelievable meltdowns (we are used to these with her autism but the ones she’s been having recently are by far so much worse than we’ve ever seen- she will sit crying and screaming and talking about harming herself), she is having barely any sleep (she has never slept that well but is on melatonin but recently this has made no difference). Her periods are also very irregular and she will only have one every few months. She is also very constipated and as a result of this she is quite uncomfortable and often in pain (her diet is not fantastic but it’s not awful in that it would cause terrible constipation- she does eat quite a lot of fibre). She is arguing with everyone at the moment and really causing a lot of problems in our family. She also has quite bad hot flushes and becomes quite flustered (I realise that this may be due to her autism though). In the last two weeks she has seen her psychiatrist and three different gps and I have expressed these concerns to all of them but they feel they are just manifestations of her autism and I think that they think I am just being an over worried parent. I was just wondering if people think I am being unreasonable to think there is something more wrong with her and also what I can do next as I am really stuck. Thank you x

OP posts:
Buttybach · 22/04/2019 01:41

I also have nausea constipation, hot and cold flushes, exhaustion to the point of sleeping all hours of the day,
Pain in the stomach area, craving sugar all the time, feeling faint and just generally feeling depressed and rubbish.
I have adhd so I come off as quite perky which is why the GP didn’t pay any attention to it. I collapsed in work so my husband took me to a and e. The endometriomas are 4 times the size of my womb.
It didn’t show up on any blood tests or scans. They had to do an internal scan to find it.

mumto3xxx · 22/04/2019 12:57

Thank you so much everyone for your helpful replies- we have seen the gp and she was so fantastic. She sent my daughter for a blood test at the walk in hospital centre and will get the results sent to our normal surgery. The doctor thinks it’s likely to be related to her hormones- they’ve tested for her hormones and full blood count. She also said that I look exhausted! I asked about the melatonin and she said our normal gp should definitely prescribe more so she can have it every night- once again thank you everyone for your support x

OP posts:
WellThisIsShit · 22/04/2019 13:34

I hope the blood tests give some idea what’s going on. I’m another one who agrees GP’s can be awful for minimising and dismissing every other symptom a person gets because once you have 1 condition everything is then blamed on that.

I always say that it’s amazing how having X condition also gives me total immunity to any other health condition. Who knew that a negative health condition could have such extremely positive side effects?!?!?! Grrrrr.

My severe pancreatitis was completely missed because I was ‘just making a fuss’ about the small amount of gi problems that go alongside my condition. I almost died because it was left so long all my organs were shutting down and my body had gone into shock... a friend phoned an ambulance as I was still saying no, I was too ashamed about not being able to cope with these tiny little pains the GP had told me off for making such a fuss for.

Some GP’s need to think a little more carefully before they ignore patients with pre-existing conditions. And perhaps challenge their very odd conviction about the instant immunity effect of that original condition!

Emilizz34 · 22/04/2019 20:19

So glad to hear that progress was made today . Hope everything gets sorted out soon Smile

Booboostwo · 22/04/2019 21:40

She sounds like a much better GP. I am so glad your DD is getting some help and I hope the tests show what has been happening.

Lellikelly26 · 22/04/2019 21:44

Has she been checked for poly cystic ovarian syndrome? The lack of periods, moods and flushes could be down to messed up hormones

lololove · 23/04/2019 08:32

My last (not current, this was the final straw) told me my hayfever was down to my weight at the time.

Yep... My allergic reaction to pollen was because I was overweight back then. Hmm

Don't be afraid to move if you need to!

mumto3xxx · 25/04/2019 11:28

Just a quick update- I’ve had a phone call from our surgery and they’ve had the results back- she has very high ‘fsh’ levels and our gp wants to see her tomorrow. Does anyone know what ‘high fsh levels’ means? I’m a bit worried now. Thank you x

OP posts:
Lovemusic33 · 25/04/2019 14:35

mumto3 it can indicate menopause if it stays elevated for a long period of time.

Lovemusic33 · 25/04/2019 15:52

Can also indicate PCOS which is more likely given her age, they will probably won’t to do further tests, a scan will diagnose or rule out PCOS. Keep us updated as my dd has similar symptoms x

Somewhereovertheroad · 25/04/2019 16:08

What laxatives are you giving and are they working?

Basically there are two types. Stool softener and stimulant ones.

If your daughter has a very hard piece of poo ( impaction) then the stimulant ones alone wont help because it will need to be softened with a stool softener or an osmotic laxative to enable it to be pushed out.

This can be very uncomfortable and painful. It can also cause an anal tear.

apologies for all the poo information, I am not a troll ...

Constipation is very overlooked and under treated in the learning difficulties population!!

Emilizz34 · 29/04/2019 00:18

@mumto3 how is your dd now?

TransFannyUltrasound · 29/04/2019 00:32

High Follicle Stimulating Hormone: the body is trying and failing to ovulate I think.

The poor love.

How is the constipation? A couple of well-diluted fybogels each day and a spoonful of Lactulose with breakfast might get things moving.

mumto3xxx · 01/05/2019 14:39

@Emilizz34 thank you so much for asking! Things are really difficult with my daughter at the moment. Her behaviour is pretty terrible currently (she says inappropriate things, constantly slams doors and is constantly arguing with everyone)- I understand that it's probably because she's not feeling well, but it's still hard. Our gp has referred us to the gynaecologist and has also said to me that he thinks I need to seriously look at our living situation because he doesn't think it will be practical to keep her at home in the long term

OP posts:
Booboostwo · 01/05/2019 21:35

How difficult for all of you! I hope the referral comes through very quickly and she gets some help.

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