AIBU to be really pissed off with my body today

[Sickoffamilydrama]

So I'm hypermobile luckily for me it isn't as bad as some but every so often I get really pissed off.
Since I was 12 until I was about 35 I regularly dislocated my knee caps so much so I had to have a tendon replaced as was in constant pain, whilst they still ache that's improved.
I frequently have sciatic pain that radiates down my leg because my pelvis misaligns everytime I'm pregnant ( it's probably never straightened out from the first child 12 years ago).
I have very flat feet and I'm starting to get a bunion so that can be painful along with the tendon in the arch of both my feet.
I went out for the day yesterday in decent shoes (some squashy soled Clark brogues) in fairness we did do about 20,000 steps but it was a slow wandering around the city now I'm in so much pain think I've done something to the tendon that flexes your foot.
A month if not a week doesn't go by in my whole adult life were I'm not in pain.

So AIBU to be a little bit fucked off with my body.
I fancy a glass of wine but know that's a quick fix and will make me more depressed tomorrow. I want to be active and do stuff with my kids but end up having to be careful in case I pull something.

Disclaimer before anyone moans at me there's people worse off than me I know this.

And another thing even though I dislocated my knee caps about 10 times in the space of 3 years in my mid teens, no one did anything except shrug their shoulders and offer me physio not once did they investigate it further why it was happening or offer any advice. My parents didn't push it either just accepted it.
If I'd have known I was hypermobile then I could have learnt to look after myself better and kept my muscles strong (or at least tried).

That sounds pretty shit, you are definitely allowed to be pissed off.

You don't have to be the one person suffering most in the world for your pain and your problems to matter.

I totally understand OP.

Have exactly the same thing. Dislocated my knee cap so many times. Had a big op in my teens and now need a knee replacement.

Being bendy was always my party trick but no one ever thought it was a problem.

Finally got diagnosed about 5 years ago as a dr I was seeing for something else had an interest in it. That unlocked so much help for me. I am under the care of a rheumatologist (for arthritis) at a hospital that specialises in hypermobility and I've done a specialist physio programme, see podiatrist and hand therapist regularly. Also diagnosed with POTS. It's helped me cope better with some symptoms but I really wish this had started many years ago to stop me being so affected now.

Have a look at the hypermobility association. I've found them really helpful in explaining other issues to like local anaesthetics not working so well for example.

@oneforthepain thanks for understanding it feels good to acknowledge it I've never tell people in RL even my DH doesn't know the full extent.
@LittleChristmasMouse thanks I'll look them up.This is the final straw I'm going to the GP and demanding a referral to anyone who can help.
My mum damaged her hips/back when we were kids and spent years in pain, although just seemed to put up with it and never push the GP for further help or try and get pyhsio/ stay fit, she can now barely walk and will probably need a hip replacement, I'm not going to make the same mistake.

Try and get referred to someone who specialises in hypermobility.

I have seen some over the years who have not understood it and don't understand the need to teach correct use of joints, maintaining flexibility but also building strength. 1 thing I was shown by the specialist physio is to do exercises in front of a mirror. Apparently we lack proprioception because our ligaments don't feed back to our brains where our joints are and what they are doing so you think you are bending your arm say in a certain way but actually you aren't. The mirror gives you feedback.

I have Ehlers Danlos Syndrome..... Also have severaly disabled child. I've now got degenerative discs and disc hernations and then my pelvis misaligns!
I know your pain! Fit flops for summer and Fly Mes for winter ....
Had 3 kids quite easily but with SPD.
Luckily I can have the pain killers. My mum was Hypermobile too and ended up with two new knees.

@IceBearRocks funnily enough I have 3 kids and whilst they didn't pop out it was fairly easy even the one who had a hand up and would have got stuck in someone not so flexible so there's always a positive.

I'm sorry your suffering too

@LittleChristmasMouse I've heard that too that our spacial awareness is poor.
Also that there's an overlap with dyslexia and autism as well although there's some disagreement if this is just coincidence, I'm dyslexic as are my eldest 2 and 1 is autistic.

Have you tried Bowen therapy? Many people find it beneficial for these conditions.

@Jamiefraserskilt love your username I'm partial to a certain ginger Scotsman too .

I'll look that up thanks.