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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

I cannot cope with my daughter anymore

82 replies

mumto3xxx · 03/03/2019 15:00

my 23 year old daughter has aspergers and Tourette’s and her behaviour is awful and I am really struggling to cope! She lives at home with me and her dad and our dogs (we have two older daughters also but they have moved out). It’s quite unlikely that she will ever live independently. She is always talking (a lot of the things she says don’t make sense) and needs a lot of supervising. She constantly touches hot things in the kitchen and burns herself and constantly does things that I have asked her not to do (such as feeding the dogs jam or syrup and chasing the dogs around the house) and she hardly sleeps so we’re up a lot of the night with her. She cannot organise herself and it takes her hours to get ready to go anywhere because she is constantly distracted and goes off task. She has no concept of danger and will step out in the road a lot when cars are coming. She has worked two mornings a week in a small shop for the last 5 years so that’s the only real break I get from her apart from when she goes to her tourettes group twice a month. She can be rude and argues a lot with absolutely everybody. Her sisters hardly ever come home as a result of this. She’ll stand outside jumping up and down at the window waving to us for ages while we’re trying to read or watch tv. Also she is so difficult with her food and will only eat a small range of foods (she makes herself sick a lot after eating). She is currently with the mental health team and sees a cpn every two weeks but they are not really offering any support and they criticise me a lot saying that she hasn’t been parented well. I’m really not sure what to do anymore and would really appreciate any advice from anyone who has been through anything similar. I love my daughter so much but I just feel desperate now!

OP posts:
itsboiledeggsagain · 14/03/2019 08:52

Welldone op you are doing great.

A reminder to use your MP. What MPs do very well is take up causes for people and services (I work for one, not in health though) are normally very prompt in picking up cases that come through MPs. Thry are normally pretty dogged too

NiceNewShiny · 14/03/2019 09:24

That's good to hear. (Not the racist remark bit! The bit where SS are saying they might be able to help)

Have a list of everything you want to say to them if you think it might help and don't be afraid to take your time over your answers IYSWIM.

Good luck.

TheMuminator2 · 14/03/2019 10:51

Have u tried contacting they ar v good www.macintyrecharity.org/

DearGoodnessIsThatTheTime · 14/03/2019 11:47

Given that she has Tourette’s, I would assume there’s a good chance that provoked the racist remark. Non obscene inappropriate comments- or something like that

If she also has ADHD then impulsivity will make it even harder for thoughts and comments to stay inside her head.

I’d be using that incident to show how uncontrolled her conditions are.

My children who have Tourette’s are on a couple of different tablets each - it lets them suppress in public and gives them a near normal life. They still need my support- but without the medication that they take for Tourette’s and ADHD, Tourette’s and obsessionality - they wouldn’t be coping at all. It’s a very difficult illness to live with, there’s so much they’re coping with internally - yet people just judge what they see.

DearGoodnessIsThatTheTime · 14/03/2019 11:54

It’s called
Non obscene socially inappropriate complex behaviour- and is a feature of Tourette’s

Puzzledandpissedoff · 14/03/2019 13:53

Fantastic news, @mumto3xxx, though while we all rightly abhor deliberate racist remarks I'm having a wry smile at them leaping around about your DD's, yet dragging their feet over a desperate family's legitimate needs. (And should they hesitate in future, at least you now know how to ensure instant attention)

Back with the upcoming meeting, remember what everyone's said - it's not "can't" but "won't". They'll offer you the earth "if you could just ...", but as you'd quickly find, promises is all it would ever be and you'd be no further forward

I've been in your situation so don't hesitate to PM me if I can help - but in the meantime very good luck for the meeting Flowers

DearGoodnessIsThatTheTime · 14/03/2019 16:34

It’s worth bearing in mind that what people with Tourette’s say or do is can be the thing they fear doing the most. I think it maybe preys on their mind, that they mustn’t do or say something- and then they are compelled to do or say it.

Don’t let anyone focus on your daughter’s ‘misbehaviour’. Press that it is in the context of illness. My son is very upset when his brain makes him swear.

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