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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Unhappy with doctor's advice

28 replies

FirstTimeMama21 · 18/03/2019 14:44

Hi all

My daughter suffers with severe eczema on her face that can only be controlled using hydrocortisone cream. The GP referred her to a specialist- community not hospital. The dermatologist we saw originally gave us some advice and said that if there was no improvement then at the follow up appointment he would refer her to the hospital.

At the follow up appointment today we saw someone new. He said her eczema is not active. I explained that it's only because I'm still using the steroid cream and that the course if action the last doctor had advised us to take hadn't worked. He then gave his own advice- to reduce the use of steroid cream to once a day. I explained that we had already tried this under the GPs advice and that it doesn't work. Her eczema becomes infected very quickly. He has still said to reduce it and has prescribed a stronger steroid cream in case reducing it causing the eczema to flare up.

I just feel like I haven't been listened to. The first specialist seemed to be in agreement with the GP that we need to reduce the use of steroid cream. He had advised to do this really gradually by slowly diluting her night time application of hydrocortisone with moisturiser. The gradual removal didn't work and now this new doctor is telling me to completely stop the night time application. This is obviously definitely going to lead to an eczema flare up and I'm unhappy that the answer to this is a stronger steroid cream.

She is not due to see another specialist for two months now. What can I do if I'm unhappy with this advice?

Feeling really fed up.

OP posts:
Justonemorepancake · 18/03/2019 19:04

LO is breast fed. The OP cutting dairy and egg fully out of her diet will have no negative impact on LO so long as OP eats healthily and a balanced diet. Vegans manage to bf perfectly well.

Geekster1963 · 18/03/2019 19:08

Have you tried contacting the National Eczema Society? If you google it they have a helpline number and lots of information leaflets that are helpful. It's difficult when the Doctors don't listen to you properly and frustrating.

DoesItGetAnyBetter · 18/03/2019 19:16

My eldest child suffered with eczema from around 5 months and it was awful. We tried every lotion and potion available. The things that worked for us were:

A) Dermol (anti-microbial moisturiser)

B) Short but strong doses of steroid-

  1. Hydrocortisone
  2. Eumovate
  3. Betnovate

C) Leaving time between steroid and moisturiser

D) Cotton (clothing / bed sheets/ gloves to stop scratching

E) Infrequent bathing except summer when removing sun cream.

Everything is different for every child but I hope this helps

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