nothing as im a 24 hour carer and 24 hour home educator
this has been our life for years now with out help from anyone
boys are 14 and 8 but mentally 11 and 5,youngest has only been verbal for just over a year as well
both boys have many complex disabilities each(8 for oldest,7 for youngest)and have bad anxiety each so need adult supervision 24/7 so its not as if i can say go to their rooms for half hour
its a good thing they are not violent as they are very big for their age at 6ft 1(14) and 5ft 1(8)
neither sleep either so need a adult each at night
oldest has only recently got over a 3 year nervous breakdown at 11 caused by s bullying y5 teacher and was agoraphobic which has taking a lot of hard work without any professional help
im also teetotal so cant turn to alcohol
i do have a partner and he does the same as me,more as hes the driver
both boys get 0 professional help as there is none here(valleys of south wales)its all down to me and their dad
what we do is attend 2 diffrent disability groups that organize many trips/activities so the kids are just like them(or worse off)and parents in the same position so there is a lot of acceptance and no judgment
we do a lot of holidays(18 last year) and day trips out and attend our local cinema in the days regularly as its only £2.50 a ticket
we also spend a lot of time cooking as boys eat 8-9 large home cooked meals each in a 24 hour period
written down its hard hard work but you got no choice when there is no one out there to help you as there is not ever any specials schools around here just village schools that have no idea(same school failed both mine severely anyway)